Blood Cancers & Disorders Support Group

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Comments (2,297)

@sallylynn I had very slight neuropathy, no other symptoms. My primary care provider said, I'm going...

https://connect.mayoclinic.org/comment/948532/

Discussion: Don't know what to think and feeling uncertain at this point

Support Group: Blood Cancers & Disorders

Posted: Oct 16, 2023

@suzykaye I’ve read studies suggesting MGUS and SMM can cause these problems due to “thickening” of...

https://connect.mayoclinic.org/comment/1585171/

Discussion: Prescribed Eliquis 5mg 2 x a day

Support Group: Blood Cancers & Disorders

Posted: May 28 8:46am

@joyelizabeth Have you been formally diagnosed with MGUS? What tests were done, and by whom? If...

https://connect.mayoclinic.org/comment/1018739/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 19, 2024

PS Despite being diagnosed with MGUS in 2002, I still am categorized as MGUS. Each joint...

https://connect.mayoclinic.org/comment/1290887/

Discussion: Any concerns if you have MGUS and need joint replacement surgery?

Support Group: Blood Cancers & Disorders

Posted: Apr 27, 2025

Thank you for your information and it is helpful to know you have been able to...

https://connect.mayoclinic.org/comment/1174311/

Discussion: Does plant-based eating lower chances of MGUS progressing to myeloma?

Support Group: Blood Cancers & Disorders

Posted: Nov 16, 2024

@lgb55 Sorry, I have no specific studies to cite. I think everyone is different and alot...

https://connect.mayoclinic.org/comment/1569547/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: May 8 7:59am

I think being very healthy and this hitting your makes it harder to deal with. I've...

https://connect.mayoclinic.org/comment/1184774/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2024

I don't really have anything to treat (yet anyway). MGUS is considered a risk for MM,...

https://connect.mayoclinic.org/comment/1209159/

Discussion: MGUS and Chemotherapy

Support Group: Blood Cancers & Disorders

Posted: Jan 11, 2025

mgus rarely!! goes to MM!!! Forget about it and just live your life !!!

https://connect.mayoclinic.org/comment/870150/

Discussion: MGUS and Curcumin/Tumeric

Support Group: Blood Cancers & Disorders

Posted: May 31, 2023

Most people with MGUS also have a form of anemia. I am IDA

https://connect.mayoclinic.org/comment/1310652/

Discussion: Can weight gain cause progression from MGUS to myeloma?

Support Group: Blood Cancers & Disorders

Posted: May 22, 2025

Hi Colleen, thank you - I will check on that. Thanks for adding others with MGUS.

https://connect.mayoclinic.org/comment/632387/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Sep 3, 2021

I should have said that you hope to achieve MGUS like state.

https://connect.mayoclinic.org/comment/1148897/

Discussion: Lenolidamide and Ixazomib

Support Group: Blood Cancers & Disorders

Posted: Sep 28, 2024

Thank you for responding to me. Have you had MGUS a long time?

https://connect.mayoclinic.org/comment/1142207/

Discussion: Resources for MGUS: What reading is helpful for the newly diagnosed?

Support Group: Blood Cancers & Disorders

Posted: Sep 15, 2024

I’ve read everyone’s comments. Thanks for the info. Something I read in association with MGUS was...

https://connect.mayoclinic.org/comment/1417044/

Discussion: Have MGUS and just caught Covid: Did Covid affect your numbers?

Support Group: Blood Cancers & Disorders

Posted: Oct 16, 2025

I have MGUS too, stable these 5 years. But I would get a second opinion I...

https://connect.mayoclinic.org/comment/1608955/

Discussion: I was diagnosed with Smoldering Multiple Myeloma in 2023.

Support Group: Blood Cancers & Disorders

Posted: 3 days ago

Hi I also have been diagnosed with MGUS I have so many other symptoms and issues...

https://connect.mayoclinic.org/comment/1234404/

Discussion: Could we talk about anxiety with MGUS

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2025

What are you doing for the itching? I have the same t-cell lymphoma and MGUS.

https://connect.mayoclinic.org/comment/886704/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Jun 28, 2023

I have BIg kappa light chain too but said I had mgus??!!

https://connect.mayoclinic.org/comment/81214/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 1, 2020

@hsminc Thank you for sharing your experiences on this strange and convoluted journey called MGUS!!!

https://connect.mayoclinic.org/comment/1424148/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Oct 26, 2025

@barbarian1 Hello! Somehow I found this post of yours from last year, so glad I did!...

https://connect.mayoclinic.org/comment/1609086/

Discussion: How high should my Kappa light chain continue to rise before I worry.?

Support Group: Blood Cancers & Disorders

Posted: 3 days ago

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