Currently buy on Amazon but can only get one box at a time and it’s $2 a dose. Any suggestions?
Interested in more discussions like this? Go to the MAC & Bronchiectasis group.
The harvest of old age: Medicare and AARP supplemental diminish the pain or at least obscure it.
I guess when the Phoenicians invented money they intended it to be spent. Don. 😧
I gave up trying to get Medicare to cover it so I get my saline at Walgreens and pay for it myself. I use a Goodrx coupon and it costs about $15 for enough for 2x a day for a month. If you go to the Goodrx website and put 7% sodium chloride or saline in the search bar, you will see a list of places where you can get it near you and the price. Your doctor needs to send a prescription to your choice and you need to tell the pharmacy that you have a goodrx coupon. It is a little cheaper at some other pharmacies near me but the Walgreens I use has a drive through window.
@thumperguy, @rits, @marlin I'm on Medicare, but have Kaiser and my pulmonary doctor prescribed me my saline at 3-month supply so I only pay my co-pay of $5. She prescribed this for me after finding out I was making my own salline! I think she approved it since it saves the system more money by keeping me out of the hospital and off antibiotics.
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I'm glad your doc was willing. When my first pulmonologist (who had never changed his treatment protocol since he first heard of the Big 3) was unwilling, I showed the info to my primary, and she prescribed it "as a trial." My copay under Medicare with a Blue Cross supplement is $10 for 3 months through Walgreens. When my Texas Walgreens claimed they couldn't get it, the pharmacist in MN sent them the right numbers for ordering it because he said it was "silly" to ship something they could provide locally.
I use a Salt pipe. It's cheaper, and I get the same results.
I am also with Kaiser in Northern California and my doctor prescribes a 10% saline solution which Kaiser pays for. Is anyone part of the northern California Kaiser system? I am looking for a pulmonologist who is willing to collaborate with National Jewish health doctors.
@ljfoo I'm in KP Santa Rosa…just sent you a private message.
I'm curious – how do you figure out the dose of salt you are inhaling? This looks easier than hauling around a nebulizer.
There isn't a dosage required. You simply fill the pipe about half-way, with pink Himalayan salt. I use it while watching TV. Breathing in, the air passes through the salt, then exhale through your nose. I find it works really well to loosen mucus, making it easier to expel from my body. Very inexpensive, easy to use and portable.
Where do u get a salt pipe?
I bought mine on Amazon
The reason for my question about dosage is that 4ml of 7% sodium, nebbed once or twice a day, has kept my MAC infection from flaring up for almost 3 years, and kept me off antibiotics. Research has shown that 7% concentration is lethal to most mycobacteria.
I was wondering if there is a way to measure how much salt one gets from the pipe, because it might be easier than the neb. How much salt do you "consume" by inhaling in a typical week or month? Maybe I can calculate how it equates to the solution.
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