You've Lost that Loving Feeling 🎶

Posted by judimahoney @judimahoney, 15 hours ago

My spouse stopped touching me, kissing me, no hugs, even before his bvFTD diagnosis (Behavioral variant frontotemporal dementia). He would even pull away if I tried to hold his hand.
I'm having a rough time dealing with this. It's been 2 years in the dry desert of lonliness.
The occasional hug or cheek kiss from friends and family isn't enough for me. Humans need touch.
Just to see what info would come up, I typed in an internet search about spouse with dementia no longer touching, and it showed:
-brain changes cause them to withdraw
-physical touch may be misinterpreted as an invasion
-their changes may cause them to lose the ability to initiate affection
-touch can feel startling or overwhelming, can feel like an invasion, or feel painful
-suggests finding low-pressure ways to bond instead, like just sitting next to each other, or doing a shared, enjoyable activity (that's fine, but doesn't cut the mustard).
I know there isn't anything much I can do about this, it's just psychologically messing with me so I'm having a pity party for myself.

Interested in more discussions like this? Go to the Caregivers: Dementia Support Group.

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