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Public Support Group 342 total results
Discussions (35)
MCTD flares and hip/thigh pain that is limiting mobility and activity.
Has anyone with MCTD experienced a flare up that has lasted for months? My hips and thighs get so tight I can barely walk, stairs...
Anyone get premature ventricular contractions during MCTD flares,
My flares start as more fatigue and lightheadedness. I can also then get premature ventricular contractions (isolated, 2 per minute.). Anyone else get this, and...
This is my first year with mctd what does everyone do at thanksgiving
Thanksgiving and food besides the turkey without gravy what else do you eat? Or you just chuck it for the day?
Diagnosed with MCTD recently. RNP 1.5, Reynauds and swollen fingers.
Hi, I am new to this group and in general to support groups. This is my first. I am a 37 old female. All was...
Does MCTD (mixed connective tissue disease) ever go into remission?
I was diagnosed a year ago with mctd. I am a very active busy person. But have lost muscle tone and strength. Which makes me...
Does anyone else have MCTD with systemic sceladerma? Anyone else?
Anyone else with MCTD overlap of systemic sceladerma? I know it’s serious and have lots of questions about it I ask my Dr and she’s...
Anyone become ill with a cold or flu when you already have MCTD?
Has anyone become ill with a cold and/or the flu when you already have MCTD? What were the results? Many thanks. I have MCTD and...
How do you cope with Mixed Connective Tissue Disease (MCTD)?
Would someone else please join this discussion and let me know how you cope with Mixed Connective Tissue Disease? How can you explain it to...
Any luck with gaba pentin for MCTD and all the attendant auto immune d
I was on gaba pentin after my teeth and upper palate started to hurt (after TMS magnetic therapy) . The gaba seemed to help ....
Autoimmune disease and gross hematuria?
hello! I have been diagnosed with PBC, IBM and MCTD. Rheumatologist also suspects EDS. Recently I started experiencing gross hematuria. Urine culture showed no infection....
Mixed Connective Tissue Disease: Labs show spike Creatine Kinase (CK)?
Hi I have MCTD with systemic scelederma. My labs show a spike in CK. Anyone else and does any one else know what this means?...
Looking for the best lifestyle changes to reduce symptoms
https://connect.mayoclinic.org/discussion/looking-for-the-best-lifestyle-changes-to-reduce-symptoms/
Hi, everyone! My name is Secoyia and I am a 27 year old female. I was diagnosed 2 years ago with Fibromyalgia and MCTD after...
Conflicting interpretations of tests: What next?
I am so bewildered. My primary doctor two weeks ago found this test abnormal . I showed it to my regular RA DOCTOR AND SHE...
Does a positive U1 RNP mean I have an autoimmune disease.
I recently went to the doctor with a litany of symptoms including fatigue, muscle weakness, brain fog, memory issues, thinning hair etc. Assuming it was...
Asthma, interstitial lung disease and mixed connective tissue disease
I have been in the hospital over 8 times for the above issues in the last 2 years. The hospital has done x-rays, CT and...
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