Blood Cancers & Disorders: Discussions | Page 14

Hi @pamdg, You’re wondering if Jakafi can cause irregular heartbeat. I’m looking at the Drugs.com website...

https://connect.mayoclinic.org/comment/699161/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2022

Hello, I took serrapeptase for a while. I really had no idea if it was working...

https://connect.mayoclinic.org/comment/132666/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Oct 2, 2020

Hi skossaz, I am so glad you are happy and doing well although your platelets are...

https://connect.mayoclinic.org/comment/1267671/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Mar 26 10:19pm

@1pearl, I found another member diagnosed with MF with the CALR mutation and have put the...

https://connect.mayoclinic.org/comment/1256632/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 12 10:51pm

Hi Betsy, If all goes as planned the anemia you suffer from should be resolved after...

https://connect.mayoclinic.org/comment/1370930/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Aug 14 10:29pm

Hi Isabelle, My name is Rayna. I was diagnosed with ET/pre fibrotic myelofibrosis (the two docs...

https://connect.mayoclinic.org/comment/870277/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2023

Like you, I was initially diagnosed with PV about 6 years ago. My Doctor, at the...

https://connect.mayoclinic.org/comment/1262661/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 20 11:07am

@ray666 While you may have already made your decision, I'll offer my experience in case it...

https://connect.mayoclinic.org/comment/1387289/

Discussion: High Risk Myelodysplastic Syndrome: What to Expect?

Support Group: Blood Cancers & Disorders

Posted: Sep 5 10:13am

Hello friend! I feel your physical and emotional pain and distress ! I am in process...

https://connect.mayoclinic.org/comment/1369077/

Discussion: AML: I'm having a hard time to stay positive, what helps?

Support Group: Blood Cancers & Disorders

Posted: Aug 12 12:09pm

I just returned from my first 6 month check up at Moffitt Cancer Center near where...

https://connect.mayoclinic.org/comment/1258442/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 15 9:36am

I was diagnosed with secondary ET myelofibrosis a few years ago after living with ET for...

https://connect.mayoclinic.org/comment/1348100/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 14 12:49pm

Unfortunately I’m not a pilot 😂,you can say I’m an airline ground dispatcher pilot ,I don’t...

https://connect.mayoclinic.org/comment/1022506/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2024

Hi @panamsandy , I was found to have high platelets on routine lab work after routine...

https://connect.mayoclinic.org/comment/1357204/

Discussion: Is it common for platelet level to drop?

Support Group: Blood Cancers & Disorders

Posted: Jul 26 6:57pm

Hi chrisatwell I am 65 and was diagnosed with ET on January 10, 2025 which my...

https://connect.mayoclinic.org/comment/1267651/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 26 9:21pm

@apr931 Hi there! I wanted to chime in on your question regarding the number 32. I...

https://connect.mayoclinic.org/comment/231785/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2019

I was diagnosed in March 2025 after rising platelets caused painful jabs in my toes. This...

https://connect.mayoclinic.org/comment/1349661/

Discussion: Question about how you each received your diagnosis of MPN

Support Group: Blood Cancers & Disorders

Posted: Jul 16 1:12pm

Hi everyone, I'm Bonnie and I have MDS/MPN with Myelofibrosis 3. I live in Southern Oregon...

https://connect.mayoclinic.org/comment/1322924/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jun 8 11:07am

My blood disorder was initially diagnosed as essential thrombocythemia but was later changed to myelofibrosis. My...

https://connect.mayoclinic.org/comment/1091333/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2024

After my JAK2 was found my O/H ordered a bone marrow biopsy which could be done...

https://connect.mayoclinic.org/comment/1270695/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Mar 31 8:22am

You have elevate number of thrombocytes, also known as platelets, due to a cancer gene mutation...

https://connect.mayoclinic.org/comment/980340/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2023

Blood Cancers & Disorders Support Group