Blood Cancers & Disorders Support Group

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Comments (1,031)

@loribmt I wasn't aware that there are several different types of MDS. She may have told...

https://connect.mayoclinic.org/comment/1524508/

Discussion: Anyone experienced constipation or acid reflux taking Hydrea?

Support Group: Blood Cancers & Disorders

Posted: Mar 11 9:27am

I have MDS/MPN-RS-T which is an extremely rare overlap disease. I have multiple gene mutations on...

https://connect.mayoclinic.org/comment/855780/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: May 7, 2023

Dear @memesedona Hoe you are doing now? I saw your comment how diagnosed with MDS? From...

https://connect.mayoclinic.org/comment/1025781/

Discussion: Low platelet count of around 120,000: What should be looked at?

Support Group: Blood Cancers & Disorders

Posted: Mar 2, 2024

Hi Howard, I’m going to answer this question about SCT in your similar post with the...

https://connect.mayoclinic.org/comment/879911/

Discussion: How does someone “feel” with untreated AML?

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2023

Thanks posting on the subject of Qunol. I have an over load of iron in my...

https://connect.mayoclinic.org/comment/1247973/

Discussion: Curcumin and Turmeric causing anemia?

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2025

My husband has MDs. Low platelets. They were at 28k. I started him on papaya and...

https://connect.mayoclinic.org/comment/1211664/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Jan 14, 2025

I have had MDS since 2015 with very low platelets being the essential problem. I have...

https://connect.mayoclinic.org/comment/818995/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Feb 28, 2023

Hi @justmeb5. It’s been a while since we’ve chatted so I thought I’d check in with...

https://connect.mayoclinic.org/comment/1398609/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Sep 22, 2025

Hi @rhodysmom! I see you’ve been a member for a couple of years but this is...

https://connect.mayoclinic.org/comment/1247552/

Discussion: Anyone have both Myelodysplastic Syndrome (MDS) & Parkinson's?

Support Group: Parkinson's Disease

Posted: Feb 28, 2025

Awaiting bone marrow biopsy for low cbc an low platelets so diagnosis appears to be mds...

https://connect.mayoclinic.org/comment/806870/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2023

Good morning. I just wanted to check in with you to see how your husband is...

https://connect.mayoclinic.org/comment/1067700/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: May 14, 2024

I have MDS with ring seidoblast I took Procrit for 4 years then went to Inqovi...

https://connect.mayoclinic.org/comment/656252/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Nov 21, 2021

I have MDS with anemia. I exercise by walking. I have some problems with getting out...

https://connect.mayoclinic.org/comment/1474430/

Discussion: Recently diagnosed with MDS with anemia and would like to connect

Support Group: Blood Cancers & Disorders

Posted: Jan 4 2:04pm

I have MDS too. Anemia is being treated with Procreit shots every 2 weeks. Started eating...

https://connect.mayoclinic.org/comment/1475099/

Discussion: Recently diagnosed with MDS with anemia and would like to connect

Support Group: Blood Cancers & Disorders

Posted: Jan 5 11:50am

Hi Kathy, I am very sorry to hear about your husband. It sounds like he is...

https://connect.mayoclinic.org/comment/962371/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2023

Go to the MDS Research Foundation website and the MPN Research Foundation website. They have some...

https://connect.mayoclinic.org/comment/284524/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2019

I found the post interesting. I have been referred to a rheumatologist next month who may...

https://connect.mayoclinic.org/comment/1370915/

Discussion: Anyone experience swollen and sometimes painful hands with MDS

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2025

Hi Howard, @tyson1221. It’s been quite a few months and I just wanted to check in...

https://connect.mayoclinic.org/comment/986044/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2023

Hello @barbwsm! I imagine you are not feeling great. You do not mention whether your physician...

https://connect.mayoclinic.org/comment/1099071/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2024

Thank you, jrwilli1 (@jrwilli1). Fortunately, my partner has been seeing a physical therapist for quite some...

https://connect.mayoclinic.org/comment/1386913/

Discussion: High Risk Myelodysplastic Syndrome: What to Expect?

Support Group: Blood Cancers & Disorders

Posted: Sep 4, 2025