Blood Cancers & Disorders: Discussions

Hi @mariko572, you may wish to connect with other members living with Waldenstrom’s in this discussions:...

https://connect.mayoclinic.org/comment/790047/

Support Group: Blood Cancers & Disorders

Posted: Dec 29, 2022

Welcome @aann, I moved your message about starting chemotherapy treatment for Waldenstrom macroglobulinemia to this existing...

https://connect.mayoclinic.org/comment/816110/

Discussion: Waldenstrom macroglobulinemia: What can I expect with chemo?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2023

Hi @psue4, welcome. I moved your post to this existing discussion: - Waldenstrom Macroglobulinemia with MYD88-wild...

https://connect.mayoclinic.org/comment/851526/

Discussion: Waldenstrom Macroglobulinemia with MYD88-wild type

Support Group: Blood Cancers & Disorders

Posted: Apr 29, 2023

Hi @svend, I see you are inquiring about Waldenstrom's and treatment. You will notice that I...

https://connect.mayoclinic.org/comment/284540/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Feb 27, 2021

Welcome JProctor. How long ago was your husband diagnosed with Waldenstrom macroglobulinemia (WM)? What treatment has...

https://connect.mayoclinic.org/comment/624191/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Aug 7, 2021

@emma405, I moved your question to this existing discussion: - With Waldenstrom, what side effects did...

https://connect.mayoclinic.org/comment/941751/

Discussion: With Waldenstrom, what side effects did you have with ibrutinib?

Support Group: Blood Cancers & Disorders

Posted: Oct 4, 2023

Welcome, @cpu. I moved your question about Waldenstrom macroglobulinemia (WM) to this existing discussion: - Waldenstrom...

https://connect.mayoclinic.org/comment/1070292/

Discussion: Waldenstrom macroglobulinemia (WM): Deciding treatment options

Support Group: Blood Cancers & Disorders

Posted: May 18, 2024

Welcome to Connect, @weissmntc. You’ve just been handed a new diagnosis of Waldenstrom Macroglobulinemia. I’m sure...

https://connect.mayoclinic.org/comment/981542/

Discussion: Waldenstrom macroglobulinemia (WM): Deciding treatment options

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2023

Has anyone been diagnosed with Myd88/ Waldenstrom Macroglobulinemia? (Sp x) If so, could you offer how...

https://connect.mayoclinic.org/comment/850802/

Discussion: Waldenstrom Macroglobulinemia with MYD88-wild type

Support Group: Blood Cancers & Disorders

Posted: Apr 28, 2023

I was recently diagnosed with Waldenstrom Macroglobulinemia. My hematologist/oncologist will see me every 6 months for...

https://connect.mayoclinic.org/comment/70606/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Sep 26, 2017

I, too, was diagnosed with Waldenstrom Macroglobulinemia in June, 2015. It's scary. It never goes away....

https://connect.mayoclinic.org/comment/169959/

Discussion: I have been recently diagnosed with Waldenstrom Macroglobulinamia

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2017

@puffwithfluff, I'm glad you've connected with @ejrquast. I hope the two of you will continue to...

https://connect.mayoclinic.org/comment/663405/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 17, 2021

Hi @brewmaster, welcome to Connect. I moved your message to this existing discussion about Waldenstrom macroglobulinemia...

https://connect.mayoclinic.org/comment/256249/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Apr 27, 2019

Welcome @sagenest. It sounds like your diagnosis of Waldenstrom's is being managed by active surveillance or...

https://connect.mayoclinic.org/comment/963733/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2023

Good morning, @pices and welcome to Mayo Clinic Connect. We have some current members in our...

https://connect.mayoclinic.org/comment/722050/

Discussion: Waldenstrom Macroglobulinemia with MYD88-wild type

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2022

Hi @mrperezy50 Welcome to Mayo Clinic Connect. It’s easy to feel alone when you’ve been diagnosed...

https://connect.mayoclinic.org/comment/787456/

Discussion: Waldenstrom macroglobulinemia: What can I expect with chemo?

Support Group: Blood Cancers & Disorders

Posted: Dec 21, 2022

@sstouten, while we wait for other members to join this discussion, I'd encourage you to view...

https://connect.mayoclinic.org/comment/169958/

Discussion: I have been recently diagnosed with Waldenstrom Macroglobulinamia

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2017

Welcome, @djf31. It is all too common to dismiss symptoms as a sign of getting older...

https://connect.mayoclinic.org/comment/982760/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2023

My husband has recently been diagnosed with Waldenstrom macroglobulinemia. He has a hematologist/oncologist who currently has...

https://connect.mayoclinic.org/comment/1042337/

Discussion: Second Opinions: How do I get one at Mayo Clinic out-of state?

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2024

Hi @pysullivan, welcome to Connect. Here a few previous discussions in the community about Waldenstrom macroglobulinemia...

https://connect.mayoclinic.org/comment/256246/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Mar 24, 2019

Blood Cancers & Disorders Support Group