Jen, Volunteer Mentor
@sandytoes14
@sandytoes14
Posts: 502
Joined: Mar 22, 2016
What Distracts You From the Pain?
Hello!
We share what works (and what doesn’t) for us as far as medicines and surgeries,etc.
What works for you to give yourself a little break? I’m presently researching family history from the comfort of my recliner.
clownscrytoo
@clownscrytoo
@clownscrytoo
Posts: 16
Joined: Oct 19, 2016
@susanlorrie SandyToes,
I am working with a good doctor to wean me off the medication very slowly. I should not have sounded as if I didn’t appreciate my doctor. Unfortunately he changed groups and they wanted him to wean me down more quickly. It is my greatest wish to get completely off.
Oh happy day! It’s my 19th anniversary today. I have the most wonderful husband. Please send positive thoughts and/or prayers for him. He an unknown lung infection. I am desperately hoping it is not cancer. The past 19 years have been the best of my life! I could not live with out him.@susanlorrie
@susanlorie
a belated Happy Anny to you and your husband! Positive thoughts and prayers that he gets well soon and that you find pain relief.
Clownscrytoo
Liked by Parus
Jen, Volunteer Mentor
@sandytoes14
@sandytoes14
Posts: 502
Joined: Mar 22, 2016
@clownscrytoo @sandytoes14
hi and good morning. I just joined recently, but I have several things I do: sometimes i do all/most in 1 day; other times just 1 or 2 or a few. I enjoy adult coloring books, because it’s very calming, lessens my anxiety and allows me to do more focusing on it than my constant pain. I also like to do crafts and kits, like simple painting (I stink at it, but it’s fun! lol!), tile painting, making magnets, positive feedback decorated notes to put in places around the house where I can see them often; making soap, and more. I can’t sit long or stand long, but I will use a kitchen counter and stand sometimes, or use pillows on the couch, whatever makes me the most comfortable at that moment. Since I joined this awesome group, I have a little more hope that I might have a little less pain, make good friends, and know I’m not alone. Thank you all for being YOU!
hugs,
Clownscrytoo
I love all that you do–I like doing different things too. I like this group of people because we can all empathize but life each other up. Some ‘support’ groups I have been well, downers! Thanks for sharing!
Liked by Colleen Young, Connect Director, edieguinn, clownscrytoo
kayelle
@kayelle
@kayelle
Posts: 24
Joined: May 26, 2016
clownscrytoo
@clownscrytoo
@clownscrytoo
Posts: 16
Joined: Oct 19, 2016
@clownscrytoo @sandytoes14
hi and good morning. I just joined recently, but I have several things I do: sometimes i do all/most in 1 day; other times just 1 or 2 or a few. I enjoy adult coloring books, because it’s very calming, lessens my anxiety and allows me to do more focusing on it than my constant pain. I also like to do crafts and kits, like simple painting (I stink at it, but it’s fun! lol!), tile painting, making magnets, positive feedback decorated notes to put in places around the house where I can see them often; making soap, and more. I can’t sit long or stand long, but I will use a kitchen counter and stand sometimes, or use pillows on the couch, whatever makes me the most comfortable at that moment. Since I joined this awesome group, I have a little more hope that I might have a little less pain, make good friends, and know I’m not alone. Thank you all for being YOU!
hugs,
Clownscrytoo
Thank you, @sandytoes14! You are so right. My one worry when I joined was that it might just bring me down, but it definitely hasn’t! I feel very comfortable saying what I need to and empathizing with others.take care,Clownscrytoo
Liked by edieguinn
Jen, Volunteer Mentor
@sandytoes14
@sandytoes14
Posts: 502
Joined: Mar 22, 2016
kayelle
@kayelle
@kayelle
Posts: 24
Joined: May 26, 2016
Chris Trout
@artscaping
@artscaping
Posts: 285
Joined: Jul 11, 2017
Enjoyable distractions. You all have great ideas. I would also add at home Yoga as a practice not a work out. I have a Yoga, Mindfulness and Meditation professional who put together a 20 minute program for me. The mind and the body together is best. And I make it a morning ritual. Then I use several types of Medical Marijuana to stay under the pain that escalates during the day. I suffer from Chronic Myofasial Pain and Tiny fiber neuropathy with shooting electric shock pain and “needles” in arms and legs. Has anyone heard of benefits from bariatric chambers? My pain is at its worst when the barometer goes south and there is a low pressure weather system. I wish you all freedom from suffering and the causes of suffering.
Liked by Parus
ayankeeinnm
@ayankeeinnm
@ayankeeinnm
Posts: 32
Joined: Jul 11, 2017
@artscaping Enjoyable distractions. You all have great ideas. I would also add at home Yoga as a practice not a work out. I have a Yoga, Mindfulness and Meditation professional who put together a 20 minute program for me. The mind and the body together is best. And I make it a morning ritual. Then I use several types of Medical Marijuana to stay under the pain that escalates during the day. I suffer from Chronic Myofasial Pain and Tiny fiber neuropathy with shooting electric shock pain and “needles” in arms and legs. Has anyone heard of benefits from bariatric chambers? My pain is at its worst when the barometer goes south and there is a low pressure weather system. I wish you all freedom from suffering and the causes of suffering.
Hi. Just to thank you all for your ideas. I prefer to isolate myself and take drugs. Doesn’t seem like the best path after all. Maybe some of these will help.
Liked by Jen, Volunteer Mentor
jenapower
@jenapower
@jenapower
Posts: 204
Joined: Feb 21, 2017
@artscaping Enjoyable distractions. You all have great ideas. I would also add at home Yoga as a practice not a work out. I have a Yoga, Mindfulness and Meditation professional who put together a 20 minute program for me. The mind and the body together is best. And I make it a morning ritual. Then I use several types of Medical Marijuana to stay under the pain that escalates during the day. I suffer from Chronic Myofasial Pain and Tiny fiber neuropathy with shooting electric shock pain and “needles” in arms and legs. Has anyone heard of benefits from bariatric chambers? My pain is at its worst when the barometer goes south and there is a low pressure weather system. I wish you all freedom from suffering and the causes of suffering.
TV, music, meditation (have app on my phone), my family and friends (the best), ice or heat, massage, therapist, acupuncture, many things can work. Bio feedback and Mindfulness classes
ed32
@ed32
@ed32
Posts: 26
Joined: Jul 12, 2017
Mindfulness meditation helps. But, I hace had 2 surgeries for achalesia. POEM.and Fundoplasty. The.last has left me with continued chronic pain but als incessant intense long burps to relieve pressure. This makes it very difficult to control my breath as I was taught in my classes. I was also exposed to walking meditation. I do that when I can. I have difficulty reading because the pain distracts me. I have seen people posting hobbies to keep their mind off it. I cannot think of one. Not sure i could paint or color. Mayb someone has some other ideas on meditation. Seeing a pain clinic, pain psychologist and recently a psychiatrist to help deal with the anxiety
It took over 2 and a half years to diagnose the Achalesia and I thought the first surgery would cure it. No and neither has the second. The long term of it all ( nearly 4 yrs.), and lacking hope that further treatment will help is making it difficult to deal with the pain.
I apologize for rambling on, I would just like to get to the point where i could do some work from home to alleviate the extreme financial problems this has created. I could do some now- but cant find anything. The pain is really difficult when coupled with financial pressure like fear of losing our home.
I may try writing to distract me.
Liked by Parus
smiles2016
@smiles2016
@smiles2016
Posts: 7
Joined: Jul 11, 2017
@ed32 Mindfulness meditation helps. But, I hace had 2 surgeries for achalesia. POEM.and Fundoplasty. The.last has left me with continued chronic pain but als incessant intense long burps to relieve pressure. This makes it very difficult to control my breath as I was taught in my classes. I was also exposed to walking meditation. I do that when I can. I have difficulty reading because the pain distracts me. I have seen people posting hobbies to keep their mind off it. I cannot think of one. Not sure i could paint or color. Mayb someone has some other ideas on meditation. Seeing a pain clinic, pain psychologist and recently a psychiatrist to help deal with the anxiety
It took over 2 and a half years to diagnose the Achalesia and I thought the first surgery would cure it. No and neither has the second. The long term of it all ( nearly 4 yrs.), and lacking hope that further treatment will help is making it difficult to deal with the pain.
I apologize for rambling on, I would just like to get to the point where i could do some work from home to alleviate the extreme financial problems this has created. I could do some now- but cant find anything. The pain is really difficult when coupled with financial pressure like fear of losing our home.
I may try writing to distract me.
I find being out in nature is very calming. For those that can walk or walk sometimes – is one way to be out in nature. I find that just sitting in my backyard or on front porch works most of the time and I walk when I can (I have three kinds of Arthritis and other issues of mobility). I have various hobbies and some are more difficult to do at different times due to various health issues such as inflammatory flares, etc. But when you have various hobbies you can switch of to others. Sometimes just being focused on relaxing- a letting go rather than the movements of Yoga, Tai Chi. Each of us has to find what will work for us and experiment and give each new approach time to work.
REPLY
19lin
@19lin
@19lin
Posts: 127
Joined: Mar 22, 2016
@susanlorrie Thanks for the welcome. I have a great husband, wonderful animals that calm me. Ice cream, most specifically Blue Bunny Mini ice cream cones (with caramel). I try to take my mind of of it with coloring. I started this before it became a fad.
@edieguinn ditto for me, only it is my wife who is a nurse!! If she can’t see it then I am faking. My kids are more supportive. 19lin
REPLY
19lin
@19lin
@19lin
Posts: 127
Joined: Mar 22, 2016
I watch tv, if anything interesting is on, go on my laptop to read about stuff or listen to music. Talking to people helps if it is something stimulating to me which is hard to find others who are interested in the same things as I am. But when I have sciatic shooting pains nothing works. I just roll around on my bed and rub the area if I can reach it or do somethings that physical therapists have shown me although this does not work for long. After years of having these pains a retiring neurologists said to try muscle relaxants and they do help. Also sleeping if I can get to sleep, but that is really hard when I have shooting pain. I may try some of the things that people have listed here to see if it works. 19lin
ed32
@ed32
@ed32
Posts: 26
Joined: Jul 12, 2017
@19lin I watch tv, if anything interesting is on, go on my laptop to read about stuff or listen to music. Talking to people helps if it is something stimulating to me which is hard to find others who are interested in the same things as I am. But when I have sciatic shooting pains nothing works. I just roll around on my bed and rub the area if I can reach it or do somethings that physical therapists have shown me although this does not work for long. After years of having these pains a retiring neurologists said to try muscle relaxants and they do help. Also sleeping if I can get to sleep, but that is really hard when I have shooting pain. I may try some of the things that people have listed here to see if it works. 19lin
Thank you very much. I try the same things They help some. I mnow how bad it can be, I am glad to have someone to talk to sometimes. But my wife works. Hope you have as little pain as possible
@clownscrytoo
In reply to @clownscrytoo
@edieguinn
Thank you. Not always easy, but not impossible either! lol! For me, laughter is oxygen to my soul. I hope & pray you find relief of any kind soon, Edie.
hugz,
Clownscrytoo
Liked by Colleen Young, Connect Director, edieguinn