Bertolotti's Syndrome: Looking for a specialist

Posted by Casie Cox @casieann, Apr 6, 2015

Wondering if There are any Doctors that specialize in Bertolotti's Syndrome. I am moving to Florida and I desperately need to find someone who can relieve me of this pain.

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atinnon | @atinnon | Mar 27 8:19pm

In reply to @acsdefil "Are there any doctors in the Louisville KY area specializing in Bertolotti's syndrome?" + (show)

I live in Tennessee this area would be close enough for me to travel, I am desperately seeking help as well, I hope you find someone. Please update me if you find someone.

atinnon | @atinnon | Mar 27 8:21pm

I am in Tennessee looking for someone who specializes in this condition I can travel to surrounding states. TIA

Jennifer, Volunteer Mentor | @jenniferhunter | Mar 27 10:13pm

In reply to @atinnon "Hi so thankful I have found this form, I am desperate for help. Any information would..." + (show)

@atinnon There are some excellent specialists at Vanderbuilt. I don't have personal experience there, but have heard from people I know about their experience although not spine related. Have you looked at their website? It is worth traveling to see a world class specialist.

jenatsky | @jenatsky | Apr 4 10:36am

Try doing a search under “aboutbertolottis.org” for a specialist.

gilkesl | @gilkesl | Apr 5 7:24am

Mayo Clinic in Jacksonville has excellent spine neurosurgeons. You must have a referral from a doctor, have gone through PT and multiple cortisone shots, You also then send in your MRIs and doctor's reports. It's difficult to get an appointment but well worth it. I went from walking 2 miles a day to not walking and after surgery now walking 2 miles a day.

lortiz716 | @lortiz716 | May 8 11:43am

Hi, I am so glad I have found this post/thread. I have been struggling for the past few months with hips, pelvis, lower back and sit bone pains. Numerous x-rays and MRIs with multiple “diagnosis” of imaging commenting of Bertolottis syndrome. However, according to all of the providers I’ve seen (over 5 at this point) from sports medicine to neurosurgeon I am told everything is normal. When I look up Bertolotti’s as well as reading all of these stories. It is me to a T. When this all really flared up I was also told that I have the qualifications of a connective tissue disorder/EDS, but that was from a PT and not provider so I haven’t been clinically diagnosed. The pain is unbearable and I feel like I am being overlooked so much. Does anyone know if there is any provider near the Wisconsin area that specializes with Bertolotti’s? I feel like I won’t be taken seriously by any other provider at this point.