Blood Cancers & Disorders: Discussions | Page 11

I have MGUS (BMB 15% but oncologist says still MGUS) was tested last summer for amyloidosis...

https://connect.mayoclinic.org/comment/1279867/

Discussion: Could my Stomach Pain be related to Waldenstrom’s or amyloidosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 12 8:23am

Colleen, thanks for the link. I did a lot of reading and realized one sad fact....

https://connect.mayoclinic.org/comment/738604/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Aug 17, 2022

@jwillits8 Looks to me like a good case for some autoimmune sleuthing. There are many good...

https://connect.mayoclinic.org/comment/629541/

Discussion: Antiphospholipid: Weird symptoms, don't understand what’s going on

Support Group: Autoimmune Diseases

Posted: Aug 24, 2021

@mary612 Mary, I really feel for you and your husband and all of these difficult decisions!!...

https://connect.mayoclinic.org/comment/1042733/

Discussion: Husband with AML facing a stem cell transplant

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 30, 2024

Do not worry Jenrico. Your symptoms are common for AL but will improve the more you...

https://connect.mayoclinic.org/comment/88307/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Mar 15, 2016

I am 68 years old, I have MGUS and arrhythmogenic cardiomyopathy. Recent immunology shows my lambda...

https://connect.mayoclinic.org/comment/1370729/

Discussion: Is it normal for free light chains to fluctuate?

Support Group: Blood Cancers & Disorders

Posted: Aug 14 4:05pm

Lori, Yes I appreciate what you are saying. Sometimes it is best to leave well enough...

https://connect.mayoclinic.org/comment/775155/

Discussion: Non Hodgkin's Lymphoma- Watch & Wait Approach

Support Group: Blood Cancers & Disorders

Posted: Nov 19, 2022

My understanding of Waldenstroms and amyloidosis is that it is a genetic disease that strikes primarily...

https://connect.mayoclinic.org/comment/113909/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Sep 22, 2016

My husband has MGUS and amyloidosis and received treatments and then a stem cell transplant in...

https://connect.mayoclinic.org/comment/847175/

Discussion: Has anyone experienced or is familiar with a high PTHrp?

Support Group: Blood Cancers & Disorders

Posted: Apr 22, 2023

Lori, Thank you for the article, and for your inquiry also I am still uncertain as...

https://connect.mayoclinic.org/comment/775063/

Discussion: Non Hodgkin's Lymphoma- Watch & Wait Approach

Support Group: Blood Cancers & Disorders

Posted: Nov 19, 2022

Actually it’s not going too bad. The chemo is shots. I have completely 2 rounds/ am...

https://connect.mayoclinic.org/comment/1082496/

Discussion: Positive test results for amyloids

Support Group: Blood Cancers & Disorders

Posted: Jun 7, 2024

S. I suggest you chat with your doctor. I found these two references that you may...

https://connect.mayoclinic.org/comment/889926/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2023

I was diagnosed in April 2016. I had been losing weight and anemic but my GP...

https://connect.mayoclinic.org/comment/195555/

Discussion: Darzalex Treatment

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2019

CRISPR doesn't exist yet for treating MGUS/SMM/MM which can be associated with a number of genetic...

https://connect.mayoclinic.org/comment/1163333/

Discussion: Can MGUS be cured by CRISPR?

Support Group: Blood Cancers & Disorders

Posted: Oct 27, 2024

@evoxmas I just found out about this forum yesterday, so I am sure a lot has...

https://connect.mayoclinic.org/comment/1041695/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Mar 28, 2024

I was diagnosed with system amyloidosis AL in March @ the Mayo Clinic in Rochester Minnesota....

https://connect.mayoclinic.org/comment/1069538/

Discussion: Recently diagnosed with AL Amyloidosis: Any advice?

Support Group: Blood Cancers & Disorders

Posted: May 17, 2024

It is definitely more likely that one will die with MGUS as a benign and asymptomatic...

https://connect.mayoclinic.org/comment/1112835/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 27, 2024

Thank you I know nothing about this disease I have been battling HCM since 2013 since...

https://connect.mayoclinic.org/comment/886104/

Discussion: Kappa light chain is elevated: Anyone dealing with this?

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2023

What is the process for wanting to be evaluated at the Mayo Clinic? How do you...

https://connect.mayoclinic.org/comment/645619/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Oct 16, 2021

Connections between MGUS and Peripheral Neuropathy: Direct Antibody Activity**: The monoclonal protein (M protein) produced in...

https://connect.mayoclinic.org/comment/1163047/

Discussion: Can MGUS be cured by CRISPR?

Support Group: Blood Cancers & Disorders

Posted: Oct 26, 2024

Blood Cancers & Disorders Support Group