Blood Cancers & Disorders Support Group | Page 15

May I ask... what was everyone's Erythropoietin results? Mine was 5.. it's not "low" but more...

https://connect.mayoclinic.org/comment/842397/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2023

Hmmm I am from Canada. The HU capsules I was given are bright pink and blue....

https://connect.mayoclinic.org/comment/1161210/

Discussion: HU & Titanium Oxide

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2024

@jak2mpnpositive I had ET MPN for many years and now have myelofibrosis due to the JAK2...

https://connect.mayoclinic.org/comment/1489467/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jan 23 12:36pm

I also had a positive JAK2. My count is 553...I'm just on baby aspirin. My Next/first...

https://connect.mayoclinic.org/comment/1330531/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Jun 19, 2025

Hi @arti4 I read over another discussion you started regarding Hydroxyurea for ET, and see that...

https://connect.mayoclinic.org/comment/728880/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2022

From my understanding, both the bone marrow biopsy and a peripheral blood test can be used...

https://connect.mayoclinic.org/comment/1058852/

Discussion: JAK2 detection accuracy

Support Group: Blood Cancers & Disorders

Posted: Apr 28, 2024

I have Essential thrombocytosis with JAK2 mutation. I take a drug called hydrea and it has...

https://connect.mayoclinic.org/comment/916876/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 21, 2023

Hi Helen- Thanks for your post. I was diagnosed with Essential Thrombocytemia and mutant JAK2 genes...

https://connect.mayoclinic.org/comment/328576/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Dec 28, 2020

I too was interested in that comment. So, I googled it and, assuming I understand the...

https://connect.mayoclinic.org/comment/1440942/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Nov 17, 2025

Ahhh if it were only so simple and direct. I have asked about the discrepancy and...

https://connect.mayoclinic.org/comment/905453/

Discussion: JAK2 detection accuracy

Support Group: Blood Cancers & Disorders

Posted: Jul 31, 2023

I have been very happy to read online the positive responses to taking HU instead of...

https://connect.mayoclinic.org/comment/1313649/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: May 26, 2025

Hi Ingrid077, I hope you get definite answers soon. I was diagnosed in June 2022 with...

https://connect.mayoclinic.org/comment/792008/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Jan 3, 2023

Hello @wa34937, welcome to Connect. You may notice I moved your discussion and combined it with...

https://connect.mayoclinic.org/comment/194356/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2020

I have had PV with JAK2 for over 4 years. Started with phlebotomies and Hydrea, now...

https://connect.mayoclinic.org/comment/783004/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 9, 2022

I have the typical high and low blood count concerns that most myelofibrosis patients deal with,...

https://connect.mayoclinic.org/comment/1426293/

Discussion: Myelofibrosis: Anyone have experience with Vonjo (pacritinib)?

Support Group: Blood Cancers & Disorders

Posted: Oct 29, 2025

My comment was somewhat vague. I had my first visit with hematologist/oncologist that diagnosed Essential Thrombocytosis...

https://connect.mayoclinic.org/comment/1312651/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: May 25, 2025

Everyone, I learned years ago that platelet level was not the most important factor in deciding...

https://connect.mayoclinic.org/comment/846204/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2023

I'm not trying to disagree or judge..I'm an MdAnderson, Houston patient first for Breast Cancer, then...

https://connect.mayoclinic.org/comment/1439233/

Discussion: Second Opinions: How do I get one at Mayo Clinic out-of state?

Support Group: Blood Cancers & Disorders

Posted: Nov 15, 2025

I have MDS/MPN overlap with Thrombocytosis. Tested positive for the JAK2 and SRSF2 gene mutations. For...

https://connect.mayoclinic.org/comment/256904/

Discussion: Are you taking medication for JAK2? How does it affect you?

Support Group: Blood Cancers & Disorders

Posted: May 31, 2019

Hi, I'm 79 yr old female, on HU (500 mg daily) for a couple of years...

https://connect.mayoclinic.org/comment/1514200/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Feb 25 8:34am