Mayo Clinic Connect
Has anyone had Zometa infusions to help combat the effects of aromatase inhibitors (bone loss). I have osteoporosis of my spine and osteopenia of the hip and am told I need this to prevent future fractures.
Liked by auntieoakley
I receive Zometa every 3 months for my bone mets. I no longer take any AIs as my biopsy shows my cancer is now triple negative. (My primary was hormone positive.)
Liked by trixie1313
I have Zometa infusions once every three months – in fact I have one in a week. My Dr. at U of M is the one who rewrote the protocol for the Zometa infusion timeline — she (and others) discovered there was no difference in efficacy between once a month and once every three months. Best wishes for this treatment — I have found it to be really easy.
Liked by trixie1313, auntieoakley
I receive Zometa every three months, I was 38 when I was originally diagnosed, which resulted in an oopherectomy and a course of tamoxifen. Then eight years later I went on anastrazole. My really great oncologist said it would be prudent to start zometa , I have had two now without incident. I hope it is that easy for you as well.
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My oncologist has told me I'll be having these every 6 months. I'm curious as to the protocol so that I can read and then share with my oncologist.
I'd like to bring this discussion to the attention of @hockeymom25 and @mbear. They had a related discussion a while back:
– anyone have experience with zoledonic acid infusion for osteopenia? https://connect.mayoclinic.org/discussion/anyone-have-experience-with-zoledonic-acid-infusion-for-osteopenia/
I have ER/PR positive BC stage 3. I am getting hormone suppression therapy and take Anastrozole. My oncologist had me start on Zometa every 6 months even though my bone density is excellent as a recent study has shown it can help prevent bone mets. I have had one infusion so far and had extreme fever chills shakes about 18 hours after. My oncologist does not think it was a reaction to the Zometa infusion given the timing but from what I’ve read online it seems likely it was so I’m not sure what to think about that. I plan to continue the twice yearly infusions either way as I feel that a few hours of discomfort is worth the extra protection.
Thank you for your comments – my first tumor was Stage 2 and second one Stage 2 and also ER/PR+. I tried anastrozole, but did not do well on it with horrendous headaches and dizziness. I've been on letrozole now for 3 1/2 weeks and doing a bit better. My understanding from some ladies in my breast cancer support group is flu-like symptoms for 3-4 days and that sounds about what you have gone through. I have osteoporosis of my spine and osteopenia of the hips and my oncologist suggests the every 6-month route. One more thing we have to go through, right?!
I too have osteoporosis in my spine and hips, thankfully I do not have all the side effects you girls have had. If I was that sick from it I would ask for a different type there are several, my husband gets a different one to help strengthen his bones. It definitely merits a conversation. My thoughts are with you.
Have my first infusion on Monday. Since I have reactions to most meds, I have bad fibromyalgia, am a little worried about how sick I will be. Have something important to do on Tuesday and can't be sick. Should I postpone it?
i have been fortunate to not have any reaction to the Zometa. I have had at least four infusions. One hint would be to hydrate well during and after.
I agree with Oilermama about hydration, also you will getting an infusion in a setting with people to help if needed.
Liked by Teresa, Volunteer Mentor, trixie1313
and mine only took about 20 minutes — way faster than the chemo.
@baby99, I would ask your oncologist about whether to postpone the Zometa injection or not.
Hi everyone. I too had become, chemo and radiation and am now on anastrozole. Sorry for the silly question, but what are the infusions you are getting and what are they for?
Liked by Kanaaz Pereira, Connect Moderator, auntieoakley
Hello Karendb, part of losing your estrogen, from treatment, menopause or both is losing bone density. The zometa infusions are to strengthen your bones. In some cases because we are special we get to lose our estrogen earlier than normal, and more completely. This can cause us to lose bone density younger and need early intervention.
Liked by Teresa, Volunteer Mentor, Kanaaz Pereira, Connect Moderator
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