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geo84 avatar

With Myelofibrosis I have good days and bad days - is this normal?

Blood Cancers & Disorders | Last Active: 5 hours ago | Replies (13)
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Profile picture for geo84 @geo84

Thanks for your response.
I was diagnosed in March of 2021 with ET, and in May of 2025, with a new biopsy, I was diagnosed with Myelofibrosis. Thus far, the condition is manageable with Hydroxyurea. The periodic energy swings concern me.

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Replies to "Thanks for your response. I was diagnosed in March of 2021 with ET, and in May..."
vivoconte | @vivoconte | 1 day ago

@geo84, hola buen día. Me gustaría saber por que te realizaste una nueva biopsia? Tenías algún otro síntoma?
Yo soy diagnosticada con TE hace 12 años y tomo hidroxiurea, a fines del año pasado me mandaron realizar una biopsia pero aún no he tenido el valor de hacérmela.
Me serviría mucho tu experiencia. Abrazo

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