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With Myelofibrosis I have good days and bad days - is this normal?
Blood Cancers & Disorders | Last Active: 5 hours ago | Replies (6)Comment receiving replies
My experience is Yes. Over time, as it progressed I had fewer good days.
I was put on Vonjo and over time I got my life back, for the most part and felt dramatically better.
You might discuss this with your Oncologist. It may be time to make a change to your medication?
I'm sorry you are going through this.
Wish you better days ahead.
Replies to "My experience is Yes. Over time, as it progressed I had fewer good days. I was..."
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@carolgk I will do some research into Vonjo - great to hear it is working for you. At present, hydroxyurea seems to be working, but other drugs are probably not far down the path. I appreciate your comment - all the best to you