987 total results
Comments (924)
I was also recently diagnosed (JAK2 ET) after having a routine blood test. I am in...
https://connect.mayoclinic.org/comment/1140842/
Thanks pattycake11 Yes, all other blood work and scans ultra sounds didn’t show anything except the...
https://connect.mayoclinic.org/comment/1066227/
Hi there, I was diagnosed with CEL in December 2023 and will be having a stem...
https://connect.mayoclinic.org/comment/1061468/
You have elevate number of thrombocytes, also known as platelets, due to a cancer gene mutation...
https://connect.mayoclinic.org/comment/980340/
May I ask... what was everyone's Erythropoietin results? Mine was 5.. it's not "low" but more...
https://connect.mayoclinic.org/comment/842397/
Blurred vision is not uncommon with Polycythemia Vera. Not sure if it’s from too high red...
https://connect.mayoclinic.org/comment/1092197/
Hi, Eileen, since I, too, was diagnosed this summer with ET JAK2, I would be interested...
https://connect.mayoclinic.org/comment/772655/
I was diagnosed with ET jak2 mutation a yr ago june..My plts range between 450 and...
https://connect.mayoclinic.org/comment/1116872/
Hi @arti4 I read over another discussion you started regarding Hydroxyurea for ET, and see that...
https://connect.mayoclinic.org/comment/728880/
Hi Ingrid077, I hope you get definite answers soon. I was diagnosed in June 2022 with...
https://connect.mayoclinic.org/comment/792008/
I have MDS/MPN overlap with Thrombocytosis. Tested positive for the JAK2 and SRSF2 gene mutations. For...
https://connect.mayoclinic.org/comment/256904/
Yes my husband had the JAK2 test after his platelets were in the 800's. And JAK2...
https://connect.mayoclinic.org/comment/1009781/
Everyone, I learned years ago that platelet level was not the most important factor in deciding...
https://connect.mayoclinic.org/comment/846204/
Hello @wa34937, welcome to Connect. You may notice I moved your discussion and combined it with...
https://connect.mayoclinic.org/comment/194356/
I had a similar situation caused by taking prescribed testosterone. I am JAK2 negative. High hemoglobin...
https://connect.mayoclinic.org/comment/889816/
I am in the same situation. I have all the symptoms but am JAK2 negative. It's...
https://connect.mayoclinic.org/comment/886516/
I have had PV with JAK2 for over 4 years. Started with phlebotomies and Hydrea, now...
https://connect.mayoclinic.org/comment/783004/
Sounds like Essential Thrombocythemia (ET) which is one of the MPN diseases. I was originally diagnosed...
https://connect.mayoclinic.org/comment/328553/
In response to @Lindaw123 - I would think Vit D3 would only have an adverse reaction...
https://connect.mayoclinic.org/comment/800883/
So glad the HU worked fast for you at that low dose! Re the genetic tests,...
https://connect.mayoclinic.org/comment/1002803/
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