Autoimmune Diseases Support Group

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Comments (471)

@yubigood I wish you the best as you taper off. It can be really hard. You...

https://connect.mayoclinic.org/comment/1303742/

Discussion: Cardiac Sarcoidosis (Autoimmune Disease) and the use of Prednisone.

Support Group: Autoimmune Diseases

Posted: May 14, 2025

Hello. My mom is currently in the hospital, not Mayo; although we would love her to...

https://connect.mayoclinic.org/comment/929070/

Discussion: Sjögren’s Syndrome: how do you manage the symptoms?

Support Group: Autoimmune Diseases

Posted: Sep 12, 2023

Hello @janie66, You will notice that we merged your discussion with another discussion you started in...

https://connect.mayoclinic.org/comment/1364755/

Discussion: Peripheral Neuropathy caused by Lupus - Anyone?

Support Group: Autoimmune Diseases

Posted: Aug 6, 2025

I have had a speckled ANA positive A speckled ANA pattern indicates the presence of antibodies...

https://connect.mayoclinic.org/comment/1244932/

Discussion: Persistent Positive ANA, Now DFS70 – Does This Indicate Recovery?

Support Group: Autoimmune Diseases

Posted: Feb 24, 2025

Hi @bia18 and welcome to Connect. You may have noticed I moved your post to this...

https://connect.mayoclinic.org/comment/145415/

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: May 12, 2019

As I read all of this, I'm realizing I have this too. I'm almost 70. There...

https://connect.mayoclinic.org/comment/974867/

Discussion: Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

Support Group: Autoimmune Diseases

Posted: Dec 4, 2023

I had the exact same experience with Paxlovid! I have lupus, and had regular hip pain....

https://connect.mayoclinic.org/comment/1151326/

Discussion: Paxlovid and Autoimmune Disease

Support Group: Autoimmune Diseases

Posted: Oct 3, 2024

Yes, I do have tinnitus. A low roaring - like the engine of an airplane. I...

https://connect.mayoclinic.org/comment/1067581/

Discussion: What can I expect with Antiphospholipid Syndrome (APS)?

Support Group: Autoimmune Diseases

Posted: May 14, 2024

Welcome @diamondletty. It just pulls the rug out from under your feet when a loved one...

https://connect.mayoclinic.org/comment/815200/

Discussion: Husband diagnosed with RA

Support Group: Autoimmune Diseases

Posted: Feb 21, 2023

I have this. From https://www.hss.edu/conditions_undifferentiated-connective-tissue-disease-overview.asp#what Definition: used to describe a condition in people who have symptoms...

https://connect.mayoclinic.org/comment/789144/

Discussion: Undifferentiated Connective Tissue Disease

Support Group: Autoimmune Diseases

Posted: Dec 26, 2022

I’m really sorry you’re suffering like this. I have osteoarthritis and rheumatoid arthritis, a knee and...

https://connect.mayoclinic.org/comment/675059/

Discussion: Autoimmune diagnosing problem

Support Group: Autoimmune Diseases

Posted: Jan 26, 2022

Have you and your care team found that periodic Vectra® panels (12 serum proteins) is useful...

https://connect.mayoclinic.org/comment/1331252/

Discussion: antibody testing laboratory

Support Group: Autoimmune Diseases

Posted: Jun 20, 2025

I know exactly what it is to live with Rheumatoid Arthritis. I have had it since...

https://connect.mayoclinic.org/comment/145638/

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Aug 11, 2020

Disease modifying drugs like plaquenil can take months to provide any relief. As far as what...

https://connect.mayoclinic.org/comment/108488/

Discussion: Autoimmune diagnosing problem

Support Group: Autoimmune Diseases

Posted: Jul 20, 2016

@judyresnick, I moved your question to this existing discussion of the same title: - Anyone else...

https://connect.mayoclinic.org/comment/1450014/

Discussion: Anyone else have multiple autoimmune diseases?

Support Group: Autoimmune Diseases

Posted: Nov 30, 2025

Hi. It depends on the severity of your lupus. Like someone mentioned, if it starts to...

https://connect.mayoclinic.org/comment/1022268/

Discussion: Living with Systemic Lupus: Can I live a normal life?

Support Group: Autoimmune Diseases

Posted: Feb 25, 2024

I am 55 year old female diagnosed with CIDP 3 years ago. I am diabetic, have...

https://connect.mayoclinic.org/comment/1541632/

Discussion: CIDP Diagnosis

Support Group: Autoimmune Diseases

Posted: Apr 3 5:19am

Help...need some suggestions for coping with an RA flair! So I have made significant changes in...

https://connect.mayoclinic.org/comment/864287/

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: May 22, 2023

Just my experience and my personal opinion. Many of us have trouble getting diagnosed, I think...

https://connect.mayoclinic.org/comment/1200697/

Discussion: Nighttime Dry Mouth

Support Group: Autoimmune Diseases

Posted: Dec 30, 2024

After 10 years of joint pain, spontaneous ligament ruptures and begging for help, I was diagnosed...

https://connect.mayoclinic.org/comment/1488117/

Discussion: Seronegative Arthritis

Support Group: Autoimmune Diseases

Posted: Jan 21 12:33pm

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