What Distracts You From the Pain?

Posted by Jen, Alumna Mentor @sandytoes14, Oct 4, 2016

Hello!
We share what works (and what doesn’t) for us as far as medicines and surgeries,etc.
What works for you to give yourself a little break? I’m presently researching family history from the comfort of my recliner.

Interested in more discussions like this? Go to the Chronic Pain group.

@susanlorrie

Thanks for the welcome. I have a great husband, wonderful animals that calm me. Ice cream, most specifically Blue Bunny Mini ice cream cones (with caramel). I try to take my mind of of it with coloring. I started this before it became a fad.

Jump to this post

Mine as well, set up plating lines for the first 15 years, plus keeping 6 persons with hardware to rack. I loved doing it I moved all day…..

REPLY

Hi all
Exercise, particularly walking helps me. I just have to encourage myself to 'get going'. If my day isn't really bad, my grandchildren help as well.

REPLY

Currently nothing distracts me from pain on any level. Why see a pain specialist who lives in fear of prescribing narcotics and tells me to walk. The mental health therapist tells me there is nothing she can do for physical pain-talk to my PC who then refers me to a pain specialist. Ridiculous!!! Why see any of them???? Okay, in a very negative place and do not want to be. I have done everything I know to do and now have no options left!!!
Anyone understand???????????????????

REPLY

Yes, I understand you. I just saw a pain dr, my GP, a phychologist and my gastrologist for my terrible pain, which originates from bone spurs and arthritis
in my neck. The surgeons do not want to touch it, so they all tell me, live with it and take opioids. They help, but they have so many negative sides.
Make me tired all day, no appetit, no interest in friends and family any more and there is no one to help me to get off them. Wean yourself off slowly or sign yourself into a clinic for 39,000.00 for four weeks.
I have been living with my pain in the head now for years. Now I have digestion pain, caused by constipation. Been to the ER several times, when I got scarred, because it also effected my heart.
So I can feel for you very much!
But my husband and I will not give up. This is no way to live, if there must be a way to treat this pain!

REPLY

@edda So very true are your words. Have DDD of the neck and lumbar, twisted pelvis, OA (yes, and bone spurs), fibromyalgia, and ferocious TMJ which can cause terrible headaches. No one wants to prescribe narcotics and although not a fan it would be a relief at times. OTC's do nothing to help. I have done all I can as far as diet and exercise (limited). I live alone even though surrounded by neighbors and I learned the hard way to not try and make friends with those one lives in such close proximity. I would that others would not be so loud-this I can do nothing about.
Do you know what causes the head pain? Nothing much worse-especially when it goes past an ache to outright pain. I was kicked to the curb and no one believed how bad my head pain was. I finally found a TMJ specialist that saw the problem and treated it as best as he could. Only a soft diet and I do not eat gluten nor sugar. Thankful for blenders. Due to the fibro I can no longer eat anything in the Nightshade family as they cause a terrible flare…a real bummer.
I assuage myself by saying, "it could be worse" and this isn't much help either.

REPLY
@edda

Yes, I understand you. I just saw a pain dr, my GP, a phychologist and my gastrologist for my terrible pain, which originates from bone spurs and arthritis
in my neck. The surgeons do not want to touch it, so they all tell me, live with it and take opioids. They help, but they have so many negative sides.
Make me tired all day, no appetit, no interest in friends and family any more and there is no one to help me to get off them. Wean yourself off slowly or sign yourself into a clinic for 39,000.00 for four weeks.
I have been living with my pain in the head now for years. Now I have digestion pain, caused by constipation. Been to the ER several times, when I got scarred, because it also effected my heart.
So I can feel for you very much!
But my husband and I will not give up. This is no way to live, if there must be a way to treat this pain!

Jump to this post

I'm not sure how it would work with paint on your head but I got a pain pump and a catheter up my spine and now I get by on 3 mg of Dilaudid a day instead of the 250 2 mg of assorted opiates I was taking before the pain pump. I still have pain but it's quite manageable.

REPLY
@edda

Yes, I understand you. I just saw a pain dr, my GP, a phychologist and my gastrologist for my terrible pain, which originates from bone spurs and arthritis
in my neck. The surgeons do not want to touch it, so they all tell me, live with it and take opioids. They help, but they have so many negative sides.
Make me tired all day, no appetit, no interest in friends and family any more and there is no one to help me to get off them. Wean yourself off slowly or sign yourself into a clinic for 39,000.00 for four weeks.
I have been living with my pain in the head now for years. Now I have digestion pain, caused by constipation. Been to the ER several times, when I got scarred, because it also effected my heart.
So I can feel for you very much!
But my husband and I will not give up. This is no way to live, if there must be a way to treat this pain!

Jump to this post

Glad to hear your getting relieve from pain pump ,this might help others Im thinking of Oregongirl @Parus

REPLY
@edda

Yes, I understand you. I just saw a pain dr, my GP, a phychologist and my gastrologist for my terrible pain, which originates from bone spurs and arthritis
in my neck. The surgeons do not want to touch it, so they all tell me, live with it and take opioids. They help, but they have so many negative sides.
Make me tired all day, no appetit, no interest in friends and family any more and there is no one to help me to get off them. Wean yourself off slowly or sign yourself into a clinic for 39,000.00 for four weeks.
I have been living with my pain in the head now for years. Now I have digestion pain, caused by constipation. Been to the ER several times, when I got scarred, because it also effected my heart.
So I can feel for you very much!
But my husband and I will not give up. This is no way to live, if there must be a way to treat this pain!

Jump to this post

@wsh66 Always nice to hear about a positive outcome.

REPLY
@susanlorrie

Thanks for the welcome. I have a great husband, wonderful animals that calm me. Ice cream, most specifically Blue Bunny Mini ice cream cones (with caramel). I try to take my mind of of it with coloring. I started this before it became a fad.

Jump to this post

I have chronic pain also. I have been to five neurosurgeons tell me I need a rod, plate, screws and a fusion. I have declined as one told me I wouldn't be able to bend over to feed dogs, etc. I live in pain. I am so afraid the screws would only make my osteoporosis worse, fall out, etc. I also have fibromyalgia/ Need surgery on nose to be able to breathe. I have depression. The list goes on. People only laugh when I say I need surgery from my nose to my toes. Oh, I forgot to tell you my toes have decided to curve like a question mark, making me walk on my ingrown toe nails. Since I can hardly breathe, oh, yes, I have sleep apnea. Also, had one saliva gland removed and have Sjogrens Syndrome, dry mouth, full of cotton and it ain't cotton candy!

REPLY
@susanlorrie

Thanks for the welcome. I have a great husband, wonderful animals that calm me. Ice cream, most specifically Blue Bunny Mini ice cream cones (with caramel). I try to take my mind of of it with coloring. I started this before it became a fad.

Jump to this post

Same thing at my home. I'm a complainer who never feels good according to my mate.
Last year he had a operation
It was shall we say in a very delicate area of his body. Oh my.. goodness……he said he was in so much pain, he practically needed someone to blow his nose for him.
He was supposed to get up and walk around the house at least every 1.5- 2 hours.
He expected me to wait on him hand to foot. I couldn't nor shouldn't do it. The doctor wanted him up and about. It prevents blood clots. He asked me for this and that. I said you need to get up and move around. I never ask him for even a glass of water. My dear Mother had a saying, "Those who can't "see" have to "feel". Oh he felt alright. Now, he "sees" my pain a little more.

REPLY
@susanlorrie

Thanks for the welcome. I have a great husband, wonderful animals that calm me. Ice cream, most specifically Blue Bunny Mini ice cream cones (with caramel). I try to take my mind of of it with coloring. I started this before it became a fad.

Jump to this post

@memo most men can't stand pain it's funny when I was helping a 3yr old who had a cut on his check my son went in the other room ,men are a different breed

REPLY

1st time. Am 75, live alone, and do not really have a sounding board nor "advisor" re chronic buttock, SI joint issues. Also chronic knee issues..but no flare ups right now. So not constant like my "sitting" and "lying on back" buttock/tailbone issues.
Have 3 sons. Men re medical issues..yes, can relate.

REPLY
Please sign in or register to post a reply.
  Request Appointment