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Bertolotti's Syndrome: Looking for a specialist

Spine Health | Last Active: Apr 27 9:45pm | Replies (58)

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Hi, I am so glad I have found this post/thread. I have been struggling for the past few months with hips, pelvis, lower back and sit bone pains. Numerous x-rays and MRIs with multiple “diagnosis” of imaging commenting of Bertolottis syndrome. However, according to all of the providers I’ve seen (over 5 at this point) from sports medicine to neurosurgeon I am told everything is normal. When I look up Bertolotti’s as well as reading all of these stories. It is me to a T. When this all really flared up I was also told that I have the qualifications of a connective tissue disorder/EDS, but that was from a PT and not provider so I haven’t been clinically diagnosed. The pain is unbearable and I feel like I am being overlooked so much. Does anyone know if there is any provider near the Wisconsin area that specializes with Bertolotti’s? I feel like I won’t be taken seriously by any other provider at this point.

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@lortiz716
I am so sorry to read that you seem to be going through exactly what I am. I have tried everything under the sun as far as treatments, I’ve seen everyone I possibly can in ND and no one can help me. Living in chronic pain and not being able to sleep is wearing on me; hoping to get some help soon! Prayers to you!