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With Myelofibrosis I have good days and bad days - is this normal?
Blood Cancers & Disorders | Last Active: 5 hours ago | Replies (8)Comment receiving replies
To geo84:
You could be describing my experience, too, with the low energy, regular nap time, and the unsteadiness, especially at the end of the day.
I’m 84, diagnosed with mf two years ago, then Waldenstroms macrobulinimea (?) a year ago. I’ve done well with Hydrea and a round of Rituxin twice a year but am increasingly exhausted by the end of the day.
I’m thankful I can do most of the things I’ve always enjoyed and try to stay positive. It’s good to know I’m not alone in this. Thanks for posting.
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@dunewalker Thanks for your comment and observation. I too am thankful I can still do most things. Best of luck going forward. There is much to learn and a lot to deal with going forward. Thanks again - Geo