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Autoimmune Diseases Support Group

Public Support Group
300 total results
Discussion
If you suspect Lupus or MCTD, be sure
And see an ear nose and throat doctor. My ENT is the one that discovered my lupus. I was having trouble breathing while laying down....
Support Group: Autoimmune Diseases
Last active: Jul 11, 2024
Discussion
Carob Seed flour question related to MCTD
My daughter suffers from MCTD and I am looking at getting Organic unsweetened Almond milk for her but one of the products has Carob seed...
Support Group: Autoimmune Diseases
Last active: Nov 29, 2024
Discussion
MCTD, Fibromyalgia, and Hot Weather - Oh My!
Hello all,I am writing at the end of both summer and my wits! I have been diagnosed with MCTD, fibro, celiac, reynauds, neuropathy.... the list...
Support Group: Autoimmune Diseases
Last active: Sep 18, 2023
Discussion
MCTD: Preparing for evaluation appointment at Mayo Clinic
Recently diagnosed with MCTD (Lupus & PA/OA, tested positive for RA, but no symptoms yet) Prescribed Plaquenil & just started Tremfya (1st injection was last...
Support Group: Autoimmune Diseases
Last active: Jan 17, 2024
Discussion
MCTD- post recent diagnosis. How to manage with employer?
I was recently diagnosed with MCTD (Sept) after having numerous tests done and have seen rheumatologist twice. This last time he increased my dose of...
Support Group: Autoimmune Diseases
Last active: Feb 19 1:02pm
Discussion
Process for getting Mixed Connective Tissue Disease (MCTD) diagnosis
Hello, I just found this group online and I’m hoping there’s someone who can give me some encouragement. I have lived with chronic pain and...
Support Group: Autoimmune Diseases
Last active: May 30, 2023
Discussion
Could High Anti-U1 RNP with Negative ANA be MCTD?
I've had years of stiffness, persistent back pain (no slipped discs, etc., ruled out with imaging), and fatigue. It was so severe in 2018 that...
Support Group: Autoimmune Diseases
Last active: Mar 14 7:16am
Discussion
MCTD flares and hip/thigh pain that is limiting mobility and activity.
Has anyone with MCTD experienced a flare up that has lasted for months? My hips and thighs get so tight I can barely walk, stairs...
Support Group: Autoimmune Diseases
Last active: Apr 9, 2024
Discussion
Anyone get premature ventricular contractions during MCTD flares,
My flares start as more fatigue and lightheadedness. I can also then get premature ventricular contractions (isolated, 2 per minute.). Anyone else get this, and...
Support Group: Autoimmune Diseases
Last active: Jan 4 11:27pm
Discussion
Diagnosed with MCTD recently. RNP 1.5, Reynauds and swollen fingers.
Hi, I am new to this group and in general to support groups. This is my first. I am a 37 old female. All was...
Support Group: Autoimmune Diseases
Last active: Apr 24, 2023