Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@boourbonman

I promised you all I would let you know when I got approved for Medical Marijuana. Judi and I did it. We then went down to Edgewater FL. and got two 500 mg bottles. $70 each. So we were suppose to start with 5 drops (each drop is a mg.) three times a day and slowly work up to 10 drops 3 times a day. Do the math. 16 days for $70. We are both at 5 drops 3 times a day and no relief. I sure hope it starts to ease our pain. Will Keep you posted.
Hoot

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Not to be curmudgeonly here, but I will just add a point from my perspective. My wife battled her war with brain cancer for over 14 years. During those 14 years she never wanted for the pain medications that were necessary for her health and as good a wellbeing as was possible under the circumstances. She was on a daily cocktail consistently made up of over 20 medicines with over 30 doses a day, which took a long time to formulate and which over time, due to the fact the human body can build up tolerances to almost any medication, changed often over those years. It was never simple, but we also understood the complexity of her disease, medical team, condition, etc. required a great deal of understanding, compassion, and often patience on both sides.

Yes there were hoops we had to jump through for some of her medications, but given the national emergency we are experiencing with opioids we both viewed them as understandable. Frustrating, but never kept her from her needed meds.

As I said, just one view from one bedside.

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@boourbonman

I promised you all I would let you know when I got approved for Medical Marijuana. Judi and I did it. We then went down to Edgewater FL. and got two 500 mg bottles. $70 each. So we were suppose to start with 5 drops (each drop is a mg.) three times a day and slowly work up to 10 drops 3 times a day. Do the math. 16 days for $70. We are both at 5 drops 3 times a day and no relief. I sure hope it starts to ease our pain. Will Keep you posted.
Hoot

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WOW! I haven’t had such nice things said to me since that cute young thing wanted an A in the collegiate Public Speaking 303 class I was teaching. Thank you. I try to help.

Liked by blindeyepug

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@kathyv

I’m already a member. Just checking on new ideas. Scoliosis surgery as a teenager. Multiple spine surgeries, recently. Developed CRPS in right leg below knee, neuropathy in foot after recent spine surgeries. Developed an atypical femoral fracture in my left leg due to Prolia that I was taking for osteoporosis. Now I am feeling numbness in my left foot. I’m afraid it is now the beginning of CRPS in that foot. I’m taking Lyrica, Cymbalta, Alive, and a 5mg.and 10mg.dose of Oxycontin daily. Still doesn’t take care of the pain. Just started taking MM drops under my tongue. Not sure how that is going yet. Obviously, I’m a little overwhelmed. Looking for new suggestions.
Kathy

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I have RSD same as you’re. 5 years of level 5-7 pain on Subutex 2/day 8mg and 3600mg of Gabapintin daily. It helps but I never get lower than 5 pain. I am losing all memory short term. Really bad. I have had spine stimulator which did not work. What has helped and I had a lumbar ablation block treatment yesterday 8/9/17 and seems to be working. I have had them before no results. I will do follow up if u wish.

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@boourbonman

I promised you all I would let you know when I got approved for Medical Marijuana. Judi and I did it. We then went down to Edgewater FL. and got two 500 mg bottles. $70 each. So we were suppose to start with 5 drops (each drop is a mg.) three times a day and slowly work up to 10 drops 3 times a day. Do the math. 16 days for $70. We are both at 5 drops 3 times a day and no relief. I sure hope it starts to ease our pain. Will Keep you posted.
Hoot

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@hazelblumberg

Our terrier – looks like a Manchester – was picked up on the streets of San Bernardino, flown to Seattle by a rescue group, shown at a dog fair, seen by our daughter, who told us about him, and we drove there and adopted him and brought him home to Oregon. We don’t know much about his history or age.

My McNabb we adopted a year ago from the local humane society, unknown age. I’ve trained her to be my psychiatric service dog. I don’t know her background.

Both dogs had fear issues, but they’ve done well here with lots of space to explore and play. They both had been pets before, have good food attitudes, and knew basic commands.

They’ve been a lot easier to adopt than puppies would have been. We love puppies, especially on So Cute on TV, but they surely are a lot of work.

Pete and Sadie have definitely become family. Pete’s my wife’s dog and Sadie’s attached to me at the hip.

Jim

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@boourbonman

I promised you all I would let you know when I got approved for Medical Marijuana. Judi and I did it. We then went down to Edgewater FL. and got two 500 mg bottles. $70 each. So we were suppose to start with 5 drops (each drop is a mg.) three times a day and slowly work up to 10 drops 3 times a day. Do the math. 16 days for $70. We are both at 5 drops 3 times a day and no relief. I sure hope it starts to ease our pain. Will Keep you posted.
Hoot

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@IndianaScott

Where do you live? Maybe I should establish a residence there and see your wife’s doctors. Our son lives in Indianapolis, and we’ve been there and don’t want to live in that climate.

Having all of her meds available must surely have made your job easier.

Jim

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@boourbonman

I promised you all I would let you know when I got approved for Medical Marijuana. Judi and I did it. We then went down to Edgewater FL. and got two 500 mg bottles. $70 each. So we were suppose to start with 5 drops (each drop is a mg.) three times a day and slowly work up to 10 drops 3 times a day. Do the math. 16 days for $70. We are both at 5 drops 3 times a day and no relief. I sure hope it starts to ease our pain. Will Keep you posted.
Hoot

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How wonderful that you’ve adopted dogs! As we say in Yiddish, that’s a true mitzvah. They must both be so happy with you. And how terrific that McNabb is your psychiatric service dog. A good friend of mine has trained her dog to be a psychiatric service dog, too, and she’s happily working in Boston, with her dog at her side. What a difference a service dog makes!

I love puppies–and kittens–too, but yes, they are SO much more work than adult dogs and cats!

Our critters are definitely our family. We don’t have kids. Or, rather, our kids have four legs.

I just saw that there was a “cat day” in Minnesota. Can’t remember if it was in St. Paul (we lived there before we moved to Florida) or Minneapolis. Eleven thousand people turned out in the baseball park to watch cat videos and wear costumes and have a great time! I think this was the third time that’s been done. My husband and I need to go back to MN to experience this some time!

Hazel

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@boourbonman

I promised you all I would let you know when I got approved for Medical Marijuana. Judi and I did it. We then went down to Edgewater FL. and got two 500 mg bottles. $70 each. So we were suppose to start with 5 drops (each drop is a mg.) three times a day and slowly work up to 10 drops 3 times a day. Do the math. 16 days for $70. We are both at 5 drops 3 times a day and no relief. I sure hope it starts to ease our pain. Will Keep you posted.
Hoot

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Hi @jimhd We were in NW Indiana at the time, but I owe a ton of this to the support and assistance we received from her neuro-oncologist at Mayo, who worked closely with us all 14 years and often took the lead over my wife’s GP. After living in Minnesota I can say the winters aren’t all that bad up here either!

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@boourbonman

I promised you all I would let you know when I got approved for Medical Marijuana. Judi and I did it. We then went down to Edgewater FL. and got two 500 mg bottles. $70 each. So we were suppose to start with 5 drops (each drop is a mg.) three times a day and slowly work up to 10 drops 3 times a day. Do the math. 16 days for $70. We are both at 5 drops 3 times a day and no relief. I sure hope it starts to ease our pain. Will Keep you posted.
Hoot

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I’ve lived in Bloomington, IN, and in St. Paul, MN. The winters in IN are GENTLE compared to those in St. Paul!

Hazel, who misses winter, although we do get snowflakes and sometimes the snow even sticks; temperatures in winter go down to about 19 degrees F, and we get killing frosts

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@boourbonman

I promised you all I would let you know when I got approved for Medical Marijuana. Judi and I did it. We then went down to Edgewater FL. and got two 500 mg bottles. $70 each. So we were suppose to start with 5 drops (each drop is a mg.) three times a day and slowly work up to 10 drops 3 times a day. Do the math. 16 days for $70. We are both at 5 drops 3 times a day and no relief. I sure hope it starts to ease our pain. Will Keep you posted.
Hoot

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help, HELP, HELP, I AM RECEIVING 67 G MAILS FROM MAYO CLINIC . HELP I CANNOT KEEP UP WITH IT. AM I THE ONLY ONE THAT THIS HAPPENING TO?

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@boourbonman

I promised you all I would let you know when I got approved for Medical Marijuana. Judi and I did it. We then went down to Edgewater FL. and got two 500 mg bottles. $70 each. So we were suppose to start with 5 drops (each drop is a mg.) three times a day and slowly work up to 10 drops 3 times a day. Do the math. 16 days for $70. We are both at 5 drops 3 times a day and no relief. I sure hope it starts to ease our pain. Will Keep you posted.
Hoot

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Click Unsubscribe at the bottom of any of emails and that should do it. The other way is to click on your profile at the top of the Connect window to the left of Request Appointment and select Account Settings. Then go to the bottom and Edit your Notifications to stop being notified.

John

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@boourbonman

I promised you all I would let you know when I got approved for Medical Marijuana. Judi and I did it. We then went down to Edgewater FL. and got two 500 mg bottles. $70 each. So we were suppose to start with 5 drops (each drop is a mg.) three times a day and slowly work up to 10 drops 3 times a day. Do the math. 16 days for $70. We are both at 5 drops 3 times a day and no relief. I sure hope it starts to ease our pain. Will Keep you posted.
Hoot

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dear hazel, i enjoy your tweets so much. informative, interesting, enjoyable and right on the button. thank you for your insight. peach (barbara)

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@boourbonman

I promised you all I would let you know when I got approved for Medical Marijuana. Judi and I did it. We then went down to Edgewater FL. and got two 500 mg bottles. $70 each. So we were suppose to start with 5 drops (each drop is a mg.) three times a day and slowly work up to 10 drops 3 times a day. Do the math. 16 days for $70. We are both at 5 drops 3 times a day and no relief. I sure hope it starts to ease our pain. Will Keep you posted.
Hoot

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@hazelblumberg A 19 degree F winter day in IN sounds like a spring day in Michigan!

Teresa

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@boourbonman

I promised you all I would let you know when I got approved for Medical Marijuana. Judi and I did it. We then went down to Edgewater FL. and got two 500 mg bottles. $70 each. So we were suppose to start with 5 drops (each drop is a mg.) three times a day and slowly work up to 10 drops 3 times a day. Do the math. 16 days for $70. We are both at 5 drops 3 times a day and no relief. I sure hope it starts to ease our pain. Will Keep you posted.
Hoot

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Thanks for caring and sharing @hazelblumberg, I have done one adoption with mixed success. Not against the idea…..just want to make sure I am strong enough to care for a pet.

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@boourbonman

I promised you all I would let you know when I got approved for Medical Marijuana. Judi and I did it. We then went down to Edgewater FL. and got two 500 mg bottles. $70 each. So we were suppose to start with 5 drops (each drop is a mg.) three times a day and slowly work up to 10 drops 3 times a day. Do the math. 16 days for $70. We are both at 5 drops 3 times a day and no relief. I sure hope it starts to ease our pain. Will Keep you posted.
Hoot

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thank you. working on it. it takes hours every day. thanks again peach

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@boourbonman

I promised you all I would let you know when I got approved for Medical Marijuana. Judi and I did it. We then went down to Edgewater FL. and got two 500 mg bottles. $70 each. So we were suppose to start with 5 drops (each drop is a mg.) three times a day and slowly work up to 10 drops 3 times a day. Do the math. 16 days for $70. We are both at 5 drops 3 times a day and no relief. I sure hope it starts to ease our pain. Will Keep you posted.
Hoot

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thank you again. this 80 year old has problems sometimes keeping up with the computer era. suprised i can do what i am doing but the computer helps keep the mind awake. .

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