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Diagnosed w/CAD prior to mitral valve repair. 68 yo non-smoking female. Taking Crestor & metoprolol. Scared & depressed.
Here is an article everyone should be aware if. It talks about a form of Amyloidosis but is important for every person with and disorder or is a caregiver for such a person.
Subtle neuropsychiatric and neu - Unknown (Subtle-neuropsychiatric-and-neu-Unknown.pdf)
Thank you for replying. I don't always walk or eat right. I do take the meds I hate. This all took me by surprise and I haven't reacted well to the news. In fact it's consumed me. I'm trying to change my thinking.
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I experienced a Major Stroke and realized I needed to change my attitude and my diet! I'm really trying to walk daily and make better decisions about my eating habits!
I feel a lot less sorry for myself after reading your post. I need to have a better attitude and take things one day at a time. How long ago was your stroke?
I can’t relate personally to your specific condition but I can relate when you say it consumes you. I will say a prayer for you and please know you are not alone going through something this scary. Positivity sent your way from me.🙂
@jackiekos Having heart surgery is scary .I had a triple by pass I was 56 Im now 76 you can and will be better for it I was in so much pain,short of breath the surgery was a blessing for me .My friend Sandy had a 7by pass plus they had to replace her mitral valve she survived then she got breast cancer but survived that also. Your young ,are you in good physical health ? Dr,s know what they are doing research is always improving medicine.
My Stroke was on May 4, 2001! The only reason I actually SURVIVED, was that my Roommate, left for work at 7:00 a.m. and my Stroke occurred at 5:00 a.m., according to my Medical Records! I was found unconscious in a pool of blood next to my bed! I now have Epilepsy, Swallowing issues, Sleep Apnea, Restless Leg Syndrome, etcetera!! I am participating in many Stroke Support Groups, will be starting an Aphasia Group, starting a part-time job, and Publishing my Book about Coming back from Stroke! The actual title of my book, is "Misunderstood and Resilient"! The book is written in memory of my Mother, who passed away 18 years ago yesterday 10/28/00! The book's title represents my ability to bounce back from being seen and treated as a"Psychiatric Patient "all of my life! I had a misdiagnosed Non-Verbal Learning Disability; which was always treated as "PSYCHOLOGICAL"; therefore I was on 19 medications, including the Birth Control Pill at the time of my Stroke! I was put on those 19 medications to "SHUT ME UP"!!!!! I was thrown out of 7 Physicians practices at one time, was blocked from Primary Care, Neuropsychological Care, Neurological Care, Sleep Physician, Epileptologist, Social Worker, and Neuropsychiatic Care! It frankly took me from 10/09/14 to 6/27/15, to receive ANY HEALTHCARE, PERIOD!!!!! I am honestly, writing my book, so NO-ONE ELSE, has to FEEL they are NOTHING and therefore DO NOT DESERVE APPROPRIATE, NECESSARY CARE, regardless of their DISABILITY!!!!! Physicians frankly take an Oath "FIRST DO NO HARM"! That ENTIRE TEAM of PHYSICIANS is STILL ALLOWED to PRACTICE MEDICINE, WITHOUT CONSEQUENCES from the BOARD of REGISTRATION in MASSACHUSETTS! What did I receive ,MY ENTIRE MEDICAL RECORDS PLASTERED ALL OVER THE INTERNET, WITHOUT MY PERMISSION or KNOWLEDGE, PERIOD!!!!! NOW YOU UNDERSTAND the REASON I am WRITING and PUBLISHING MY BOOK!!!!! My best friend was the only person, who figured out why no-one would take me as their PATIENT! I KNOW the DIFFERENCE, between actual "CARING PHYSICIANS versus PHYSICIANS who have ABSOLUTELY NO SHAME, ARE PREJUDICED, MEAN, JUDGMENTAL, and MOST IMPORTANT, NON-CARING PERIOD!!!!!
@rachelanne So sorry you went through all that/this now but you are a great example of survivors You are strong and your on advocate congratulations for yor acheivments
Today I see my cardiologist for an echocardiogram and one year follow up after my mitral valve repair one year ago. Keeping my fingers crossed. Thank you all for responding. It helps to know you're not alone.
Thank you so much for the encouraging words! I learned to advocate for myself, because that is exactly what my late Mother taught me, in terms of standing up to those who wish to destroy or ruin my reputation and life! This is the reason I am writing and WILL PUBLISH MY BOOK, entitled "MISUNDERSTOOD and RESILIENT!!!!!" I became my own advocate, because no-one else would help me, especially most of my family (unfortunately)! I was therefore on my own, and had to decide if I was going to "LIE DOWN" and LET THOSE PHYSICIANS who PUT ME IN HARMS WAY, WIN and NOT HAVE ANY CONSEQUENCES to THEIR CAREERS!!!!! I now have the ability to HELP OTHERS like MYSELF, who are DISABLED through NO FAULT of OUR OWN; but are SICK and TIRED of BEING MISTREATED by LOUSY MONEY-HUNGRY, HIGH-POWERED PHYSICIANS and HOSPITALS, who DO NOT CARE ABOUT THEIR INDIVIDUAL PATIENTS, or THEIR RIGHTS to DECENT MEDICAL CARE UNDER the CONSTITUTION, :PERIOD!!!!! I am so HAPPY I am able to have come back from a Major Stroke at age 40; 7 and 1/4 months after my Mother's Death!!!! It is a PRIVILEDGE to LIVE MY OWN LIFE, WITHOUT PREJUDICE, DISCRIMINATION, and RECRIMINATIONS from those PHYSICIANS who all" MUST SIGN an OATH ""FIRST DO NO HARM!!!!!", in order for them to receive LICENCE to PRACTICE MEDICINE, PERIOD!!!!! I am also thinking of either a second Career in Child Advocacy, or in helping out those in Public Office, whom CARE ABOUT THOSE WITH DISABILITIES!!!!!
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