Blood Cancers & Disorders Support Group

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Comments (307)

@mgm4kc, I'm tagging a few other members like @cemeterygal01 @mkempson42 @naiviv @tlcox49, who also have experience...

https://connect.mayoclinic.org/comment/1107770/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jul 18, 2024

I would like to view the video but receive a message that it is not available....

https://connect.mayoclinic.org/comment/1337037/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Jun 28, 2025

This might be a little different than yours, but I had my diagnosis for amyloidosis on...

https://connect.mayoclinic.org/comment/1079509/

Discussion: How long from diagnosis of AML typically comes the BMT?

Support Group: Blood Cancers & Disorders

Posted: Jun 2, 2024

I am so sorry he had to go through all that! I haven’t heard of Amyloidosis....

https://connect.mayoclinic.org/comment/906869/

Discussion: Looking for advice: Could this be MGUS, because of low m-spike?

Support Group: Blood Cancers & Disorders

Posted: Aug 3, 2023

Good morning Free spirit. I was diagnosed IgM Kappa in 2012. I was stable until 2023...

https://connect.mayoclinic.org/comment/1353132/

Discussion: Long term MGUS: What changes have you had? Do's and Don'ts?

Support Group: Blood Cancers & Disorders

Posted: Jul 21, 2025

Thank you so much for sending all of this information I will read and look at...

https://connect.mayoclinic.org/comment/715963/

Discussion: Low T-Cell - Bone Marrow Biopsy

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2022

I researched and found out the purpose. My hemo/onc had my gastroenterologist do a biopsy for...

https://connect.mayoclinic.org/comment/754121/

Discussion: What’s the science on diet and MGUS/SMM?

Support Group: Blood Cancers & Disorders

Posted: Sep 26, 2022

I'm so sorry you're having to deal with all of this, it is indeed a big...

https://connect.mayoclinic.org/comment/1216639/

Discussion: Lymphocytes on CBC

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2025

I had neuropathy in my left foot/toes and terrible nerve pain. The mm and amyloidosis were...

https://connect.mayoclinic.org/comment/104687/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2016

@crissy2450 of the eight siblings of my family, and a dozen or so of their grown...

https://connect.mayoclinic.org/comment/217290/

Discussion: Chemo side effects

Support Group: Blood Cancers & Disorders

Posted: Sep 18, 2018

I understand every feeling you're having and relate to the fact hat it's difficult to find...

https://connect.mayoclinic.org/comment/104705/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Aug 31, 2017

Sounds very frustrating for you. Seems every institution including Mayo has a “watch and wait” protocol...

https://connect.mayoclinic.org/comment/883525/

Discussion: Anyone else have Symptomatic MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2023

@barbarian1 That is the purpose of a baseline biopsy, to show the initial health of your...

https://connect.mayoclinic.org/comment/1433000/

Discussion: How high should my Kappa light chain continue to rise before I worry.?

Support Group: Blood Cancers & Disorders

Posted: Nov 7, 2025

@cousinvinney My Kappa FLC bloodwork level of 5 was ten years ago. IF you have MGUS,...

https://connect.mayoclinic.org/comment/1490467/

Discussion: New to kappa light chain testing

Support Group: Blood Cancers & Disorders

Posted: Jan 25 3:28pm

Hi @jebcyn. That’s a really inspirational story! It’s amazing how just the change in chemo regimens...

https://connect.mayoclinic.org/comment/782599/

Discussion: Recently diagnosed with AL Amyloidosis: Any advice?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2022

Peggyjean- Thank you so much for sharing your hard ordeals with me. All the information you...

https://connect.mayoclinic.org/comment/1120375/

Discussion: Diagnosing amyloidosis: Why monitor (PYP scan) instead of biopsy?

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2024

I had a terribly painful experience with the first bone marrow biopsy, and my doctor said...

https://connect.mayoclinic.org/comment/1332963/

Discussion: Very anxious about bone marrow biopsy

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2025

@pro Welcome to Mayo Connect! We're glad you found us. We are patients/caregivers/family members here, offering...

https://connect.mayoclinic.org/comment/81213/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2020

Hello @bob100, I’m truly sorry to hear about your wife’s diagnosis, but I also quickly want...

https://connect.mayoclinic.org/comment/88315/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2019

I was quite healthy until I suddenly started getting short of breath when I exercised 12...

https://connect.mayoclinic.org/comment/1062971/

Discussion: Amyloidosis: What kind of specialist to see for a second opinion?

Support Group: Blood Cancers & Disorders

Posted: May 6, 2024

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