Blood Cancers & Disorders: Discussions | Page 13

My husband has had degenerative disc disease for years and this year diagnosed with MDS another...

https://connect.mayoclinic.org/comment/910478/

Discussion: Anyone dealt with degenerative disk disease with PV diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 10, 2023

Hello, Diagnosed in February 2024. Treatment is INQOVI. I get frequent blood and platelet transfusions. No...

https://connect.mayoclinic.org/comment/1219841/

Discussion: Waldenstrom's: Should I take the new medication (rituximab)?

Support Group: Blood Cancers & Disorders

Posted: Jan 23 2:06pm

My husband has just been diagnosed with MDS after having JAK2 for about ten years. His...

https://connect.mayoclinic.org/comment/1201670/

Discussion: MDS and cognitive decline

Support Group: Blood Cancers & Disorders

Posted: Jan 1 10:12am

Hi @pathilt, I just wanted to check in to see how your sister has been feeling....

https://connect.mayoclinic.org/comment/1133265/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Aug 30, 2024

drawlings- Come back and post here their plan. Lori will let you know how it matches...

https://connect.mayoclinic.org/comment/1262245/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 19 8:32pm

I have MDS and have been put on the same Chemo with Venetoclax. I have had...

https://connect.mayoclinic.org/comment/1097753/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: Jul 2, 2024

Hi! My husband was just dx Today with MDS.The ref matl we received is scary. It’s...

https://connect.mayoclinic.org/comment/1282841/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Apr 15 8:28pm

I have MDS/MPN with Thrombocytosis. Also JAK2 and SRSF2 positive. I take Hydroxyurea to reduce my...

https://connect.mayoclinic.org/comment/256907/

Discussion: Medication for JAK2

Support Group: Blood Cancers & Disorders

Posted: Jun 19, 2019

Welcome to Connect, @rjperk633 This is a tough decision for you and your mom. It sounds...

https://connect.mayoclinic.org/comment/1185547/

Discussion: Newly diagnosed MDS-IB2 and vidaza

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2024

I was diagnosed with MDS with ring sideblasts in December 2024. I was on the mend...

https://connect.mayoclinic.org/comment/1249735/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Mar 3 5:32pm

Started chemo on June 3 will take my 1st blood test on Friday I had a...

https://connect.mayoclinic.org/comment/1082000/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Jun 6, 2024

I was diagnosed with MDs in June 2016. My one cytopenia is neutropenia. Local hematologist prescribed...

https://connect.mayoclinic.org/comment/235268/

Discussion: MDS and Neupogen

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2019

Yes thanks for getting back to me bone marrow biopsy in 2 weeks an all my...

https://connect.mayoclinic.org/comment/807141/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2023

Good morning, @jrwilli1 There can be a certain comfort in having a huge decision made for...

https://connect.mayoclinic.org/comment/774222/

Discussion: Anyone have bone marrow transplant for aplastic anemia?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Nov 17, 2022

PixieSusan, I like you have low platelets. After bone marrow biopsy I was diagnosed with low...

https://connect.mayoclinic.org/comment/1146754/

Discussion: Anyone else have Clonal Cytopenia of Undetermined Significance (CCUS)?

Support Group: Blood Cancers & Disorders

Posted: Sep 24, 2024

@lindamarf, I hope you saw the helpful reply from @marco88 (Lee) about transfusion and risk of...

https://connect.mayoclinic.org/comment/1231549/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Feb 7 11:52am

I was diagnosed with Pancytopenia on January 29th. Got to see a hematologist on March 19th,...

https://connect.mayoclinic.org/comment/1097692/

Discussion: I am newly diagnosed with AML. with the inv(3) mutation,

Support Group: Blood Cancers & Disorders

Posted: Jul 1, 2024

My MDS-CMML-1 will be five years in July 2025. I see my oncologist every 90 days...

https://connect.mayoclinic.org/comment/1242288/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Feb 21 12:22pm

Oops, sorry about that. I saw the Enasidenib and jumped to the conclusion of AML. MDS...

https://connect.mayoclinic.org/comment/876785/

Discussion: Any suggestions to alleviate Bone Pain from Multiple Myeloma?

Support Group: Blood Cancers & Disorders

Posted: Jun 11, 2023

Hi Brenda, IPSS-R are the initials for International Prognostic Scoring System - Revised. I know this...

https://connect.mayoclinic.org/comment/962588/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2023

Blood Cancers & Disorders Support Group