Bertolotti's Syndrome: Looking for a specialist

Posted by Casie Cox @casieann, Apr 6, 2015

Wondering if There are any Doctors that specialize in Bertolotti's Syndrome. I am moving to Florida and I desperately need to find someone who can relieve me of this pain.

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atinnon | @atinnon | Mar 27, 2025

In reply to @acsdefil "Are there any doctors in the Louisville KY area specializing in Bertolotti's syndrome?" + (show)

I live in Tennessee this area would be close enough for me to travel, I am desperately seeking help as well, I hope you find someone. Please update me if you find someone.

atinnon | @atinnon | Mar 27, 2025

I am in Tennessee looking for someone who specializes in this condition I can travel to surrounding states. TIA

Jennifer, Volunteer Mentor | @jenniferhunter | Mar 27, 2025

In reply to @atinnon "Hi so thankful I have found this form, I am desperate for help. Any information would..." + (show)

@atinnon There are some excellent specialists at Vanderbuilt. I don't have personal experience there, but have heard from people I know about their experience although not spine related. Have you looked at their website? It is worth traveling to see a world class specialist.

jenatsky | @jenatsky | Apr 4, 2025

Try doing a search under “aboutbertolottis.org” for a specialist.

gilkesl | @gilkesl | Apr 5, 2025

Mayo Clinic in Jacksonville has excellent spine neurosurgeons. You must have a referral from a doctor, have gone through PT and multiple cortisone shots, You also then send in your MRIs and doctor's reports. It's difficult to get an appointment but well worth it. I went from walking 2 miles a day to not walking and after surgery now walking 2 miles a day.

lortiz716 | @lortiz716 | May 8, 2025

Hi, I am so glad I have found this post/thread. I have been struggling for the past few months with hips, pelvis, lower back and sit bone pains. Numerous x-rays and MRIs with multiple “diagnosis” of imaging commenting of Bertolottis syndrome. However, according to all of the providers I’ve seen (over 5 at this point) from sports medicine to neurosurgeon I am told everything is normal. When I look up Bertolotti’s as well as reading all of these stories. It is me to a T. When this all really flared up I was also told that I have the qualifications of a connective tissue disorder/EDS, but that was from a PT and not provider so I haven’t been clinically diagnosed. The pain is unbearable and I feel like I am being overlooked so much. Does anyone know if there is any provider near the Wisconsin area that specializes with Bertolotti’s? I feel like I won’t be taken seriously by any other provider at this point.

nnodland | @nnodland | Apr 27 9:41pm

In reply to @colleenyoung "Hi @jaes, At Mayo, we have specialists in the Spine Centers at all 3 locations Rochester..." + (show)

@colleenyoung
Thank you for this information. I have been diagnosed with Bertolottis and have seen every kind of specialist you can think of and tried every thing they have suggested and have had zero pain relief. I’m in ND and it seems I have exhausted my options. I filled out the questions and anxiously will await for a call and crossing my fingers they will try to help me.

nnodland | @nnodland | Apr 27 9:45pm

In reply to @lortiz716 "Hi, I am so glad I have found this post/thread. I have been struggling for the..." + (show)

@lortiz716
I am so sorry to read that you seem to be going through exactly what I am. I have tried everything under the sun as far as treatments, I’ve seen everyone I possibly can in ND and no one can help me. Living in chronic pain and not being able to sleep is wearing on me; hoping to get some help soon! Prayers to you!