Zometa infusions to help prevent bone loss from cancer treatments

Posted by trixie1313 @trixie1313, Jun 13, 2019

Has anyone had Zometa infusions to help combat the effects of aromatase inhibitors (bone loss). I have osteoporosis of my spine and osteopenia of the hip and am told I need this to prevent future fractures.

@auntieoakley

Mine were quickly changed to every 6 months after the first 3 because there was a mistake in the orders. But with no real side effects or issues. My infusions take about 20 minutes, they add a little saline to an IV then do a push of the drug over about 5 minutes then finish the little bag of saline, then I am off to have lunch.
I try and drink an extra big glass of water the day before, and an extra glass the morning of, and an extra glass that night. Eating normally, no nausea involved. I drive an hour and a half to my doctor, so I get to go to my favorite Italian afterwards. Another comment my doctor made is if you are not taking a calcium and D supplement before this to start taking one. I take 600 Ca, plus Vit. D every day. Are taking any calcium supplements?

Jump to this post

@auntieoakley Chris: will see oncologist in September to discuss current status and plan for Zometa infusion treatment schedule. Just had some dental work done, and panoramic X-rays to exclude any other major potential problems that might loom. None. Would you mind sharing exactly which calcium supplement you are taking? Shelves are loaded with them, and I understand there are differences in composition/strength/additional ingredients. If you can share brand name, fine. If not, just ? MG of which calcium, and ? units of Vitamin D? Also, in the past someone posted that calcium supplements can accumulate in your blood vessels and stiffen them, unless you also take Vitamin K2. (Of course, I have also read that the COVID-19 vaccines contain microchips to track people, so just because I read something does not make this true!!!!!). Any input would be appreciated.

REPLY

I just spit coffee across the room. Lol. Sorry.
I take natures bounty brand just because my pharmacist recommended it, and I love my local pharmacy. Calcium 600+D is the dose my doctor recommended, you should ask your doctor as the recommended dose could be different for you. I had not heard about the vitamin K but that does not mean it isn’t valid. I live in the Pacific Northwest so my doctor has added a vitamin D prescription once a month. I guess I don't get enough sunlight. I am definitely less afraid of these infusions than I am of breaking more bones and having them not heal well.

REPLY

@auntieoakley
“I just spit coffee across the room.”
That's certainly better than swallowing the wicked potion.
I saw a Canadian doctor talking about the importance of vitamin k and how it works with vitamin D maybe she's right maybe not.
Research is showing micro-cracks when using Bisphosphonates. Don't know about Tymlos and other Parathyroid hormone related drugs. Although it appears the Parathyroid hormone drugs build more bone density than Bisphosphonates.
I take 3,000 IU’s per day of vitamin D. My seizure meds are enzyme-inducing drugs that decrease vitamin D levels and increases bone turnover.
Take care,
Jake

REPLY
@jakedduck1

@auntieoakley
“I just spit coffee across the room.”
That's certainly better than swallowing the wicked potion.
I saw a Canadian doctor talking about the importance of vitamin k and how it works with vitamin D maybe she's right maybe not.
Research is showing micro-cracks when using Bisphosphonates. Don't know about Tymlos and other Parathyroid hormone related drugs. Although it appears the Parathyroid hormone drugs build more bone density than Bisphosphonates.
I take 3,000 IU’s per day of vitamin D. My seizure meds are enzyme-inducing drugs that decrease vitamin D levels and increases bone turnover.
Take care,
Jake

Jump to this post

Thank you, can you share any links with the studies. I am very interested in this since my husband and I are both on them. Him from his cancer, myself from the treatments. Lol

REPLY
@jakedduck1

@auntieoakley
“I just spit coffee across the room.”
That's certainly better than swallowing the wicked potion.
I saw a Canadian doctor talking about the importance of vitamin k and how it works with vitamin D maybe she's right maybe not.
Research is showing micro-cracks when using Bisphosphonates. Don't know about Tymlos and other Parathyroid hormone related drugs. Although it appears the Parathyroid hormone drugs build more bone density than Bisphosphonates.
I take 3,000 IU’s per day of vitamin D. My seizure meds are enzyme-inducing drugs that decrease vitamin D levels and increases bone turnover.
Take care,
Jake

Jump to this post

Incidental reply – this the same jakedduck who does not like to cook that I ran across in other groups? Small (Mayo) world. Will also monitor any of your posts in this respect.

REPLY
@ellerbracke

Incidental reply – this the same jakedduck who does not like to cook that I ran across in other groups? Small (Mayo) world. Will also monitor any of your posts in this respect.

Jump to this post

@ellerbracke
Yep, one in the same.
Doesn't like to cook is putting it mildly.
I detest cooking and loath every second I'm in the kitchen (I call it the dungeon) with one exception, going to get candy to refill my candy dishes.
Jake

REPLY

I’m very concerned about my bone health after following this post. I started Anastrozole almost 2 yrs ago. No one mentioned to me about bone density meds. Not my oncologist or PCP. Both of them has seen my latest bone density results which have gone from osteopenia to now osteoporosis. I’m very concerned now why they haven’t recommended meds. When did was bone density med prescribed when you started Anastrozole? TIA

REPLY
@auntieoakley

Mine were quickly changed to every 6 months after the first 3 because there was a mistake in the orders. But with no real side effects or issues. My infusions take about 20 minutes, they add a little saline to an IV then do a push of the drug over about 5 minutes then finish the little bag of saline, then I am off to have lunch.
I try and drink an extra big glass of water the day before, and an extra glass the morning of, and an extra glass that night. Eating normally, no nausea involved. I drive an hour and a half to my doctor, so I get to go to my favorite Italian afterwards. Another comment my doctor made is if you are not taking a calcium and D supplement before this to start taking one. I take 600 Ca, plus Vit. D every day. Are taking any calcium supplements?

Jump to this post

I take Bone Strength which has some calcium and a multi which has some also. I am not sure if I am getting enough.

REPLY
@sequoia

I’m very concerned about my bone health after following this post. I started Anastrozole almost 2 yrs ago. No one mentioned to me about bone density meds. Not my oncologist or PCP. Both of them has seen my latest bone density results which have gone from osteopenia to now osteoporosis. I’m very concerned now why they haven’t recommended meds. When did was bone density med prescribed when you started Anastrozole? TIA

Jump to this post

No one mentioned it to me either, until my oncologist retired and I started seeing my husbands wonderful oncologist. He said geez I sure would hate to see you get a compression fracture and after I had an accident and everything broke two years before. It seemed like my pcp would have picked up on it. Thanks be to Mayo trained doctors!
You will need to advocate for yourself in this. If your doctor won’t listen, I would humbly suggest a second opinion might be in order. Maybe this drug isn’t right for you, but pretending there is no problem certainly can’t be the best plan for you either.

REPLY
@auntieoakley

No one mentioned it to me either, until my oncologist retired and I started seeing my husbands wonderful oncologist. He said geez I sure would hate to see you get a compression fracture and after I had an accident and everything broke two years before. It seemed like my pcp would have picked up on it. Thanks be to Mayo trained doctors!
You will need to advocate for yourself in this. If your doctor won’t listen, I would humbly suggest a second opinion might be in order. Maybe this drug isn’t right for you, but pretending there is no problem certainly can’t be the best plan for you either.

Jump to this post

@Chris. Thank you. I advocate for myself. I’ve called my Cancer Services clinic to get another opinion. When I called to get an appointment with another oncologist, they looked up my file ‘oh you are Dr. White’s patient’. I said yes but I want an opinion on bone density med. The gal said ‘please hold , I’ll have to speak w/ someone about this situation’. 😳. Lol. That was 1 1/2 weeks ago. I called after a week and said ‘ Hi Marissa – I doke to you about getting an appointment with another oncologist, you said it was a Situation’. She even laughed. Said someone would call me. No call , been about 4 days. I guess the situation hasn’t been resolved. 🤷‍♀️💪🏼 I’ll keep calling them!! Never give up.

REPLY
@omega20

I take Bone Strength which has some calcium and a multi which has some also. I am not sure if I am getting enough.

Jump to this post

Let me add more info on the Vitamin D3 and Calcium that I take:
BONE STRENGTH
D3 1000 IU 250% OF DAILY REQUIREMENT
CALCIUM 770 MG. 77% OF DAILY REQ.

RAINBOW LIGHT MULTI VITAMINS
D3 (AS CHOLECALCIFOR) 1000 IU 125%
CALCIUM 200 MG 15 % OF DAILY REQ.

ACCORDING to this I am getting only 92% of Required Daily Amount of Calcium.

Should I be concerned?

REPLY
@omega20

Let me add more info on the Vitamin D3 and Calcium that I take:
BONE STRENGTH
D3 1000 IU 250% OF DAILY REQUIREMENT
CALCIUM 770 MG. 77% OF DAILY REQ.

RAINBOW LIGHT MULTI VITAMINS
D3 (AS CHOLECALCIFOR) 1000 IU 125%
CALCIUM 200 MG 15 % OF DAILY REQ.

ACCORDING to this I am getting only 92% of Required Daily Amount of Calcium.

Should I be concerned?

Jump to this post

I don’t think you should get overly concerned before you talk to a doctor. I just think you need to keep pounding doors until one talks to you about this. If you know you have osteoporosis then someone needs to at least have a conversation about it.

REPLY
Please sign in or register to post a reply.
  Request Appointment