Hi @lottyfeeble21,
We were wondering how you were doing? Did you have the surgery? We’d love to hear back from you.
Everything went great. Doing great now with my transplant. All stuff forward of us.
Liked by Kanaaz Pereira, Connect Moderator
Everyones recovery is different. I was pretty conditioned beforehand so that made it easier for me. But the first week in the hospital is the worst, the next week at home is better. I was able to do my walks 3 times a day, each time I went further (measured in houses I passed). By 3 weeks I was walking in miles. At 4 weeks I began using the bike at the gym – doing working up to 10 miles. The pain at home was tolerable. I used narcotics the first week and then only at night the following weeks with Tylenol as needed. I didn’t have sternum pain so much as back pain. It took 4-5 weeks for my back to feel better. I went back to work at about 6.5 weeks.
Mayo Clinic is one of the best places in the world to get this done. Many people travel to the Minnesota location from around the world. I travelled there from Los Angeles. Cleveland Clinic is another place. If you cannot make that trip, you need to at least find a place that does the surgery often. Mayo does around 200 of these surgeries a year. Experience with this particular surgery is paramount.
I have some resources on my blog for myectomy patients you may want to check out:
http://www.hcmbeat.com/resources/resources-for-patients-about-myectomy
Thank you Dave. I am a pretty positive person and hope that will help me through this. I am scheduled for surgery on April 17th 2018 with Dr Schaff in Rochester. I live in Fl but decided he was the best Dr for me. Who did your surgery? I will appreciate any advice you can give me. Hope you are doing well Thanks!
Hi @jh56, my husband had a septal myectomy and a triple bypass on December 17 of this year with Dr Schaff. You are in great hands with Dr Schaff and with all the post surgery nurses at St Mary's. My husband is recovery well and will finish his cardiac rehab next week. Make sure you have an electric recliner to sit in and sleep in when you arrive home.
Liked by Jamie Olson
Hi @jh56, how are you doing? I have to say You are in good hands..:)
Be positive and hang out with happy people. Dr Schaff is awesome.
My husband is doing amazing. It's been 3 weeks since he had his surgery. He started working from home for couple hours a day.
Only problem he has now is shoulder pain because he has to sleep on his back which in general he never did.
Things that my husband liked after surgery was:
-Loose pants
-Reclining bed ( you can rent it and some insurance will pay for it if you have a doctor's note)
-electric warm blanket.
Please feel free to call me or email me if you have more questions.
@kanaazpereira
Hi @lottyfeeble21
I hope everything went well with your procedure? When you are able to, we would love to hear back from you and get an update about your progress.