Blood Cancers & Disorders Support Group

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Comments (867)

Thank you for sharing your experience so far. I was diagnosed with multiple myeloma last month...

https://connect.mayoclinic.org/comment/1460923/

Discussion: A Summary of My Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2025

My hubby has MGUS, a potential precursor to Multiple Myeloma, and has been having nosebleeds --...

https://connect.mayoclinic.org/comment/1178483/

Discussion: How to stop or prevent frequent nosebleeds with Multiple Myeloma?

Support Group: Blood Cancers & Disorders

Posted: Nov 22, 2024

Oh gosh, Richard, I’m so glad you kept pushing for answers with the changes in your...

https://connect.mayoclinic.org/comment/1164527/

Discussion: Is A Repeat Bone Marrow Biopsy Called for

Support Group: Blood Cancers & Disorders

Posted: Oct 29, 2024

@jadams4197 It is never too late to treat myeloma, there are a ton of tools to...

https://connect.mayoclinic.org/comment/1408042/

Discussion: A Summary of My Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: Oct 4, 2025

I fully understand. You might want to check Margaret’s Corner blog. https://margaret.healthblogs.org/life-with-myeloma/what-is-multiple-myeloma/mgus-to-mm-progression-sox2/does-mgus-always-precede-mm/mgus-for-more-than-30-years/

https://connect.mayoclinic.org/comment/701579/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Apr 23, 2022

@jadams4197 Welcome to Mayo Clinic Connect! @auntieoakley is right about there being so many things to...

https://connect.mayoclinic.org/comment/1408228/

Discussion: A Summary of My Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: Oct 4, 2025

I am learning many new things, following niece diagnosis with multiple myeloma, me having MGUS and...

https://connect.mayoclinic.org/comment/1382695/

Discussion: Essential thrombocythemia (ET): When to start hydroxyurea (HU)?

Support Group: Blood Cancers & Disorders

Posted: Aug 30, 2025

Hi Debra @oldladydebra1 , welcome to the forum. There are many people living with MGUS here...

https://connect.mayoclinic.org/comment/992118/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2024

@genedoms I would add a couple that are specific to MGUS. Remember, MGUS is not cancer....

https://connect.mayoclinic.org/comment/1309315/

Discussion: Diagnosed with MGUS. What questions should I ask the hematologist?

Support Group: Blood Cancers & Disorders

Posted: May 21, 2025

Hi Ginger, Unfortunately the various clinical tests eventually confirmed the criteria for multiple myeloma, not one...

https://connect.mayoclinic.org/comment/1017645/

Discussion: Has anyone been diagnosed with both AML and Multiple Myeloma?

Support Group: Blood Cancers & Disorders

Posted: Feb 17, 2024

Seeing hematologist in October 2025 with 2nd blood test since diagnosis for Smoldering Multiple Myeloma (6...

https://connect.mayoclinic.org/comment/1301671/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: May 11, 2025

Hi @leah107 I am glad to meet you. First question that came to mind, is if...

https://connect.mayoclinic.org/comment/697712/

Discussion: Pain after a bone marrow biopsy: Is this normal?

Support Group: Cancer: Managing Symptoms

Posted: Apr 10, 2022

Hello @auntieoakley, I'd like to add my welcome to @gingerw's. I also second her comment that...

https://connect.mayoclinic.org/comment/109717/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Jun 10, 2019

You are young for the diagnosis. I was 55 when diagnosed with IgA. I am being...

https://connect.mayoclinic.org/comment/1164614/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 29, 2024

Hello, Rosemary 73, I am so sorry for the loss of your son. All kindness to...

https://connect.mayoclinic.org/comment/1062432/

Discussion: New to kappa light chain testing

Support Group: Blood Cancers & Disorders

Posted: May 5, 2024

@sandramgus Well, one of the things that my hematologist/oncologist says to me every time I see...

https://connect.mayoclinic.org/comment/1114061/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Jul 29, 2024

I was diagnosed with stage 3 myeloma and had high paraprotein and much bone involvement. That...

https://connect.mayoclinic.org/comment/641078/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2021

@rhunt47, I'm tagging a few members who have experience with cardiac amyloidosis like @mookiencoco @judithh580 @naiviv...

https://connect.mayoclinic.org/comment/1478473/

Discussion: Cardiac Amyloidosis Anyone else diagnosed with this disease?

Support Group: Heart & Blood Health

Posted: Jan 9 8:22pm

My red blood cell count is 3.75. I have MGUS- precursor multiple myeloma. I do not...

https://connect.mayoclinic.org/comment/74539/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Jun 25, 2012

When filling out a health questionnaire, you will now need to check Yes. Multiple myeloma is...

https://connect.mayoclinic.org/comment/746801/

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2022