Hello all, I’ve been reading away and am so grateful to be a part of such a great group. I have been to 2 university clinics, first UNC and now Duke as a second opinion. 18 mos ago I was told I had M. Fortuitum which is a different tx than big 3, and Duke told me MAC and put me on the big 3. Following guidance from the group I looked closely at my last cultures and they show MAC:”presumptive M chelonae”. Is anyone familiar w/ their organism labeled presumptive? It’s close to the M fortuitum… ive been seeing a respected pulmonologist but have a second opinion w infectious disease tomorrow. Looking forward to the info but Leary – he’s supposed to be the state expert & poo poo’d my initial
Diagnosis. It doesn’t affect everyone but i was so tired I had trouble gettting up in the am, needed naps all the time. I’ve improved on big 3 but feel I’ve plateaued and am worried the abtibx combo is a little off re: getting the umbrella tx instead of for specific MAC organism. Am I making sense? While so helpful, knowing this small detail & motivation to be better I’ve been pretty anxious.