Hello!
We share what works (and what doesn’t) for us as far as medicines and surgeries,etc.
What works for you to give yourself a little break? I’m presently researching family history from the comfort of my recliner.
@sandytoes14
hi and good morning. I just joined recently, but I have several things I do: sometimes i do all/most in 1 day; other times just 1 or 2 or a few. I enjoy adult coloring books, because it’s very calming, lessens my anxiety and allows me to do more focusing on it than my constant pain. I also like to do crafts and kits, like simple painting (I stink at it, but it’s fun! lol!), tile painting, making magnets, positive feedback decorated notes to put in places around the house where I can see them often; making soap, and more. I can’t sit long or stand long, but I will use a kitchen counter and stand sometimes, or use pillows on the couch, whatever makes me the most comfortable at that moment. Since I joined this awesome group, I have a little more hope that I might have a little less pain, make good friends, and know I’m not alone. Thank you all for being YOU!
hugs,
Clownscrytoo
@sandytoes14
hi and good morning. I just joined recently, but I have several things I do: sometimes i do all/most in 1 day; other times just 1 or 2 or a few. I enjoy adult coloring books, because it’s very calming, lessens my anxiety and allows me to do more focusing on it than my constant pain. I also like to do crafts and kits, like simple painting (I stink at it, but it’s fun! lol!), tile painting, making magnets, positive feedback decorated notes to put in places around the house where I can see them often; making soap, and more. I can’t sit long or stand long, but I will use a kitchen counter and stand sometimes, or use pillows on the couch, whatever makes me the most comfortable at that moment. Since I joined this awesome group, I have a little more hope that I might have a little less pain, make good friends, and know I’m not alone. Thank you all for being YOU!
hugs,
Clownscrytoo
@sandytoes14
hi and good morning. I just joined recently, but I have several things I do: sometimes i do all/most in 1 day; other times just 1 or 2 or a few. I enjoy adult coloring books, because it’s very calming, lessens my anxiety and allows me to do more focusing on it than my constant pain. I also like to do crafts and kits, like simple painting (I stink at it, but it’s fun! lol!), tile painting, making magnets, positive feedback decorated notes to put in places around the house where I can see them often; making soap, and more. I can’t sit long or stand long, but I will use a kitchen counter and stand sometimes, or use pillows on the couch, whatever makes me the most comfortable at that moment. Since I joined this awesome group, I have a little more hope that I might have a little less pain, make good friends, and know I’m not alone. Thank you all for being YOU!
hugs,
Clownscrytoo
@edieguinn
Thank you. Not always easy, but not impossible either! lol! For me, laughter is oxygen to my soul. I hope & pray you find relief of any kind soon, Edie.
hugz,
Clownscrytoo
SandyToes,
I am working with a good doctor to wean me off the medication very slowly. I should not have sounded as if I didn’t appreciate my doctor. Unfortunately he changed groups and they wanted him to wean me down more quickly. It is my greatest wish to get completely off.
Oh happy day! It’s my 19th anniversary today. I have the most wonderful husband. Please send positive thoughts and/or prayers for him. He an unknown lung infection. I am desperately hoping it is not cancer. The past 19 years have been the best of my life! I could not live with out him.@susanlorrie
@susanlorie
a belated Happy Anny to you and your husband! Positive thoughts and prayers that he gets well soon and that you find pain relief.
Clownscrytoo
@sandytoes14
hi and good morning. I just joined recently, but I have several things I do: sometimes i do all/most in 1 day; other times just 1 or 2 or a few. I enjoy adult coloring books, because it’s very calming, lessens my anxiety and allows me to do more focusing on it than my constant pain. I also like to do crafts and kits, like simple painting (I stink at it, but it’s fun! lol!), tile painting, making magnets, positive feedback decorated notes to put in places around the house where I can see them often; making soap, and more. I can’t sit long or stand long, but I will use a kitchen counter and stand sometimes, or use pillows on the couch, whatever makes me the most comfortable at that moment. Since I joined this awesome group, I have a little more hope that I might have a little less pain, make good friends, and know I’m not alone. Thank you all for being YOU!
hugs,
Clownscrytoo
I love all that you do–I like doing different things too. I like this group of people because we can all empathize but life each other up. Some ‘support’ groups I have been well, downers! Thanks for sharing!
@sandytoes14
hi and good morning. I just joined recently, but I have several things I do: sometimes i do all/most in 1 day; other times just 1 or 2 or a few. I enjoy adult coloring books, because it’s very calming, lessens my anxiety and allows me to do more focusing on it than my constant pain. I also like to do crafts and kits, like simple painting (I stink at it, but it’s fun! lol!), tile painting, making magnets, positive feedback decorated notes to put in places around the house where I can see them often; making soap, and more. I can’t sit long or stand long, but I will use a kitchen counter and stand sometimes, or use pillows on the couch, whatever makes me the most comfortable at that moment. Since I joined this awesome group, I have a little more hope that I might have a little less pain, make good friends, and know I’m not alone. Thank you all for being YOU!
hugs,
Clownscrytoo
Thank you, @sandytoes14! You are so right. My one worry when I joined was that it might just bring me down, but it definitely hasn’t! I feel very comfortable saying what I need to and empathizing with others.take care,Clownscrytoo
Chris Trout, Volunteer Mentor | @artscaping | Jul 12, 2017
Enjoyable distractions. You all have great ideas. I would also add at home Yoga as a practice not a work out. I have a Yoga, Mindfulness and Meditation professional who put together a 20 minute program for me. The mind and the body together is best. And I make it a morning ritual. Then I use several types of Medical Marijuana to stay under the pain that escalates during the day. I suffer from Chronic Myofasial Pain and Tiny fiber neuropathy with shooting electric shock pain and “needles” in arms and legs. Has anyone heard of benefits from bariatric chambers? My pain is at its worst when the barometer goes south and there is a low pressure weather system. I wish you all freedom from suffering and the causes of suffering.
Enjoyable distractions. You all have great ideas. I would also add at home Yoga as a practice not a work out. I have a Yoga, Mindfulness and Meditation professional who put together a 20 minute program for me. The mind and the body together is best. And I make it a morning ritual. Then I use several types of Medical Marijuana to stay under the pain that escalates during the day. I suffer from Chronic Myofasial Pain and Tiny fiber neuropathy with shooting electric shock pain and “needles” in arms and legs. Has anyone heard of benefits from bariatric chambers? My pain is at its worst when the barometer goes south and there is a low pressure weather system. I wish you all freedom from suffering and the causes of suffering.
Hi. Just to thank you all for your ideas. I prefer to isolate myself and take drugs. Doesn’t seem like the best path after all. Maybe some of these will help.
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I understand the frustration when friends don’t get it. I too turn to my bible and am happy to have this forum to come where others understand.
@sandytoes14
hi and good morning. I just joined recently, but I have several things I do: sometimes i do all/most in 1 day; other times just 1 or 2 or a few. I enjoy adult coloring books, because it’s very calming, lessens my anxiety and allows me to do more focusing on it than my constant pain. I also like to do crafts and kits, like simple painting (I stink at it, but it’s fun! lol!), tile painting, making magnets, positive feedback decorated notes to put in places around the house where I can see them often; making soap, and more. I can’t sit long or stand long, but I will use a kitchen counter and stand sometimes, or use pillows on the couch, whatever makes me the most comfortable at that moment. Since I joined this awesome group, I have a little more hope that I might have a little less pain, make good friends, and know I’m not alone. Thank you all for being YOU!
hugs,
Clownscrytoo
You go! Have to be distracted and upbeat!
@edieguinn
Thank you. Not always easy, but not impossible either! lol! For me, laughter is oxygen to my soul. I hope & pray you find relief of any kind soon, Edie.
hugz,
Clownscrytoo
@susanlorie
a belated Happy Anny to you and your husband! Positive thoughts and prayers that he gets well soon and that you find pain relief.
Clownscrytoo
I love all that you do–I like doing different things too. I like this group of people because we can all empathize but life each other up. Some ‘support’ groups I have been well, downers! Thanks for sharing!
ADULT COLOURING BOOKS, with good Faber Castell pencils. Gr8 music. Light exercise at home on floor mat. NNN OOOO STRESS(:-)
Thank you, @sandytoes14! You are so right. My one worry when I joined was that it might just bring me down, but it definitely hasn’t! I feel very comfortable saying what I need to and empathizing with others.take care,Clownscrytoo
There are so many great coloring books out now! I will have to check out the Faber Castell pencils.
My husband is hooked now too!! If it hurts sitting or standing I just move about a bit. Maybe sitting on saddle chair too.
Enjoyable distractions. You all have great ideas. I would also add at home Yoga as a practice not a work out. I have a Yoga, Mindfulness and Meditation professional who put together a 20 minute program for me. The mind and the body together is best. And I make it a morning ritual. Then I use several types of Medical Marijuana to stay under the pain that escalates during the day. I suffer from Chronic Myofasial Pain and Tiny fiber neuropathy with shooting electric shock pain and “needles” in arms and legs. Has anyone heard of benefits from bariatric chambers? My pain is at its worst when the barometer goes south and there is a low pressure weather system. I wish you all freedom from suffering and the causes of suffering.
Hi. Just to thank you all for your ideas. I prefer to isolate myself and take drugs. Doesn’t seem like the best path after all. Maybe some of these will help.