What Distracts You From the Pain?

Posted by Jen, Alumna Mentor @sandytoes14, Oct 4, 2016

Hello!
We share what works (and what doesn’t) for us as far as medicines and surgeries,etc.
What works for you to give yourself a little break? I’m presently researching family history from the comfort of my recliner.

@artscaping

Enjoyable distractions. You all have great ideas. I would also add at home Yoga as a practice not a work out. I have a Yoga, Mindfulness and Meditation professional who put together a 20 minute program for me. The mind and the body together is best. And I make it a morning ritual. Then I use several types of Medical Marijuana to stay under the pain that escalates during the day. I suffer from Chronic Myofasial Pain and Tiny fiber neuropathy with shooting electric shock pain and “needles” in arms and legs. Has anyone heard of benefits from bariatric chambers? My pain is at its worst when the barometer goes south and there is a low pressure weather system. I wish you all freedom from suffering and the causes of suffering.

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TV, music, meditation (have app on my phone), my family and friends (the best), ice or heat, massage, therapist, acupuncture, many things can work. Bio feedback and Mindfulness classes

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Mindfulness meditation helps. But, I hace had 2 surgeries for achalesia. POEM.and Fundoplasty. The.last has left me with continued chronic pain but als incessant intense long burps to relieve pressure. This makes it very difficult to control my breath as I was taught in my classes. I was also exposed to walking meditation. I do that when I can. I have difficulty reading because the pain distracts me. I have seen people posting hobbies to keep their mind off it. I cannot think of one. Not sure i could paint or color. Mayb someone has some other ideas on meditation. Seeing a pain clinic, pain psychologist and recently a psychiatrist to help deal with the anxiety
It took over 2 and a half years to diagnose the Achalesia and I thought the first surgery would cure it. No and neither has the second. The long term of it all ( nearly 4 yrs.), and lacking hope that further treatment will help is making it difficult to deal with the pain.
I apologize for rambling on, I would just like to get to the point where i could do some work from home to alleviate the extreme financial problems this has created. I could do some now- but cant find anything. The pain is really difficult when coupled with financial pressure like fear of losing our home.
I may try writing to distract me.

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@ed32

Mindfulness meditation helps. But, I hace had 2 surgeries for achalesia. POEM.and Fundoplasty. The.last has left me with continued chronic pain but als incessant intense long burps to relieve pressure. This makes it very difficult to control my breath as I was taught in my classes. I was also exposed to walking meditation. I do that when I can. I have difficulty reading because the pain distracts me. I have seen people posting hobbies to keep their mind off it. I cannot think of one. Not sure i could paint or color. Mayb someone has some other ideas on meditation. Seeing a pain clinic, pain psychologist and recently a psychiatrist to help deal with the anxiety
It took over 2 and a half years to diagnose the Achalesia and I thought the first surgery would cure it. No and neither has the second. The long term of it all ( nearly 4 yrs.), and lacking hope that further treatment will help is making it difficult to deal with the pain.
I apologize for rambling on, I would just like to get to the point where i could do some work from home to alleviate the extreme financial problems this has created. I could do some now- but cant find anything. The pain is really difficult when coupled with financial pressure like fear of losing our home.
I may try writing to distract me.

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I find being out in nature is very calming. For those that can walk or walk sometimes – is one way to be out in nature. I find that just sitting in my backyard or on front porch works most of the time and I walk when I can (I have three kinds of Arthritis and other issues of mobility). I have various hobbies and some are more difficult to do at different times due to various health issues such as inflammatory flares, etc. But when you have various hobbies you can switch of to others. Sometimes just being focused on relaxing- a letting go rather than the movements of Yoga, Tai Chi. Each of us has to find what will work for us and experiment and give each new approach time to work.

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@susanlorrie

Thanks for the welcome. I have a great husband, wonderful animals that calm me. Ice cream, most specifically Blue Bunny Mini ice cream cones (with caramel). I try to take my mind of of it with coloring. I started this before it became a fad.

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@edieguinn ditto for me, only it is my wife who is a nurse!! If she can’t see it then I am faking. My kids are more supportive. 19lin

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I watch tv, if anything interesting is on, go on my laptop to read about stuff or listen to music. Talking to people helps if it is something stimulating to me which is hard to find others who are interested in the same things as I am. But when I have sciatic shooting pains nothing works. I just roll around on my bed and rub the area if I can reach it or do somethings that physical therapists have shown me although this does not work for long. After years of having these pains a retiring neurologists said to try muscle relaxants and they do help. Also sleeping if I can get to sleep, but that is really hard when I have shooting pain. I may try some of the things that people have listed here to see if it works. 19lin

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@19lin

I watch tv, if anything interesting is on, go on my laptop to read about stuff or listen to music. Talking to people helps if it is something stimulating to me which is hard to find others who are interested in the same things as I am. But when I have sciatic shooting pains nothing works. I just roll around on my bed and rub the area if I can reach it or do somethings that physical therapists have shown me although this does not work for long. After years of having these pains a retiring neurologists said to try muscle relaxants and they do help. Also sleeping if I can get to sleep, but that is really hard when I have shooting pain. I may try some of the things that people have listed here to see if it works. 19lin

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Thank you very much. I try the same things They help some. I mnow how bad it can be, I am glad to have someone to talk to sometimes. But my wife works. Hope you have as little pain as possible

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@ed32

Mindfulness meditation helps. But, I hace had 2 surgeries for achalesia. POEM.and Fundoplasty. The.last has left me with continued chronic pain but als incessant intense long burps to relieve pressure. This makes it very difficult to control my breath as I was taught in my classes. I was also exposed to walking meditation. I do that when I can. I have difficulty reading because the pain distracts me. I have seen people posting hobbies to keep their mind off it. I cannot think of one. Not sure i could paint or color. Mayb someone has some other ideas on meditation. Seeing a pain clinic, pain psychologist and recently a psychiatrist to help deal with the anxiety
It took over 2 and a half years to diagnose the Achalesia and I thought the first surgery would cure it. No and neither has the second. The long term of it all ( nearly 4 yrs.), and lacking hope that further treatment will help is making it difficult to deal with the pain.
I apologize for rambling on, I would just like to get to the point where i could do some work from home to alleviate the extreme financial problems this has created. I could do some now- but cant find anything. The pain is really difficult when coupled with financial pressure like fear of losing our home.
I may try writing to distract me.

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Thanks. I do a little yoga and I do meditate. Getting out does help. Sitting in my back yard looking at the Mountain now. Thanks again

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Knitting is my big stress reliever. While I’m knitting–if I’m not working on a complicated pattern–I listen to audiobooks on my Kindle. I’ve never knitted with 100% linen yarn before, and I’ve had some in my yarn “stash” for years. So now I’m knitting a summer top out of it. I kind of make up my patterns as I go along. Sometimes I borrow details from patterns I see in knitting magazines, and sometimes I just grab a stitch dictionary, page through it, and find something I like. The backs and the fronts of tops that I make are usually different but complementary, so that I can wear them front to back or back to front. Right now I’m using a really easy stitch that I found in a knitting magazine and listening to Bram Stoker’s Dracula, which I’d never read before. I normally knit in the evening and look forward to it all day while I’m working. Currently I don’t have any freelance projects to work on (I’m a freelance editor, proofreader, and translator ((German/English)), and I work for various publishers in the US), so I have time during the day to knit, also. Yaaaaay!

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To the group ::: to try and get my mind off the pain, I go to the pool at my gym and meet some wonderful friends, but I am worried that when September comes they cover the pool. We are able to use it when it is covered but not many people go and I am someone who needs people around to talk to. It gets myself out and I am not home getting depressed because my chronic pain and surgeries have taken all my hobbies, especially dancing and aerobics away from me.
I know the best thing is to get out of the house but boy is it hard to get motivated when you can’t do anything physical. By the way, today is my 72 year birthday and I have been married for 52 years next week and he has been so supportive and I have felt so guilty for what I have put him through. So if I can get some positive feedback from the connect group for feeling so guilty I would appreciate it. And yes if the situation was reversed I would be just as supportive but that doesn’t make me feel better. Thank you Marield65

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Marie, CONGRATULATIONS on your birthday AND on your anniversary! If you can, please try to lose the guilt. It is a soul-eater and a soul-destroyer. It does nothing good for you–or for your husband. Have you tried therapy for the guilt? I hope you have or that you do. I think we ALL have something(s) that we feel guilty about, and it’s SUCH a wasted emotion. It just eats you alive. As you say, your husband has been so supportive. And as you say, you’d do the same for him if the situation were reversed.

Are there any other hobbies you can get involved with, other than dancing and aerobics? Do you paint or draw or sculpt or knit or crochet or do other needlework? Have you tried kumihimo (sp?), an astounding kind of beautiful braiding? Look into the art classes available at your local art museum (if you have one) or at your local senior center. (I’ve taught knitting at our local senior center, and my students ranged in age from 11 up to about 90. So, no, not only “old folks” go to the senior center. I tried out tai chi at my senior center. I was one of the youngest people in the class, and everybody else was astounding at it–except me.) There’s also chair yoga, which is very gentle yoga, and you might be able to do that. It does wonders for limbering you up. Is there a musical instrument you’ve always had a hankering to play? I’ll bet there are group lessons available. Anyway, PLEASE explore some creative outlets. You may think you have no talent, but, yes, YOU DO. We all do!

Please do get help about the guilt, if you don’t already. It’s taking up too much real estate in your brain, and it needs to be evicted.

Hugs to you,
Hazel

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@marieheld65
Marie
Let me first wish you a happy birthday and happy anniversary! It is so difficult to lose the active life we once had. I used to feel guilty about the limited things I could do. Like you I heard the ‘shoe on the other foot’ theory. As time passed I felt more depressed. Then my sweet husband said to me that he was grateful for the days I could do something fun outside the home. I realized I wasn’t feeling as much guilt as I was loss of what I had, who I was. I mourned the loss and began self- affirmations at the end of each day and soon began to feel better.
Phrases such as:
• Yay! You took a shower today!
• I’m proud of you for getting dressed/making dinner
• I walked the dog to the corner!
It was around that time I was introduced to the Spoon Theory. Simply put, we start each day with a number of “Spoons”. We use the spoons for everything we do. For those of us who are limited, not by our mind but by our bodies, use ‘spoons’ at a faster rate and run out. Here is a link to The Spoon Theory written by Christine Miserandino
https://butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/
One of the things I love about our community on Connect is the cyber friendships we develop. I’ll bet you don’t give yourself credit for what you contribute to these boards. Each of us is learning by sharing. While it may not be face to face contact that you are used to by going to the pool, dancing, or aerobics I think it is better than walling yourself off from the outside. Is there a local library or daycare where you could go and read to children? Or maybe a Veterans home to go to visit those who have no one?

Jen

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Hi, Jen,

Like your posts a lot. My partner has MS and introduced me to the Spoon Theory. She reminds me of it when I nag her to do something. Mostly, I remember. Thanks again. Michael

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