Blood Cancers & Disorders Support Group | Page 10

This month marks 8 years since I was diagnosed with multiple myeloma. I have been on...

https://connect.mayoclinic.org/comment/290384/

Discussion: Is anyone here taking Revlimid? If so please share with me

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2020

@hsminc Interesting. I had a titanium nickel alloy device placed in my heart 21 years ago....

https://connect.mayoclinic.org/comment/1462607/

Discussion: Smoldering Multiple Myeloma (SMM). Questions and Answers

Support Group: Blood Cancers & Disorders

Posted: Dec 17, 2025

Good morning, I have been diagnosed with Multiple Myeloma and had me first targeted therapy (4...

https://connect.mayoclinic.org/comment/827507/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2023

Hi @jenga543, welcome to Connect. Thank you for taking some time to share some information about...

https://connect.mayoclinic.org/comment/172449/

Discussion: Waiting on Multiple Myeloma testing

Support Group: Blood Cancers & Disorders

Posted: Oct 23, 2017

@angk welcome to the forum. MGUS sometimes progresses to Smoldering Multiple Myeloma. I believe that to...

https://connect.mayoclinic.org/comment/958940/

Discussion: MGUS and understanding results

Support Group: Blood Cancers & Disorders

Posted: Nov 4, 2023

@tdlee64 MGUS only has a 1% per year of progressing. I have smoldering multiple myeloma &...

https://connect.mayoclinic.org/comment/1561988/

Discussion: Smoldering Multiple Myeloma SMM Bloodwork numbers

Support Group: Blood Cancers & Disorders

Posted: Apr 28 3:57pm

Change doctors immediately. Your current doctor doesn't seem to know anything about Multiple Myeloma and the...

https://connect.mayoclinic.org/comment/1438395/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Nov 14, 2025

Excellent personal guidelines to follow when evaluating medical information, especially online, and before posting information online...

https://connect.mayoclinic.org/comment/753763/

Discussion: What’s the science on diet and MGUS/SMM?

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2022

I know renal failure is one of the crab criteria that is considered multiple myeloma despite...

https://connect.mayoclinic.org/comment/1486376/

Discussion: Kappa/Lambda now 75, PET scan then likely I-VRD for 4 mo

Support Group: Blood Cancers & Disorders

Posted: Jan 19 9:56am

Broken bones makes me wonder about progression to multiple myeloma as that is often what happens....

https://connect.mayoclinic.org/comment/1353861/

Discussion: Mgus and broken bones?

Support Group: Blood Cancers & Disorders

Posted: Jul 22, 2025

@ericgray, you're right that POEMS often is misdiagnosed or delayed in diagnosis because of a wide-range...

https://connect.mayoclinic.org/comment/1542704/

Discussion: Husband with POEMS Syndrome

Support Group: Caregivers

Posted: Apr 4 12:38pm

Hi @jhdez79 I don’t see any options for Spanish closed caption in the caregiver guide videos...

https://connect.mayoclinic.org/comment/1609241/

Discussion: Any advice or recommendations from patients or caregivers

Support Group: Blood Cancers & Disorders

Posted: 5 days ago

@jadams4197 It is never too late to treat myeloma, there are a ton of tools to...

https://connect.mayoclinic.org/comment/1408042/

Discussion: A Summary of My Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: Oct 4, 2025

Oh gosh, Richard, I’m so glad you kept pushing for answers with the changes in your...

https://connect.mayoclinic.org/comment/1164527/

Discussion: Is A Repeat Bone Marrow Biopsy Called for

Support Group: Blood Cancers & Disorders

Posted: Oct 29, 2024

@rlhare An MRI Picks up almost everything in the body. Bone, muscles…organs. The only medical professional...

https://connect.mayoclinic.org/comment/1059906/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Apr 30, 2024

I am interested in what everyone's numbers were at time of diagnosis of Smoldering Multiple Myeloma...

https://connect.mayoclinic.org/comment/1547838/

Discussion: Smoldering Multiple Myeloma (SMM). Questions and Answers

Support Group: Blood Cancers & Disorders

Posted: Apr 11 10:00am

My hubby has MGUS, a potential precursor to Multiple Myeloma, and has been having nosebleeds --...

https://connect.mayoclinic.org/comment/1178483/

Discussion: How to stop or prevent frequent nosebleeds with Multiple Myeloma?

Support Group: Blood Cancers & Disorders

Posted: Nov 22, 2024

I am learning many new things, following niece diagnosis with multiple myeloma, me having MGUS and...

https://connect.mayoclinic.org/comment/1382695/

Discussion: Essential thrombocythemia (ET): When to start hydroxyurea (HU)?

Support Group: Blood Cancers & Disorders

Posted: Aug 30, 2025

I fully understand. You might want to check Margaret’s Corner blog. https://margaret.healthblogs.org/life-with-myeloma/what-is-multiple-myeloma/mgus-to-mm-progression-sox2/does-mgus-always-precede-mm/mgus-for-more-than-30-years/

https://connect.mayoclinic.org/comment/701579/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Apr 23, 2022

@dmdinapoli81, you're quite right that the title of this discussion is "Smoldering Multiple Myeloma (SMM). Questions...

https://connect.mayoclinic.org/comment/1482939/

Discussion: Smoldering Multiple Myeloma (SMM). Questions and Answers

Support Group: Blood Cancers & Disorders

Posted: Jan 15 10:40am