Mayo Clinic Connect
We share what works (and what doesn’t) for us as far as medicines and surgeries,etc.
What works for you to give yourself a little break? I’m presently researching family history from the comfort of my recliner.
Liked by Colleen Young, Connect Director, Jackie, Volunteer Mentor, edieguinn, jlfisher56 ... see all
Yes, I understand you. I just saw a pain dr, my GP, a phychologist and my gastrologist for my terrible pain, which originates from bone spurs and arthritis
in my neck. The surgeons do not want to touch it, so they all tell me, live with it and take opioids. They help, but they have so many negative sides.
Make me tired all day, no appetit, no interest in friends and family any more and there is no one to help me to get off them. Wean yourself off slowly or sign yourself into a clinic for 39,000.00 for four weeks.
I have been living with my pain in the head now for years. Now I have digestion pain, caused by constipation. Been to the ER several times, when I got scarred, because it also effected my heart.
So I can feel for you very much!
But my husband and I will not give up. This is no way to live, if there must be a way to treat this pain!
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Glad to hear your getting relieve from pain pump ,this might help others Im thinking of Oregongirl @parus
Liked by teetee7
@wsh66 Always nice to hear about a positive outcome.
Thanks for the welcome. I have a great husband, wonderful animals that calm me. Ice cream, most specifically Blue Bunny Mini ice cream cones (with caramel). I try to take my mind of of it with coloring. I started this before it became a fad.
I have chronic pain also. I have been to five neurosurgeons tell me I need a rod, plate, screws and a fusion. I have declined as one told me I wouldn't be able to bend over to feed dogs, etc. I live in pain. I am so afraid the screws would only make my osteoporosis worse, fall out, etc. I also have fibromyalgia/ Need surgery on nose to be able to breathe. I have depression. The list goes on. People only laugh when I say I need surgery from my nose to my toes. Oh, I forgot to tell you my toes have decided to curve like a question mark, making me walk on my ingrown toe nails. Since I can hardly breathe, oh, yes, I have sleep apnea. Also, had one saliva gland removed and have Sjogrens Syndrome, dry mouth, full of cotton and it ain't cotton candy!
Liked by teetee7, jmjlove
Same thing at my home. I'm a complainer who never feels good according to my mate.
Last year he had a operation
It was shall we say in a very delicate area of his body. Oh my.. goodness……he said he was in so much pain, he practically needed someone to blow his nose for him.
He was supposed to get up and walk around the house at least every 1.5- 2 hours.
He expected me to wait on him hand to foot. I couldn't nor shouldn't do it. The doctor wanted him up and about. It prevents blood clots. He asked me for this and that. I said you need to get up and move around. I never ask him for even a glass of water. My dear Mother had a saying, "Those who can't "see" have to "feel". Oh he felt alright. Now, he "sees" my pain a little more.
Liked by Jen, Volunteer Mentor, lioness, Merry, Volunteer Mentor, teetee7
@memo most men can't stand pain it's funny when I was helping a 3yr old who had a cut on his check my son went in the other room ,men are a different breed
Liked by Merry, Volunteer Mentor
1st time. Am 75, live alone, and do not really have a sounding board nor "advisor" re chronic buttock, SI joint issues. Also chronic knee issues..but no flare ups right now. So not constant like my "sitting" and "lying on back" buttock/tailbone issues.
Have 3 sons. Men re medical issues..yes, can relate.
Liked by lioness, Merry, Volunteer Mentor
I watch tv, if anything interesting is on, go on my laptop to read about stuff or listen to music. Talking to people helps if it is something stimulating to me which is hard to find others who are interested in the same things as I am. But when I have sciatic shooting pains nothing works. I just roll around on my bed and rub the area if I can reach it or do somethings that physical therapists have shown me although this does not work for long. After years of having these pains a retiring neurologists said to try muscle relaxants and they do help. Also sleeping if I can get to sleep, but that is really hard when I have shooting pain. I may try some of the things that people have listed here to see if it works. 19lin
@19lin for your sciatica have you tried a chiropractor? or accupunctur?My son suggested this to me for my back problems I'm going to look for one but my chiropractor releases the sciatica nerve for me.
Liked by Merry, Volunteer Mentor, teetee7
You go! Have to be distracted and upbeat!
Read lots of books. Count and sing in my hear when it is really bad. I have certain songs that help take me away. Try to seperate mind from body…
Eating. It has worked ever since I was an infant, crying, and someone would shove a bottle in my mouth. Later I learned to do this with food when I was in pain and we were too poor to afford to see a doctor. Now, I do it as much from habit as from frustration that doctors won't prescribe effective pain medication for fear of the DEA. Friday, I was refused Ultram.
Liked by Ginger, Volunteer Mentor, teetee7
@mzhp1988 Im so sorry to hear they refused Ultram thats rediculous Since 05 when I fractured my back Ive been on Tramadol generic for Ultram ask about a generic I take 50 mg down from 4 a day to 1 or 2now. Maybe its my back issue reason I get them
Ultram sucks anyway. Get a pain pump delivering Dilaudid
Sucks for severe pain. Yes. But for someone who has not been on opioids, has no built up tolerance, they just may find relief. I did, until my conditions became more complicated and more painful.
What could be too painful for the pain pump? They can also use morphine which is not as strong as Dilaudid but I suppose they could use fentanyl or one of its derivatives which are orders of magnitude stronger than Dilaudid? Ultrium is very addictive. It's not the kind of addiction where you crave the drug when you try to stop taking it but you do get very very sick if you've been using it long term. When I stop taking it it was a full 96 hours of having the worst flu like symptoms you could possibly imagine.
@stephen, I agree. Long term use of tramadol, then stopping I found it terrible to come off. No one warned me. Guess I just mean it can be useful if one uses occasionally for less severe pain. Doubt if a doctor will allow a pain pump for someone who hasn't used opioids before. I think a pump would be great in my case. I hear very good things about them. If I remember right, the woman said she had not used any opioids. Could be wrong, but if that's the case it would make sense to try out opioids before implanting a pump.
That's true, they probably would want to test the person to see if opioids are effective, they would probably also want to try and implant stimulator to see if that's effective before they put the pain pump in. They could determine which drug they should use by employing genesight testing. This testing predicts what drugs you are able to digest if you will based on your genes and known markers. The fact that a person had not used opioids would make them an excellent candidate for the pain pump because they don't have a built-up tolerance and they could start with really minuscule doses. Remember one mg of anything taken by mouth compares to 1 mg via the pain pump having the effect of 300 mg by mouth. The pain pump for the person who's never used opioids would have a much longer effective range in years. They can only turn it up so far or they run the risk of flooding the pain receptors and have the opioid exchange from something that relieves pain to something that creates incredible pain. I can't imagine why someone would not be a good candidate for a pain pump unless they're Jean type means that they can't digest opioids at all. Even people who have really bad side effects from opiates can use the pain pump because they don't have to run it through their stomach in their digestive system. Remember no side effects as the kind you get in your bowels from ingesting opioids.
Liked by jmjlove
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