Blood Cancers & Disorders: Discussions | Page 15

@jewelfaux and @nypara66, You’re both correct. It is possible to determine if a patient has the...

https://connect.mayoclinic.org/comment/1023538/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Feb 27 8:29am

I was diagnosed with JAK2 617F in 2/2020 and began hydroxyurea treatment in 4/2022. I just...

https://connect.mayoclinic.org/comment/670146/

Discussion: Have you ever had hiccups with or after chemotherapy?

Support Group: Cancer: Managing Symptoms

Posted: Jan 11, 2022

Lori, I'm 75 take 325mg aspirin and 1500mg HU every other day and 1000mg on opposite...

https://connect.mayoclinic.org/comment/975739/

Discussion: Jak 2 mutations

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2023

Welcome jewelfaux, When were you first diagnosed with ET JAK2 and what was your initial platelet...

https://connect.mayoclinic.org/comment/827844/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 18, 2023

Hello, I've just found out I have the Jak2 mutation and will go for a biopsy...

https://connect.mayoclinic.org/comment/763496/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2022

Hi, I'm jumping in because I have ET with Jak2 positive. I am on Hydrea 500mg...

https://connect.mayoclinic.org/comment/194273/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2019

The International Myeloma Foundation is at myeloma.org. Your link took me to the International Monetary Fund....

https://connect.mayoclinic.org/comment/740005/

Discussion: Have ET: What if spleen is enlarged?

Support Group: Blood Cancers & Disorders

Posted: Aug 21, 2022

Last time my platelets were just over 700. Now I'm on 1000mg of HU daily. Hopefully...

https://connect.mayoclinic.org/comment/835015/

Discussion: Hydroxyurea side effects lessen over time?

Support Group: Blood Cancers & Disorders

Posted: Mar 31, 2023

Hi, my name is Carla and I am a 77 year old, recently diagnosed with essential...

https://connect.mayoclinic.org/comment/236178/

Discussion: JAK3

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2018

Recently diagnosed with ET with JAK2& in a few months of daily HU my platelet count...

https://connect.mayoclinic.org/comment/1062393/

Discussion: Essential Thrombocythaemia

Support Group: Blood Cancers & Disorders

Posted: May 5 6:24am

Oh Debbie I forgot to mention yes, I have tested positive for jAK2 As well as...

https://connect.mayoclinic.org/comment/974136/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Dec 2, 2023

Hi, Joining in to read up on PV while waiting for my Jak2 results.. I'm 43...

https://connect.mayoclinic.org/comment/840478/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2023

Hi Justin. Unfortunately, there are few responses regarding my questions about JAK2, Essential Thrombocythemia and Waldromstrom's...

https://connect.mayoclinic.org/comment/284527/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2019

I'm a very active 83 year old female JAK2 positive, essential thrombocythemia, on Hydrea 500 mg,...

https://connect.mayoclinic.org/comment/859943/

Discussion: JAK2 positive, high platelets and also PAH (diagnosed)

Support Group: Blood Cancers & Disorders

Posted: May 14, 2023

Have you also been given Allopurinol to prevent gout and cramps - stops the build up...

https://connect.mayoclinic.org/comment/943396/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 7, 2023

Hi Steve, Welcome to this wonderful site. I have ET JAK2 and have found the site...

https://connect.mayoclinic.org/comment/800839/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2023

Same. Damn that JAK2 gene! I was happy to hear it’s not inherited so I didn’t...

https://connect.mayoclinic.org/comment/1100735/

Discussion: Contracting/developing polycythemia vera

Support Group: Blood Cancers & Disorders

Posted: Jul 7 7:34am

I'm 19 years old, male. I have noted my elevated Hb level since three years ago,...

https://connect.mayoclinic.org/comment/1008041/

Discussion: Polycythemia Vera - Help getting Diagnosis

Support Group: Blood Cancers & Disorders

Posted: Feb 1 8:13pm

Hi, my Mom was diagnosed with Polycythemia Vera after her labs went crazy. They did not...

https://connect.mayoclinic.org/comment/718613/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2022

Hi - My name is Ginger - I am 77 and was recently diagnosed with ET...

https://connect.mayoclinic.org/comment/778995/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Nov 30, 2022

Blood Cancers & Disorders Support Group