Blood Cancers & Disorders Support Group

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Comments (527)

@gajokos I’m bad with remembering dates and timelines, but yes, I probably joined this forum fairly...

https://connect.mayoclinic.org/comment/1503486/

Discussion: Anyone have Myelofibrosis (CMS-HCC)?

Support Group: Blood Cancers & Disorders

Posted: Feb 11 7:06pm

Hi Kelli, I have no fatigue, but high platelets and saw general hematologist/oncologist who diagnosed me...

https://connect.mayoclinic.org/comment/1522536/

Discussion: Elevated Platelet Count With Extreme Fatigue

Support Group: Blood Cancers & Disorders

Posted: Mar 8 1:45pm

I, too am looking for confirmation ref serrapeptase and myelofibrosis. I took a nice product for...

https://connect.mayoclinic.org/comment/132626/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: May 14, 2020

Welcome to Connect, @snakebite It’s so important for us to keep a positive countenance especially when...

https://connect.mayoclinic.org/comment/893512/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2023

My husband had Lymes and Erlichiosis (another tick-borne disease) 12-15 years ago. In 2021 he was...

https://connect.mayoclinic.org/comment/764388/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Oct 23, 2022

My buddy was diagnosed with Myelofibrosis at Mayo a few weeks ago. He will start on...

https://connect.mayoclinic.org/comment/697402/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2022

@baygirl80 I was on Jakafi for 8-9 years before my ET converted to secondary myelofibrosis. In...

https://connect.mayoclinic.org/comment/1445447/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Nov 23, 2025

Hi @davi0937, I am not of any help as I really do not know what “type”...

https://connect.mayoclinic.org/comment/1348648/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 15, 2025

Hi @ruthiek519 , Happy belated Birthday despite getting the diagnosis none of us want. I think...

https://connect.mayoclinic.org/comment/1312721/

Discussion: Getting nowhere with current Hematologist

Support Group: Blood Cancers & Disorders

Posted: May 25, 2025

@loribmt - @loribmt Thanks for this encouragement! I believe we are under great care provided by...

https://connect.mayoclinic.org/comment/1521631/

Discussion: This is new, overwhelming. Wife is diagnosed with PV, we need support

Support Group: Blood Cancers & Disorders

Posted: Mar 7 10:02am

Fantastic. If you scroll to the bottom of this information from Mayo Clinic, you'll find a...

https://connect.mayoclinic.org/comment/1103248/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2024

Hello Lori, You once commented on a response I made about finding a specialist for MPNs....

https://connect.mayoclinic.org/comment/1064989/

Discussion: Anyone experienced Bone Marrow Transplant with TP53 mutation?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: May 9, 2024

Stimme Sorry but I can't help you with the myelofibrosis because I have splenic marginal zone...

https://connect.mayoclinic.org/comment/591662/

Discussion: Chemo tablet or splenomegaly to reduce spleen enlargement?

Support Group: Blood Cancers & Disorders

Posted: Apr 4, 2021

Hi @circawdm, The best my O/H could do with my current Kaiser Advantage plan is to...

https://connect.mayoclinic.org/comment/1316677/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: May 30, 2025

I have the JAK2 and SRSF2 mutations. I was diagnosed with MDS/MPN overlap with Thrombocytosis. Extremely...

https://connect.mayoclinic.org/comment/194316/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: May 9, 2019

So sorry you are dealing with this. It is overwhelming. I can relate. In January, was...

https://connect.mayoclinic.org/comment/1520149/

Discussion: This is new, overwhelming. Wife is diagnosed with PV, we need support

Support Group: Blood Cancers & Disorders

Posted: Mar 5 9:18am

I was started on HU in November to lower platelets, but have experienced extreme fatigue, shortness...

https://connect.mayoclinic.org/comment/840952/

Discussion: Hematocrit Continues to Drop After Stopping Hydroxyurea

Support Group: Blood Cancers & Disorders

Posted: Apr 10, 2023

Glad to hear that the Besremi is working for folks! Anyone getting depression as a side...

https://connect.mayoclinic.org/comment/1379597/

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Aug 26, 2025

Fatigue is a common symptom with all forms of Leukemia and MDS or MPN disorders. Hydrea...

https://connect.mayoclinic.org/comment/850175/

Discussion: Jak 2 Positive with Elevated Platelets: What symptoms do you have?

Support Group: Blood Cancers & Disorders

Posted: Apr 27, 2023

Thank you for the message and information. 🙏 it means so much to my husband and...

https://connect.mayoclinic.org/comment/1255061/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Mar 10, 2025

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