Husband diagnosed with RA

Posted by virgo1952 @virgo1952, Apr 11, 2020

My husband recently (5-6 weeks) was diagnosed with RA. Prior to that, 8-9 years ago, he had what looked like a rash and was diagnosed with a blood disease (ITP). (Believe is is also considered a autoimmune disease) He was hospitalized and first given high dose steroids. When that proved unsuccessful, he had a cancer like treatment infusions for 6-8 months. He got better, follow up blood five + years out looked good. Then bomb! He is taking merhotrexate (20+mg) every Saturday and will be re-evaluated in six weeks. I joined this site in October, 2919 , after colon cancer and a re-section. So, I wanted to share his story with the group, in hopes he will pick up the thread and have the great support I have had since joining. Good days and bad days. . We just adjust to what we can do. I’m still getting used to my “new” normal too. Any suggestions that have worked for you would be appreciated. He exercises smartly. I would like to see if anyone has changed/found a certain diet/foods helpful in keeping inflammation in check. He’s a newbie, so we would live your feedback. virgo 1952 (my online name)

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

Hi @virgo1952 — There is an existing discussion for Rheumatoid Arthritis where your post will receive more visibility and you can meet other members discussing and sharing their experiences with RA.

> Groups > Autoimmune Diseases > Rheumatoid Arthritis (RA) – Introduce yourself and meet others
https://connect.mayoclinic.org/discussion/rheumatoid-arthritis-ra-introduce-yourself-and-meet-others/

Thank you for advocating for your husband. I'm sure he appreciates your help getting started on Connect. It sounds like he is already doing some good things to help – better diet and exercise. What is the hardest for him?

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I have had a diagnosis of RA now for 10 years. Methotrexate 20 mg., was great to me until about 3 years ago, when my liver tests spiked. I still take it, but the injectable 7.5 mg dose, so that it avoids the first pass on the liver. I've been on different biologics now. The longer I've had RA, the longer I notice that if I eat too much sugar, I will get inflammation from it. I do believe the healthier you eat the better in my case, but I still love sugar! Keeping active is great. I haven't done so, and my muscles get spasm. I have spinal issues too, but not from RA.

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@johnbishop

Hi @virgo1952 — There is an existing discussion for Rheumatoid Arthritis where your post will receive more visibility and you can meet other members discussing and sharing their experiences with RA.

> Groups > Autoimmune Diseases > Rheumatoid Arthritis (RA) – Introduce yourself and meet others
https://connect.mayoclinic.org/discussion/rheumatoid-arthritis-ra-introduce-yourself-and-meet-others/

Thank you for advocating for your husband. I'm sure he appreciates your help getting started on Connect. It sounds like he is already doing some good things to help – better diet and exercise. What is the hardest for him?

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Hi. You are everywhere!!! Thank you so much virgo

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Great name! Thank you. Good to know about the liver. I will watch to see how the Dr deals with that( regular testing). I’m hoping he will do ok on this dose, but I’m nit sure. He likes sugar and always has. He was very active throughout his life; and Robert Redford thin. He is trying to eat like me. I had to start good eating habits early on for my vanity and one of my occupations. It just never left me. I am a creature of habit (and self-denial).

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@johnbishop

Hi @virgo1952 — There is an existing discussion for Rheumatoid Arthritis where your post will receive more visibility and you can meet other members discussing and sharing their experiences with RA.

> Groups > Autoimmune Diseases > Rheumatoid Arthritis (RA) – Introduce yourself and meet others
https://connect.mayoclinic.org/discussion/rheumatoid-arthritis-ra-introduce-yourself-and-meet-others/

Thank you for advocating for your husband. I'm sure he appreciates your help getting started on Connect. It sounds like he is already doing some good things to help – better diet and exercise. What is the hardest for him?

Jump to this post

Diet. He has been slender all his life. I have had to be diet minded for obvious reasons vanity and $. But, I had he coming to the Y when he retired (after his blood) and he does great. Like me, he enjoys being active. Just active in a different way now. We are biking an island tomorrow with wildlife. You know what that means, John!!!!! Photo shots…….

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@virgo1952

Hi. You are everywhere!!! Thank you so much virgo

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🙃

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Hi @virgo1952
I hope your husband will create an account on Connect and join the discussions about rheumatoid arthritis and introduce himself here:
> Groups > Autoimmune Diseases > Rheumatoid Arthritis (RA) – Introduce yourself and meet others
https://connect.mayoclinic.org/discussion/rheumatoid-arthritis-ra-introduce-yourself-and-meet-others/

I'm also glad that you started this discussion as someone who lives with a person with RA. I'd like to bring @vickiekay @guzmanbarb @jewel8888 @boomerexpert @crhp194 @kozlo52 @candrgonzalez and others into this discussion and ask them to share insights on how a family member or friend can support someone with RA.

I learned so much from my friend who has RA. For example, I used to prefer a firm handshake and even judged a light handshake as signifying weakness of character, pretty biased thinking my friend was quick to point out. What if that person had a hidden illness like RA that prevented them from giving a firm handshake? Well, I had to change my thinking, right quick.

Virgo, what have you learned from your husband's diagnosis and how has it changed something in your routine or thinking? @fighter, what would you like people who don't have RA to know about the condition?

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@colleenyoung

Hi @virgo1952
I hope your husband will create an account on Connect and join the discussions about rheumatoid arthritis and introduce himself here:
> Groups > Autoimmune Diseases > Rheumatoid Arthritis (RA) – Introduce yourself and meet others
https://connect.mayoclinic.org/discussion/rheumatoid-arthritis-ra-introduce-yourself-and-meet-others/

I'm also glad that you started this discussion as someone who lives with a person with RA. I'd like to bring @vickiekay @guzmanbarb @jewel8888 @boomerexpert @crhp194 @kozlo52 @candrgonzalez and others into this discussion and ask them to share insights on how a family member or friend can support someone with RA.

I learned so much from my friend who has RA. For example, I used to prefer a firm handshake and even judged a light handshake as signifying weakness of character, pretty biased thinking my friend was quick to point out. What if that person had a hidden illness like RA that prevented them from giving a firm handshake? Well, I had to change my thinking, right quick.

Virgo, what have you learned from your husband's diagnosis and how has it changed something in your routine or thinking? @fighter, what would you like people who don't have RA to know about the condition?

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I do not have or take care of a person with RA. Thus I am unable to help…so sorry.

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Hi Colleen. Thank you for reaching out asking about my husband and how it has changed my/our life. Early days for him. Fifth week of medication ( takes once a week) Our daily activities have also been changed due to the virus, so some of this is driven by that. Just an example, I walk everyday and he has found it’s to hard on him. He now bikes beside me most days going around our lake and through the neighborhoods. Hot baths are on the menu and he uses those for relief. (Still at times relies on dr prescribed medication) He stretches in bed before getting up, so I will go in and make our morning coffee (I make better coffee anyway, our secret!). We still plan to fly to Sun City, AZ once the travel band is lifted. I rented a home that provides a golf cart and will rent bikes for us to use so it is easier for him. That’s new for us. The not being able to walk long distances. But, a golf cart and bikes are doable. I recently ordered a heating pad for him to use while sitting. He gets up frequently and will walk around so he doesn’t become stiff and painful. ( I read on the treadmill so much that now just sitting reading seems weird) So we are made for each other😊. I think we’ve both had things happen, so I guess we just will do and figure it out along the way. My thinking is usually pretty positive. This is his second auto-immune disease; and I’m just focused on educating he and I to manage his RA. It will be his responsible to do what’s best for him. I will be there to support that.

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@crhp194

I do not have or take care of a person with RA. Thus I am unable to help…so sorry.

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@crhp194 Thanks for responding . Weigh in anytime, about anything. I’m always interested in people, their lives and their thoughts. virgo

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