Blood Cancers & Disorders Support Group

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Comments (1,102)

I also had PCV dx and was already taking a blood anti coagulant(xarelto) and baby aspirin...

https://connect.mayoclinic.org/comment/1086296/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2024

Sorry, "driver mutation" just refers to the mutation you have that causes the ET. You are...

https://connect.mayoclinic.org/comment/781585/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2022

I didn’t get diagnosed with JAK2 and PV (2022)until a year after a hysterectomy (2021). (They...

https://connect.mayoclinic.org/comment/763289/

Discussion: Polycythemia: Are you asymptomatic?

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2022

A good primary physician would refer you to a hematologist to follow up the rest of...

https://connect.mayoclinic.org/comment/929639/

Discussion: Thrombocythemia and need neck surgery: Will surgery make it worse?

Support Group: Blood Cancers & Disorders

Posted: Sep 14, 2023

My very active 82 year old father just got diagnosed with JAK2 positive, high white count...

https://connect.mayoclinic.org/comment/859841/

Discussion: JAK2 positive, high platelets and also PAH (diagnosed)

Support Group: Blood Cancers & Disorders

Posted: May 14, 2023

Cindy1209-- Met with the Dr 4/18 and still at a loss- waiting for the results of...

https://connect.mayoclinic.org/comment/846151/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2023

My PCP in rural Mississippi urged me to see a hematologist when my CBC on routine...

https://connect.mayoclinic.org/comment/1087613/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2024

Hi there, I also have ET & JAK2 but with no symptoms other than high platelets....

https://connect.mayoclinic.org/comment/257506/

Discussion: ET - Essential Thrombocythemia & Fainting

Support Group: Blood Cancers & Disorders

Posted: Apr 4, 2019

She decided to put me on an iron supplement and do a JAK2 test to figure...

https://connect.mayoclinic.org/comment/298975/

Discussion: High WBC and platelet count

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2020

I have ET with the JAK2 mutation and my hematologist-oncologist has me on both HU and...

https://connect.mayoclinic.org/comment/1085943/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2024

Does it make a difference whether a blood test or bone marrow biopsy was done? I...

https://connect.mayoclinic.org/comment/877565/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2023

Hello, I have a few questions, recently, I was diagnosed with Jak2. Unlikely but still fairly...

https://connect.mayoclinic.org/comment/810851/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 13, 2023

JAK2 is the mutation that causes myeloproliferative neoplasms (cancers) like ET, PV, and MF. A small...

https://connect.mayoclinic.org/comment/989167/

Discussion: ET, Polycythemia, Jax2: Is this a blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Dec 31, 2023

I’m pretty much the same as jackiecarry above. I’m 71 and had a JAK2 positive reading...

https://connect.mayoclinic.org/comment/1141239/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Sep 14, 2024

I wonder what stats are for ET Jak2, if taking HU+baby aspirin, and still get a...

https://connect.mayoclinic.org/comment/1089089/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2024

Torcia, stress does not elevate your platelets...did you have the JAK2 test yet? It is the...

https://connect.mayoclinic.org/comment/941830/

Discussion: Worried about slightly elevated platelet count

Support Group: Blood Cancers & Disorders

Posted: Oct 4, 2023

Hi Karen, I am unfamiliar with TET2 mutation. I have ET JAK2. I live in the...

https://connect.mayoclinic.org/comment/783703/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2022

Normal platelets are 150 to 450 per LabCorp. Also, your other counts are normal. I would...

https://connect.mayoclinic.org/comment/942814/

Discussion: Pros and Cons of JAK2 testing

Support Group: Blood Cancers & Disorders

Posted: Oct 6, 2023

I was asymptomatic with high platelets for 10 years with no treatment. Just monitored platelet counts....

https://connect.mayoclinic.org/comment/846848/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 21, 2023

I was 65 years old and was diagnosed with ET/Jak2 mutation. My platelet count was 1...

https://connect.mayoclinic.org/comment/786781/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2022