Blood Cancers & Disorders Support Group

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Comments (697)

I had bloodwork yesterday, and my red and white cells are in the normal range, but...

https://connect.mayoclinic.org/comment/1146970/

Discussion: Anyone else have Clonal Cytopenia of Undetermined Significance (CCUS)?

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2024

Hi @barbwsm We’re all new at this at some point. I see you’ve been a member...

https://connect.mayoclinic.org/comment/1098504/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2024

Have you looked it up in the search bar above? I needed to look up CLL...

https://connect.mayoclinic.org/comment/1233292/

Discussion: Anyone else experiencing these symptoms with CLL diagnosis....?

Support Group: Blood Cancers & Disorders

Posted: Feb 9 8:34pm

Aransep for MDS not anemia. Since beginning of diagnosis. Keeps HGB up to 10 if possible....

https://connect.mayoclinic.org/comment/1071677/

Discussion: Why are there no discussions about cancer of the blood?

Support Group: Blood Cancers & Disorders

Posted: May 20, 2024

I have had afib for fifty years and was diagnosed last year for pv. Cardiologists and...

https://connect.mayoclinic.org/comment/770824/

Discussion: PV and atrial fibrillation

Support Group: Blood Cancers & Disorders

Posted: Nov 8, 2022

@mydadhas2024, you are asking a lot of great questions. I know this can be very confusing...

https://connect.mayoclinic.org/comment/1290898/

Discussion: MPNs - I have so many questions.

Support Group: Blood Cancers & Disorders

Posted: 1 day ago

Good morning, @tyson1221 I know you’re anxious to get a diagnosis because of your low blood...

https://connect.mayoclinic.org/comment/807507/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2023

I have CLL that was treated in 2016, 2017-2019. Hemaglobin rose to 15 million in 2020,...

https://connect.mayoclinic.org/comment/828716/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 19, 2023

Hello @jlw218 and welcome to Neuroendocrine support group on Mayo Connect. I appreciate your helpfulness to...

https://connect.mayoclinic.org/comment/1177317/

Discussion: Neuroendocrine insulinoma and MDS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 21, 2024

@momz I was diagnosed with MDS with Refractory Anemia and multi lineage dysplasia in February 2021....

https://connect.mayoclinic.org/comment/926928/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 9, 2023

Your husband is post transplant? Did he have lgl previous? My husband has MDS too and...

https://connect.mayoclinic.org/comment/1111658/

Discussion: T cell large granulocytic leukemia

Support Group: Blood Cancers & Disorders

Posted: Jul 25, 2024

It is true what Lori said in his reply. I am not a doctor and it...

https://connect.mayoclinic.org/comment/821832/

Discussion: How can I raise my platelet count? (With food)

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2023

Hi @dwolden, It’s been quite awhile since we chatted. Your husband was just starting chemo for...

https://connect.mayoclinic.org/comment/1080255/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jun 3, 2024

Hi @ikampel2, welcome to Connect. I moved your post to the Cancer group so that I...

https://connect.mayoclinic.org/comment/94437/

Discussion: I have Myelodysplastic Syndrome (MDS) spawned from ITP

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2016

I had to wait two years before I started treatment. My hemoglobin dropped to 10. Started...

https://connect.mayoclinic.org/comment/1164875/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Oct 29, 2024

My friend has MDS in the late stages . He is receiving 4-6 units of blood...

https://connect.mayoclinic.org/comment/1120430/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2024

My Neutrophil count was only half of the previous months count at 0.17. The doctor has...

https://connect.mayoclinic.org/comment/1230666/

Discussion: Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Feb 6 10:34am

Yes, we will have an appointment on July 26th and another blood draw before that. I...

https://connect.mayoclinic.org/comment/895259/

Discussion: Any survivors of Non-Hodgkin's lymphoma out there?

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2023

I have MDS/MPN overlap with Thrombocytosis. Tested positive for the JAK2 and SRSF2 gene mutations. For...

https://connect.mayoclinic.org/comment/256904/

Discussion: Medication for JAK2

Support Group: Blood Cancers & Disorders

Posted: May 31, 2019

Sounds like Essential Thrombocythemia (ET) which is one of the MPN diseases. I was originally diagnosed...

https://connect.mayoclinic.org/comment/328553/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2020