Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@boourbonman

I promised you all I would let you know when I got approved for Medical Marijuana. Judi and I did it. We then went down to Edgewater FL. and got two 500 mg bottles. $70 each. So we were suppose to start with 5 drops (each drop is a mg.) three times a day and slowly work up to 10 drops 3 times a day. Do the math. 16 days for $70. We are both at 5 drops 3 times a day and no relief. I sure hope it starts to ease our pain. Will Keep you posted.
Hoot

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hazel. we might be twins but born a century or 2 ago. same for the computer. also will not have a smart phone have a flip phone for emergency (i would need a 5 year old to help me with the smart phone). all this helps me to keep my mind off pain. ha ha

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@boourbonman

I promised you all I would let you know when I got approved for Medical Marijuana. Judi and I did it. We then went down to Edgewater FL. and got two 500 mg bottles. $70 each. So we were suppose to start with 5 drops (each drop is a mg.) three times a day and slowly work up to 10 drops 3 times a day. Do the math. 16 days for $70. We are both at 5 drops 3 times a day and no relief. I sure hope it starts to ease our pain. Will Keep you posted.
Hoot

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I hope one of the moderators can help you with this! It may take a while for the changes to kick in, but I don’t know. I doubt you’re computer illiterate!

Hazel

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@boourbonman

I promised you all I would let you know when I got approved for Medical Marijuana. Judi and I did it. We then went down to Edgewater FL. and got two 500 mg bottles. $70 each. So we were suppose to start with 5 drops (each drop is a mg.) three times a day and slowly work up to 10 drops 3 times a day. Do the math. 16 days for $70. We are both at 5 drops 3 times a day and no relief. I sure hope it starts to ease our pain. Will Keep you posted.
Hoot

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Hello @peach414144,

To not get as many email notifications from the Chronic Pain pain group, follow these instructions:

– Click this link, https://connect.mayoclinic.org/group/pain/
– In the top box that explains what the group is about, click on the Following button in the bottom right corner
– Choose the “Include messages in my email digest only” option

This should slow down some of the email notifications from the Chronic Pain group (and any other group you choose to complete the same process for)

To not get as many emails from the Welcome conversation in particular in the Chronic Pain group, follow these steps:

– If you are responding by email, click VIEW & REPLY on the bottom of this notification
– Scroll all the way to the top until you see the original message posted by Kelsey
– Click on the +Following button
– Choose another option besides receiving an email each time a post is made.
– Be sure to click on Update after both of these steps

These steps can be applied to any conversation and group. Whenever you participate in any discussion you are automatically subscribed to receive email notifications for that discussion so you would need to complete the above steps to try and limit your notifications. I hope this helps and I hope I made this as clear as possible. If not, do not hesitate to ask me to clear anything up or explain it a bit better!

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@boourbonman

I promised you all I would let you know when I got approved for Medical Marijuana. Judi and I did it. We then went down to Edgewater FL. and got two 500 mg bottles. $70 each. So we were suppose to start with 5 drops (each drop is a mg.) three times a day and slowly work up to 10 drops 3 times a day. Do the math. 16 days for $70. We are both at 5 drops 3 times a day and no relief. I sure hope it starts to ease our pain. Will Keep you posted.
Hoot

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@peach414144, I forgot to mention, the best way to view these conversations and to not get lost is to always click VIEW & REPLY on the bottom of the notification so that you will be taken to the website. Once you are on the website you can see the conversation in its entirety and the responses make far more sense when they are laid out in order on the website.

My trick is to click VIEW & REPLY, read through the discussions in order, and then you can simply delete the notifications as you have already read through the updates on the website! Always clicking on VIEW & REPLY really does make things much easier and more understandable.

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@boourbonman

I promised you all I would let you know when I got approved for Medical Marijuana. Judi and I did it. We then went down to Edgewater FL. and got two 500 mg bottles. $70 each. So we were suppose to start with 5 drops (each drop is a mg.) three times a day and slowly work up to 10 drops 3 times a day. Do the math. 16 days for $70. We are both at 5 drops 3 times a day and no relief. I sure hope it starts to ease our pain. Will Keep you posted.
Hoot

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Amen to that! That’s exactly the way I navigate through the discussion email notifications. It does make it easier.

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@boourbonman

I promised you all I would let you know when I got approved for Medical Marijuana. Judi and I did it. We then went down to Edgewater FL. and got two 500 mg bottles. $70 each. So we were suppose to start with 5 drops (each drop is a mg.) three times a day and slowly work up to 10 drops 3 times a day. Do the math. 16 days for $70. We are both at 5 drops 3 times a day and no relief. I sure hope it starts to ease our pain. Will Keep you posted.
Hoot

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Have same overabundance of emails .  Will try your suggestions. Wish me luck!Virtuous 69

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@hazelblumberg

I’m sure your summers must be killers! Do you have the humidity that we do here in Florida? Being inland, we have very little breeze–except if a hurricane is passing through–which just intensifies the misery. I do indeed miss winter. I’m originally from Utica, New York, smack dab in the middle of the snow belt. And yes, I really do miss snow at Christmastime.

Hazel

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Hazel, this is Marield65, if I lived in Florida I would not be bored. I just sent you a long post.
But I really can’t handle the humidity, but I would be in the pool. What part of Florida? Marie

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@colleenyoung

Hi all,
I’m Colleen, Community Director and part of Connect’s moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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Hi Sharon, my pain mgmt doc referred this treatment as last resort. Asked all around for opinions and was not happy with their replies. I have all the spinal issues, stenois and more as well as Fibromyalgia. Let me know down the line how this is working for you. signed
victorious69.

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@hazelblumberg

I’m sure your summers must be killers! Do you have the humidity that we do here in Florida? Being inland, we have very little breeze–except if a hurricane is passing through–which just intensifies the misery. I do indeed miss winter. I’m originally from Utica, New York, smack dab in the middle of the snow belt. And yes, I really do miss snow at Christmastime.

Hazel

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Marie, believe it or not, I don’t know how to swim! I’ve even taken adult coward classes, and I still ended up clinging to the side of the pool. Sigh. The humidity here is way too much for me. I spend summers indoors as much as possible, in the AC, and under a ceiling fan.

Hazel

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@hazelblumberg

I’m sure your summers must be killers! Do you have the humidity that we do here in Florida? Being inland, we have very little breeze–except if a hurricane is passing through–which just intensifies the misery. I do indeed miss winter. I’m originally from Utica, New York, smack dab in the middle of the snow belt. And yes, I really do miss snow at Christmastime.

Hazel

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Marie, forgot to reply: I live in faaaaaaaaaaaaaaar northern Florida, north of Tallahassee, not far from the Florida/Georgia state line.

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victorious69 here: reading peach 414’s request for help. Have tried your suggestions. Will see what happens. I still want to keep in touch with Chronic pain posters. blessings

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from peach to all: what helps me with the pains is getting into a large deep tub with hot, hot water and soak, of course with a glass of orange ade and a small tv off to the side. for whatever reason why this helps me for some of the pains i do not know, but it does for a while and still feels good after emerging from the tub. to old for this now. really wish medicare would help to pay for the “walk in tubs” for the people in need for this. and it is sure safer than a shower.

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@hazelblumberg

I’m sure your summers must be killers! Do you have the humidity that we do here in Florida? Being inland, we have very little breeze–except if a hurricane is passing through–which just intensifies the misery. I do indeed miss winter. I’m originally from Utica, New York, smack dab in the middle of the snow belt. And yes, I really do miss snow at Christmastime.

Hazel

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When I was three years old, my family was at a public pool with a slide in the shallow end and a high dive at the deep end. My mother thought I said I want to “slide”. What I actually said was that I wanted to “dive”. She looked up in time to see me climbing the ladder. She started screaming as I ran down the board and jumped off! I had to be rescued. She then took me and my three sisters to the YMCA for swimming classes. We all went for years and each earned our life saving degrees. My mother never learned to swim, but she had four girls that could save her if needed! I love the water and am so glad my mom sent us to classes. With my various illnesses, I find comfort in water through warm jetted bathes and swimming pool exercises.

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@hazelblumberg

I’m sure your summers must be killers! Do you have the humidity that we do here in Florida? Being inland, we have very little breeze–except if a hurricane is passing through–which just intensifies the misery. I do indeed miss winter. I’m originally from Utica, New York, smack dab in the middle of the snow belt. And yes, I really do miss snow at Christmastime.

Hazel

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@hazel Yes, summers are awful. Not as humid, but can be days of 100 or above in the summer. I’ve been here 37 years, so you’d think I’d be used to it, but I’m not! I really, really miss the fall! We really don’t have much of a fall here. Some day I’m going to take the train through New England during the fall and enjoy the beautiful leaves!

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@hazelblumberg

I developed earaches in September 2016. My primary care found no ear or sinus infection and sent me to an ENT, who diagnosed TMJ pain. I went to my dentist for help. He gave me weekly anesthesia shots into trigger points (OUCH!) and exercises to do, including massaging the trigger points and opening my mouth as wide as I could numerous times in the shower while my face was warm and wet. (I have been wearing a night guard made by my dentist for over 20 years; he replaces them as they wear out.) The pain continued and only got worse; it was at the top of my head, in my ears, in my jaw, above my palate (as though I’d eaten hot food). My dentist sent me to an oral surgeon, who did 360-degree x-rays and found no joint damage. He told me I was therefore not a candidate for surgery (YAY!) and prescribed Flexeril, a muscle relaxer. The pain only got worse, and I continued to wake up in the night with horrific pain. Ibuprofen didn’t even touch it.

My dentist then sent me to a physical therapist, who didn’t listen to a word I said. I came in on a “good” pain day: my pain level was about a 5 out of 10 (10 being the worst). After his examination and showing me how to do various exercises, he triumphantly told me that my pain level was now reduced. I said “No. My pain level is now about 7.5.” He said he didn’t believe me. He attempted to push me to go to his outside clinic to get “magnet therapy,” and he tried to push me to see a friend of his who is a naturopath. Two days after this session, I was still in excruciating pain and doubt I’d ever return to this physical therapist, although he had me schedule 4 more 1-hour sessions with him.

I called my dentist again, and he called in a prescription for Tylenol plus codeine, which I can take every 4 to 6 hours. My dentist seems to have no further solutions for me.

My primary care is currently out of town, but I will see her when she gets back (in August); she may be referring me to a pain management specialist, which my dentist recommended–however, my dentist refuses to give me a referral to such a specialist, even though the specialist will take referrals from dentists or doctors.

I have been treated for many years for clinical depression and panic/anxiety disorder by my psychiatrist, and the meds have helped me immensely. On Monday I see my psychiatrist for my usual 6-month med check, and I’m going to ask him for help with the terrible TMJ pain. I have also had fibromyalgia and chronic fatigue syndrome for a long time. The fibro pain has greatly lessened over time and hardly bothers me, but the CFS continues.

The TMJ pain makes it difficult to concentrate. I’m self-employed, and I enjoy my work. But pain gets in the way, as it does in every single situation: work or pastimes. My dentist mentioned massage therapy, but I’m in too much pain right now to try it. Another friend mentioned using a TENS unit. I feel as though I’m not living; to be in constant pain is hardly living, at least to me.

Any other suggestions? Would a TENS unit help? I’m more than willing to purchase one. I’ll try just about anything to be pain free. Sometimes I am pain free. But I spend about 2 weeks out of every month in serious pain. I am feeling very discouraged.

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@jim Yes, when taking any psychiatric type drug, one should be monitored at the start. I, also, never had suicidal thoughts until I was given the Clonazepam. I actually attempted suicide and ended up in a psych ward. I don’t even remember the event. Apparently, I went to the store and purchased two Tylenol P.M bottles and a box of Fruit Loops (yep, apparently I picked up some Fruit Loops – maybe I was trying to tell someone I was feeling “loopy” – who knows, but it was such a surprise to me when I was told how they found me), then went through a drive through and purchased two large colas and drove out to the country where I was boarding my horse. A police officer just happened to see my car in a field with the engine running. He called for an ambulance. Next thing I remember was waking up in a bed in the psych ward! Once the medication wore off, I was fine. It is weird how medication can affect a person one way and another person another way!

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