Blood Cancers & Disorders Support Group

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Comments (842)

I take papaya leaf extract to Raise my platelets. It comes in capsules as well From...

https://connect.mayoclinic.org/comment/821155/

Discussion: How can I raise my platelet count? (With food)

Support Group: Blood Cancers & Disorders

Posted: Mar 5, 2023

I have ET with the JAK2 mutation as well as MDS. I am taking 500mg of...

https://connect.mayoclinic.org/comment/930458/

Discussion: Thrombocythemia and need neck surgery: Will surgery make it worse?

Support Group: Blood Cancers & Disorders

Posted: Sep 15, 2023

This is good news! I know the ‘wait & see’ approach can be scary. But your...

https://connect.mayoclinic.org/comment/1365238/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 6 5:35pm

@dstraus @colleenyoung I’m so sorry! I completely missed the MDS reference. Of course, now I understand...

https://connect.mayoclinic.org/comment/597810/

Discussion: High ferritin levels and post shoulder tendon operation pain/Exhausted

Support Group: Blood Cancers & Disorders

Posted: Apr 27, 2021

Good morning, Howard. I’ve only been able to find one reply with a member who had...

https://connect.mayoclinic.org/comment/825941/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 14, 2023

I think it is very individual. I was having IvIg (for another reason) at least a...

https://connect.mayoclinic.org/comment/1394790/

Discussion: Family member newly diagnosed with MDS

Support Group: Blood Cancers & Disorders

Posted: 5 days ago

Those counts are below 10k correct? Hydroxyurea will improve the count? Diagnosed with MDS about 3...

https://connect.mayoclinic.org/comment/914557/

Discussion: Platelet Count Variance

Support Group: Blood Cancers & Disorders

Posted: Aug 17, 2023

My husband has MDs. His platelets were at 28k. I started him on papaya and it’s...

https://connect.mayoclinic.org/comment/1211666/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Jan 14 9:06pm

I did have a bone marrow biopsy that confirmed my mds. My Hematologist suggested chemo (every...

https://connect.mayoclinic.org/comment/1198051/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2024

I'm on my 8th injection of Aranesp and have had no side effects at all. I...

https://connect.mayoclinic.org/comment/1193500/

Discussion: Can anything help ongoing fatigue from myelodysplastic syndromes (MDS?

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2024

Happy Birthday! We turn 70 a few weeks apart. Mine is coming up just before the...

https://connect.mayoclinic.org/comment/986710/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Dec 26, 2023

My original MDS diagnosis indicated a higher level of risk. My local hematologist suggested treatment with...

https://connect.mayoclinic.org/comment/235270/

Discussion: MDS and Neupogen

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2019

Hello @cybears, welcome to Connect. I moved you discussion and combined it with an existing one...

https://connect.mayoclinic.org/comment/226231/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2019

Thanks for your note. Motorcycling - wow. I' m considering giving up driving! My hemoglobin was...

https://connect.mayoclinic.org/comment/1193476/

Discussion: Anyone dealing MDS and how are you doing?

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2024

Hi Lori, Thank You for sharing it is very helpful to hear your journey. If you...

https://connect.mayoclinic.org/comment/925852/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2023

Great to hear your progress an success in beating AML I have MDs an possibly moving...

https://connect.mayoclinic.org/comment/841869/

Discussion: Acute myeloid leukemia (AML): What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2023

I am a 31 year stage 3 multiple myeloma survivor, 11 years ago I was diagnosed...

https://connect.mayoclinic.org/comment/816656/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Feb 24, 2023

I was diagnosed with low platelets and MDS in 2012 and my local transplant oncologist advised...

https://connect.mayoclinic.org/comment/757096/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Oct 4, 2022

Hi @emaddox Relentless itching is the worst, isn’t it? I can tolerate pain over itching any...

https://connect.mayoclinic.org/comment/923860/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Sep 4, 2023

Hi- I have MDS & have not experienced hands swelling, but have experienced feet & ankles...

https://connect.mayoclinic.org/comment/1361588/

Discussion: Anyone experience swollen and sometimes painful hands with MDS

Support Group: Blood Cancers & Disorders

Posted: Aug 1 2:43pm