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Comments (2,233)

I should have said that you hope to achieve MGUS like state.

https://connect.mayoclinic.org/comment/1148897/

Discussion: Lenolidamide and Ixazomib

Support Group: Blood Cancers & Disorders

Posted: Sep 28, 2024

Thank you for responding to me. Have you had MGUS a long time?

https://connect.mayoclinic.org/comment/1142207/

Discussion: Resources for MGUS: What reading is helpful for the newly diagnosed?

Support Group: Blood Cancers & Disorders

Posted: Sep 15, 2024

Hi I also have been diagnosed with MGUS I have so many other symptoms and issues...

https://connect.mayoclinic.org/comment/1234404/

Discussion: Could we talk about anxiety with MGUS

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2025

Why don't you think MGUS aren't causing your nerve related problems?

https://connect.mayoclinic.org/comment/943951/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 8, 2023

What are you doing for the itching? I have the same t-cell lymphoma and MGUS.

https://connect.mayoclinic.org/comment/886704/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Jun 28, 2023

I have BIg kappa light chain too but said I had mgus??!!

https://connect.mayoclinic.org/comment/81214/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 1, 2020

@hsminc Thank you for sharing your experiences on this strange and convoluted journey called MGUS!!!

https://connect.mayoclinic.org/comment/1424148/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Oct 26, 2025

I’ve read everyone’s comments. Thanks for the info. Something I read in association with MGUS was...

https://connect.mayoclinic.org/comment/1417044/

Discussion: Have MGUS and just caught Covid: Did Covid affect your numbers?

Support Group: Blood Cancers & Disorders

Posted: Oct 16, 2025

It can disappear with treatment, because that is how they monitor my husbands disease. I do...

https://connect.mayoclinic.org/comment/109733/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2019

Had MGUS for 15 years. Five years ago became multiple myeloma.

https://connect.mayoclinic.org/comment/882016/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 20, 2023

Thank you Chris for information on diet. I am newly diagnosed MGUS.

https://connect.mayoclinic.org/comment/658728/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Nov 30, 2021

I have MGUS and have had low RBCs intermittently. There are many reasons for low RBCs...

https://connect.mayoclinic.org/comment/1147284/

Discussion: Does MGUS cause red blood cells (RBCs) to drop?

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2024

Hi Becky, I moved your message to this existing discussion about light-chain MGUS to this existing...

https://connect.mayoclinic.org/comment/731453/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jul 27, 2022

@psue4 Welcome to Mayo Clinic Connect. As you read through the posts here, you will find...

https://connect.mayoclinic.org/comment/823656/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 9, 2023

Hi @kaysel. Thank you for sharing your experience with how you were finally diagnosed with MGUS....

https://connect.mayoclinic.org/comment/972173/

Discussion: MGUS & Rash

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2023

I was dx with MGUS in 2013, when I was around 41/42. I was also found...

https://connect.mayoclinic.org/comment/1492226/

Discussion: People diagnosed with MGUS under 45

Support Group: Blood Cancers & Disorders

Posted: Jan 27 10:44pm

I have neuropathy and MGUS, my doctor says it’s not related but I wonder?

https://connect.mayoclinic.org/comment/1459511/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 12, 2025

Sounds like his MGUS has been stable? Gives me some hope

https://connect.mayoclinic.org/comment/1161800/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 23, 2024

During a blood test i was diagnosed with MGUS my m spike is 0.5 is that...

https://connect.mayoclinic.org/comment/1147376/

Discussion: New to kappa light chain testing

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2024

I have had MGUS since about 2009, with no conversion to Multiple Myeloma. I had high...

https://connect.mayoclinic.org/comment/770102/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Nov 6, 2022