Blood Cancers & Disorders Support Group

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Comments (1,035)

Hello @barbwsm! I imagine you are not feeling great. You do not mention whether your physician...

https://connect.mayoclinic.org/comment/1099071/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2024

Thank you, jrwilli1 (@jrwilli1). Fortunately, my partner has been seeing a physical therapist for quite some...

https://connect.mayoclinic.org/comment/1386913/

Discussion: High Risk Myelodysplastic Syndrome: What to Expect?

Support Group: Blood Cancers & Disorders

Posted: Sep 4, 2025

Hello @joeliliacv Welcome to Connect. MDS can impact the production of certain blood products such as...

https://connect.mayoclinic.org/comment/1255600/

Discussion: Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Mar 11, 2025

@shoch1957 My husband was on Reblozyl when first diagnosed MDS . It only worked for him...

https://connect.mayoclinic.org/comment/1463904/

Discussion: Recently diagnosed with MDS with anemia and would like to connect

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2025

I too have been diagnosed with MDS. I was actually donating platelets before 2021. In June...

https://connect.mayoclinic.org/comment/1052788/

Discussion: MDS: Can someone explain how or why platelets go up or down quickly?

Support Group: Blood Cancers & Disorders

Posted: Apr 18, 2024

Hi @justmeb5 Recently, in another discussion you’d asked about Vidaza (Azacitidine) and if there were other...

https://connect.mayoclinic.org/comment/1301625/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: May 11, 2025

I’m 71 & was diagnosed with MDS in March. I wasn’t given the option of wait...

https://connect.mayoclinic.org/comment/1369358/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Aug 12, 2025

Like you my doc has told me stem cell was not an option for my MDs...

https://connect.mayoclinic.org/comment/823332/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 9, 2023

I have MDS and am experiencing cognitive decline. Still working a very stressful job and wish...

https://connect.mayoclinic.org/comment/870090/

Discussion: MDS and cognitive decline

Support Group: Blood Cancers & Disorders

Posted: May 31, 2023

Same thing happened to me. I was diagnosed with low risk MDS in 2017. My platelets...

https://connect.mayoclinic.org/comment/909755/

Discussion: Immune Thrombocytopenia Purpura (ITP): What helps?

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2023

I was on Revlimid for MDS and it about did me in. I was so weak...

https://connect.mayoclinic.org/comment/794489/

Discussion: Myeloma: Revlimid and steroids: How quickly do side effects subside?

Support Group: Blood Cancers & Disorders

Posted: Jan 9, 2023

Hi @njjwjj Welcome to Connect. It’s very encouraging to hear that the Vidaza (Azacitidine) treatment you’re...

https://connect.mayoclinic.org/comment/952899/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2023

What is the name of your doctor at university of Miami? We are originally from Miami...

https://connect.mayoclinic.org/comment/1341301/

Discussion: Has anyone heard of VEXAS syndrome?

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2025

That’s excellent news! There have been so many positive changes in the advancement for treating MDS...

https://connect.mayoclinic.org/comment/1250925/

Discussion: Acute myeloid leukemia (AML): What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Mar 5, 2025

I am on my 11th cycle of viadaza and ventoclox with astounding results. Hemoglobin has lingered...

https://connect.mayoclinic.org/comment/1171184/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2024

Hi @kally38 and welcome to Connect. You’re right, 70 is still young! I just turned 70...

https://connect.mayoclinic.org/comment/1027929/

Discussion: Will soon have a Bone Marrow Transplant: What can I expect?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 5, 2024

Diet and ling term goals on recovery. I am going through similar with MDS and you...

https://connect.mayoclinic.org/comment/1410573/

Discussion: Life Expectancy of MDS-1 Patients

Support Group: Blood Cancers & Disorders

Posted: Oct 7, 2025

My husband was diagnosed with MDS in Dec 2023. Labs are declining. Just found a donor....

https://connect.mayoclinic.org/comment/1054559/

Discussion: Anyone dealing MDS and how are you doing?

Support Group: Blood Cancers & Disorders

Posted: Apr 21, 2024

I've had 6 Biopsy (in pelvic) over 10 months. MDS went to AML with 26% blasts...

https://connect.mayoclinic.org/comment/1172761/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Nov 13, 2024

Hello--my last bone-marrow biopsy was very promising--white cells coming back and no blasts. Now I am...

https://connect.mayoclinic.org/comment/856598/

Discussion: I have been diagnosed and under treatment for MDS

Support Group: Blood Cancers & Disorders

Posted: May 8, 2023