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casieann

Wondering if There are any Doctors that specialize in Bertolotti's Syndrome.

Posted by @casieann in Bones, Joints & Muscles, Apr 6, 2015

Wondering if There are any Doctors that specialize in Bertolotti's Syndrome. I am moving to Florida and I desperately need to find someone who can relieve me of this pain.

rebeccamcroberts

Posted by @rebeccamcroberts, Apr 6, 2015

Hi Casie. We'd recommend that you reach out to our appointment office at the Mayo Clinic Hospital in Florida. You can reach the team there at (904) 853-2000.

casieann

Posted by @casieann, Apr 6, 2015

ok Thank you

jaes

Posted by @jaes, Mon, Feb 1 at 6:49am CST

Hi Casie- my daughter also has BErtolotti's and we are looking for doctors with surgical expertise in this rare condition in the Washington DC or New York City area. Thanks in advance for your help

anonymous-90348

Posted by @anonymous-90348, Mon, Feb 1 at 3:46pm CST

Hi @jaes and welcome to Connect.

I'm also going to tag @happytrails123 and @reneep to bring them into this discussion.
How is your daughter's care being handled now? Is surgery being recommended?

@casieann Did you see this post by @reneep where she talks about the care she got at Mayo in Florida? https://connect.mayoclinic.org/discussion/sacroiliitis/?pg=1#post-16027

Cassie
Connect Community Moderator

jaes

Posted by @jaes, Mon, Feb 1 at 4:47pm CST

Hi
My daughter is currently under the care of her pop but we hare planning to see several spine specialists. She has failed conservative therapy- PT & pilates
She has a standing desk and special chair at work. The steroid injection only provided temporary relief. So, I think surgery is the next step. From my research I learned it is very important to be sure which parent of the back is the etiology of the pain,that with Bertolotti's there can be aberrant neuro and vascular anatomy - so it seems choice of surgeon is paramount to successful outcome. Since the condition is not very prevalent and there is no consensus as to best management or surgical approach I am looking for a surgeon who has done LOTS of cases of Bertolotti's and would be grateful if anyone knows such a surgeon. Am willing to go anywhere in US
Thanks

colleenyoung

Posted by @colleenyoung, Wed, Feb 3 at 10:43am CST

Hi @jaes,
At Mayo, we have specialists in the Spine Centers at all 3 locations Rochester MN, Phoenix AZ and Jacksonville FL. I recommend contacting your preferred location and asking for an appointment at the Spine Center there. You can also inquire which location has more experience with Bertolotti's. Here's the page with all the contact info http://www.mayoclinic.org/appointments

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