Will mayo clinic treat my liver tx even though I was tx in Ny Presby.

Posted by bosco17 @bosco17, Jan 1 10:18am

I had a liver transplant in NY Presbyterian 12 yrs ago in 2008. I moved to FL. and have been followed by the MayoTransplant doctor Dr Raj in Jacksonville since 2011. I recently had some abnormal liver function test. Will the Mayo Clinic perform a liver biopsy on me to find out whats going on(Cancer or Ductopenia) even though I was transplanted elsewhere??

@bosco17, If I'm understanding correctly, you are currently a Mayo Clinic patient in Jacksonville. If yes, you can ask this question to your care team through Mayo Clinic's patient portal https://www.mayoclinichealthsystem.org/patient-online-services

Did you have the testing done at Mayo?

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@colleenyoung

@bosco17, If I'm understanding correctly, you are currently a Mayo Clinic patient in Jacksonville. If yes, you can ask this question to your care team through Mayo Clinic's patient portal https://www.mayoclinichealthsystem.org/patient-online-services

Did you have the testing done at Mayo?

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Yes testing was done by Mayo. Would they do a liver biopsy?

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@bosco17

Yes testing was done by Mayo. Would they do a liver biopsy?

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@bosco17, I should think so. Best way to confirm is to speak with your Mayo care team either by booking a followup appointment or posting the question to your account on the patient portal.

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Hi, @bosco17. It is a good to hear about your 12 years with your liver. I am currently enjoying 11 years.

You said that you recently had some abnormal liver function tests. Who is advising that you have a liver biopsy? In my experience, it is the doctor who is monitoring my post transplant care, that decides on procedures and makes the necessary referrals for me. There are many causes for elevated liver function labs, and a liver biopsy sounds to me like a rather drastic step, unless you are having other symptoms. If I were you, I would contact the doctor for more information.
Let us know what you find out.

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@rosemarya

Hi, @bosco17. It is a good to hear about your 12 years with your liver. I am currently enjoying 11 years.

You said that you recently had some abnormal liver function tests. Who is advising that you have a liver biopsy? In my experience, it is the doctor who is monitoring my post transplant care, that decides on procedures and makes the necessary referrals for me. There are many causes for elevated liver function labs, and a liver biopsy sounds to me like a rather drastic step, unless you are having other symptoms. If I were you, I would contact the doctor for more information.
Let us know what you find out.

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You are missing my point!!!!!! I will follow up with my transplant team BUT the question is —Because I was transplanted in a different hospital Will the mayo clinic perform a biopsy if I need one or do I have to go where I was transplanted in NY.

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@bosco17

You are missing my point!!!!!! I will follow up with my transplant team BUT the question is —Because I was transplanted in a different hospital Will the mayo clinic perform a biopsy if I need one or do I have to go where I was transplanted in NY.

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@bosco17, Sorry you are frustrated not getting a specific answer to your question but no one on Connect can answer your question. The only person or persons who can give you an answer is your Mayo Clinic care team which is why @colleenyoung and @rosemarya suggested that you contact them through your Mayo Clinic patient portal. I use the patient portal all the time for different concerns that I have and they are very responsive. Hope this helps…

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@bosco17

You are missing my point!!!!!! I will follow up with my transplant team BUT the question is —Because I was transplanted in a different hospital Will the mayo clinic perform a biopsy if I need one or do I have to go where I was transplanted in NY.

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@bosco17, I am aware that different transplant centers might have different criteria and rules that they follow in regards to their transplant patients. In my situation, my transplant team is at Mayo. I live 800 miles away and my local provider has on occasion been requested by my transplant team to schedule a test or procedure at a local facility. It is a cooperative effort between medical professionals. It works for me so I don't have to travel between my annual post transplant evaluations.

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@bosco17

You are missing my point!!!!!! I will follow up with my transplant team BUT the question is —Because I was transplanted in a different hospital Will the mayo clinic perform a biopsy if I need one or do I have to go where I was transplanted in NY.

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@bosco17 Your team at Mayo Clinic will be the best ones to answer that for you. I can tell you my husband's experience. He had a kidney transplant at Scripps Green Hospital in La Jolla [CA] on 10/1/16. He had been going there each year for his annual evaluation and checkup. This year, he has now relocated to southern Oregon, so the transplant center at Good Samaritan in Portland [OR] is now handling his case, and requested his records from Scripps. When he went for his first visit there in early Sept, their protocol is to do a biopsy on his native kidney, which was different from the former protocol. Biopsies are not an everyday occurrence, so I would check with your team and ask their approach to your situation.
Ginger

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