Autoimmune Diseases Support Group

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Comments (353)

Hi. It depends on the severity of your lupus. Like someone mentioned, if it starts to...

https://connect.mayoclinic.org/comment/1022268/

Discussion: Living with Systemic Lupus: Can I live a normal life?

Support Group: Autoimmune Diseases

Posted: Feb 25, 2024

I know exactly what it is to live with Rheumatoid Arthritis. I have had it since...

https://connect.mayoclinic.org/comment/145638/

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Aug 11, 2020

Disease modifying drugs like plaquenil can take months to provide any relief. As far as what...

https://connect.mayoclinic.org/comment/108488/

Discussion: Autoimmune diagnosing problem

Support Group: Autoimmune Diseases

Posted: Jul 20, 2016

I had the exact same experience with Paxlovid! I have lupus, and had regular hip pain....

https://connect.mayoclinic.org/comment/1151326/

Discussion: Paxlovid and Autoimmune Disease

Support Group: Autoimmune Diseases

Posted: Oct 3, 2024

Yes, I do have tinnitus. A low roaring - like the engine of an airplane. I...

https://connect.mayoclinic.org/comment/1067581/

Discussion: What can I expect with Antiphospholipid Syndrome (APS)?

Support Group: Autoimmune Diseases

Posted: May 14, 2024

Welcome @diamondletty. It just pulls the rug out from under your feet when a loved one...

https://connect.mayoclinic.org/comment/815200/

Discussion: Husband diagnosed with RA

Support Group: Autoimmune Diseases

Posted: Feb 21, 2023

I have this. From https://www.hss.edu/conditions_undifferentiated-connective-tissue-disease-overview.asp#what Definition: used to describe a condition in people who have symptoms...

https://connect.mayoclinic.org/comment/789144/

Discussion: Undifferentiated Connective Tissue Disease

Support Group: Autoimmune Diseases

Posted: Dec 26, 2022

I’m really sorry you’re suffering like this. I have osteoarthritis and rheumatoid arthritis, a knee and...

https://connect.mayoclinic.org/comment/675059/

Discussion: Autoimmune diagnosing problem

Support Group: Autoimmune Diseases

Posted: Jan 26, 2022

Help...need some suggestions for coping with an RA flair! So I have made significant changes in...

https://connect.mayoclinic.org/comment/864287/

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: May 22, 2023

I am down to 2.5mg prednisone from 15mg a year ago. Also taking 400mg plaquenil daily....

https://connect.mayoclinic.org/comment/1232924/

Discussion: PMR Flare with New Issues

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 9 11:00am

@regeana I echo @kariulrich advice on speaking with your doctor. You have many things going on...

https://connect.mayoclinic.org/comment/56451/

Discussion: MCTD (Mixed Connective Tissue Disease)

Support Group: Autoimmune Diseases

Posted: Mar 26, 2017

I had severe wrist pain and initally my reg dr thought possible carpel tunnel and I...

https://connect.mayoclinic.org/comment/111278/

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Apr 10, 2017

Hi @kaprizzz, I also have an extremely high ANA with some type of titer. I really...

https://connect.mayoclinic.org/comment/934964/

Discussion: Positive ANA: What might be the cause?

Support Group: Autoimmune Diseases

Posted: Sep 23, 2023

BAYHORSE, Fibromyalgia does not show up in bloodwork. I have had it for 27 years. I...

https://connect.mayoclinic.org/comment/839018/

Discussion: Undifferentiated Connective Tissue Disease

Support Group: Autoimmune Diseases

Posted: Apr 7, 2023

I am so sorry you’re struggling with so much pain and disability. It’s amazing you are...

https://connect.mayoclinic.org/comment/1121989/

Discussion: Anyone else have PBC + hEDS? Can’t be just me…

Support Group: Autoimmune Diseases

Posted: Aug 12, 2024

Hi Paula, I was diagnosed with Tumid Lupus in April of 2016, two days before my...

https://connect.mayoclinic.org/comment/117609/

Discussion: Tumid Lupus

Support Group: Autoimmune Diseases

Posted: Jul 17, 2017

Yea. There’s no cure whether one has your somewhat vague diagnosis or my rather specific one...

https://connect.mayoclinic.org/comment/979387/

Discussion: Worried about upcoming rheumatologist appointment

Support Group: Autoimmune Diseases

Posted: Dec 12, 2023

I also have multiple issues going on. I was diagnosed with inflammatory arthritis, with some joints...

https://connect.mayoclinic.org/comment/919890/

Discussion: Multiple Arthritis issues - Is this unusual?

Support Group: Autoimmune Diseases

Posted: Aug 27, 2023

Hi. It appears you are new to MayoConnect. Its a great community and some point one...

https://connect.mayoclinic.org/comment/971444/

Discussion: Does anybody on here have crohns disease?

Support Group: Autoimmune Diseases

Posted: Nov 27, 2023

@jshdma. I've been to three dermatologist who use the generic statement regarding LP, "we don't know...

https://connect.mayoclinic.org/comment/948129/

Discussion: Oral lichen Planus: What home remedies or medications help you?

Support Group: Autoimmune Diseases

Posted: Oct 15, 2023

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