Blood Cancers & Disorders Support Group | Page 10

also, to be clear.. I haven't been properly "diagnosed" yet I don't think... just my hematologist's...

https://connect.mayoclinic.org/comment/840529/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2023

@sonieaml I was diagnosed with MDS/MPN/sMF in 2017. The molecular panel indicated I have the JAK2,...

https://connect.mayoclinic.org/comment/1551139/

Discussion: Just got my blood test results today. I have MDS

Support Group: Blood Cancers & Disorders

Posted: Apr 15 10:51am

with pv NO when they take your blood it cannot be donated. I asked the oncologist...

https://connect.mayoclinic.org/comment/737001/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2022

Am I understanding right that your hemoglobin and hemocrit are high, you have PV symptoms, you're...

https://connect.mayoclinic.org/comment/888838/

Discussion: PV positive & Jak2 neg - good thing??

Support Group: Blood Cancers & Disorders

Posted: Jul 2, 2023

Good morning, @onthejoedock. When there is a mutation with the JAK2 gene, it can interfere with...

https://connect.mayoclinic.org/comment/1009921/

Discussion: How bad is a diagnosis of Polycythemia Vera? What to expect?

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2024

On your blood chemistry report are your platelets elevated, have they been rising over a few...

https://connect.mayoclinic.org/comment/1507287/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Feb 16 11:39am

@chorusgirl500 My Jak2 was positive and my doctor and I decided together that the bone biopsy...

https://connect.mayoclinic.org/comment/1466393/

Discussion: Diagnosed polycythemia vera at 26: Any young PV patients out there?

Support Group: Blood Cancers & Disorders

Posted: Dec 23, 2025

I may be oversimplifying it, but after being diagnosed with ET my doctor wanted to check...

https://connect.mayoclinic.org/comment/1132796/

Discussion: Bone Marrow Aspiration - Long Term Pain Expecations

Support Group: Blood Cancers & Disorders

Posted: Aug 29, 2024

Hi, Just diagnosed with Polycythemia Vera on Friday. Negative JAK2 test, but other genetic changes noted...

https://connect.mayoclinic.org/comment/231783/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2019

I, too, have a JAK2 mutation with a low hemoglobin, slight increase in WBCs and elevated...

https://connect.mayoclinic.org/comment/878925/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 15, 2023

Interesting that Dr did a DNA analysis. I had a bunch of blood tests and a...

https://connect.mayoclinic.org/comment/812995/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 17, 2023

I have ET with Jak2. I've experienced bone pain 3 years before ET diagnosis. I finally...

https://connect.mayoclinic.org/comment/1541144/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Apr 2 10:52am

I believe my oncologist, a melanoma specialist, was only concerned with the melanoma and did not...

https://connect.mayoclinic.org/comment/646957/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Oct 21, 2021

Question, does anyone with essential thrombocythemia JAK2 taking 500 mg of Hydroxurea twice a day have...

https://connect.mayoclinic.org/comment/1203402/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Jan 3, 2025

Hello @janemichele, welcome to Connect. It seems as though you have already done your research, but...

https://connect.mayoclinic.org/comment/284520/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Nov 27, 2019

I wrote a correction today regarding my lab results that I misunderstood . I incorrectly wrote...

https://connect.mayoclinic.org/comment/1281213/

Discussion: Essential thrombocythemia (ET): When to start hydroxyurea (HU)?

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2025

Hi, I have ET/JAK2 & Dr wants me to start Hydroxyurea 1 per day. I’m concerned...

https://connect.mayoclinic.org/comment/789840/

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Dec 28, 2022

I'm taking 1500mg of HU daily along and 325mg aspirin. I'm 74, have ET Jak2. My...

https://connect.mayoclinic.org/comment/861686/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: May 18, 2023

Hello and I am new to this. My brother just got his JAK2 V617F back and...

https://connect.mayoclinic.org/comment/834314/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2023

Hi @gigi05 You’re getting some great question suggestions from our helpful members! I can toss in...

https://connect.mayoclinic.org/comment/1272546/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2025