Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@boourbonman

I promised you all I would let you know when I got approved for Medical Marijuana. Judi and I did it. We then went down to Edgewater FL. and got two 500 mg bottles. $70 each. So we were suppose to start with 5 drops (each drop is a mg.) three times a day and slowly work up to 10 drops 3 times a day. Do the math. 16 days for $70. We are both at 5 drops 3 times a day and no relief. I sure hope it starts to ease our pain. Will Keep you posted.
Hoot

Jump to this post

@blindeyepug and @hazelblumberg

Chocolate is my drug of choice – when I’m not feeling well I give chocolate a try before anything else. Sometimes it works!

Teresa

PS By the way, for a number of years I worked for attorneys – many kindred spirits here!

REPLY
@boourbonman

I promised you all I would let you know when I got approved for Medical Marijuana. Judi and I did it. We then went down to Edgewater FL. and got two 500 mg bottles. $70 each. So we were suppose to start with 5 drops (each drop is a mg.) three times a day and slowly work up to 10 drops 3 times a day. Do the math. 16 days for $70. We are both at 5 drops 3 times a day and no relief. I sure hope it starts to ease our pain. Will Keep you posted.
Hoot

Jump to this post

@ hazelblumberg. Hardly get winter here at all. I live in Texas. Summers are killer, but rest of the year very pleasant. I kinda miss winter (originally from Missouri), especially at Christmas.

REPLY
@hazelblumberg

I developed earaches in September 2016. My primary care found no ear or sinus infection and sent me to an ENT, who diagnosed TMJ pain. I went to my dentist for help. He gave me weekly anesthesia shots into trigger points (OUCH!) and exercises to do, including massaging the trigger points and opening my mouth as wide as I could numerous times in the shower while my face was warm and wet. (I have been wearing a night guard made by my dentist for over 20 years; he replaces them as they wear out.) The pain continued and only got worse; it was at the top of my head, in my ears, in my jaw, above my palate (as though I’d eaten hot food). My dentist sent me to an oral surgeon, who did 360-degree x-rays and found no joint damage. He told me I was therefore not a candidate for surgery (YAY!) and prescribed Flexeril, a muscle relaxer. The pain only got worse, and I continued to wake up in the night with horrific pain. Ibuprofen didn’t even touch it.

My dentist then sent me to a physical therapist, who didn’t listen to a word I said. I came in on a “good” pain day: my pain level was about a 5 out of 10 (10 being the worst). After his examination and showing me how to do various exercises, he triumphantly told me that my pain level was now reduced. I said “No. My pain level is now about 7.5.” He said he didn’t believe me. He attempted to push me to go to his outside clinic to get “magnet therapy,” and he tried to push me to see a friend of his who is a naturopath. Two days after this session, I was still in excruciating pain and doubt I’d ever return to this physical therapist, although he had me schedule 4 more 1-hour sessions with him.

I called my dentist again, and he called in a prescription for Tylenol plus codeine, which I can take every 4 to 6 hours. My dentist seems to have no further solutions for me.

My primary care is currently out of town, but I will see her when she gets back (in August); she may be referring me to a pain management specialist, which my dentist recommended–however, my dentist refuses to give me a referral to such a specialist, even though the specialist will take referrals from dentists or doctors.

I have been treated for many years for clinical depression and panic/anxiety disorder by my psychiatrist, and the meds have helped me immensely. On Monday I see my psychiatrist for my usual 6-month med check, and I’m going to ask him for help with the terrible TMJ pain. I have also had fibromyalgia and chronic fatigue syndrome for a long time. The fibro pain has greatly lessened over time and hardly bothers me, but the CFS continues.

The TMJ pain makes it difficult to concentrate. I’m self-employed, and I enjoy my work. But pain gets in the way, as it does in every single situation: work or pastimes. My dentist mentioned massage therapy, but I’m in too much pain right now to try it. Another friend mentioned using a TENS unit. I feel as though I’m not living; to be in constant pain is hardly living, at least to me.

Any other suggestions? Would a TENS unit help? I’m more than willing to purchase one. I’ll try just about anything to be pain free. Sometimes I am pain free. But I spend about 2 weeks out of every month in serious pain. I am feeling very discouraged.

Jump to this post

@jim. Wow, that was a very bad reaction to medication. So sorry you went through that. Must have been very scary. I became suicidal after being put on Clonazepam. Also had severe panic attacks when on Wellibutrune. Needless to say I don’t take those meds any more! Different people can have really different reactions to different medications. That’s why it is so important for the doctor or their office to call and check on you when you start a new medication.

REPLY
@hazelblumberg

I developed earaches in September 2016. My primary care found no ear or sinus infection and sent me to an ENT, who diagnosed TMJ pain. I went to my dentist for help. He gave me weekly anesthesia shots into trigger points (OUCH!) and exercises to do, including massaging the trigger points and opening my mouth as wide as I could numerous times in the shower while my face was warm and wet. (I have been wearing a night guard made by my dentist for over 20 years; he replaces them as they wear out.) The pain continued and only got worse; it was at the top of my head, in my ears, in my jaw, above my palate (as though I’d eaten hot food). My dentist sent me to an oral surgeon, who did 360-degree x-rays and found no joint damage. He told me I was therefore not a candidate for surgery (YAY!) and prescribed Flexeril, a muscle relaxer. The pain only got worse, and I continued to wake up in the night with horrific pain. Ibuprofen didn’t even touch it.

My dentist then sent me to a physical therapist, who didn’t listen to a word I said. I came in on a “good” pain day: my pain level was about a 5 out of 10 (10 being the worst). After his examination and showing me how to do various exercises, he triumphantly told me that my pain level was now reduced. I said “No. My pain level is now about 7.5.” He said he didn’t believe me. He attempted to push me to go to his outside clinic to get “magnet therapy,” and he tried to push me to see a friend of his who is a naturopath. Two days after this session, I was still in excruciating pain and doubt I’d ever return to this physical therapist, although he had me schedule 4 more 1-hour sessions with him.

I called my dentist again, and he called in a prescription for Tylenol plus codeine, which I can take every 4 to 6 hours. My dentist seems to have no further solutions for me.

My primary care is currently out of town, but I will see her when she gets back (in August); she may be referring me to a pain management specialist, which my dentist recommended–however, my dentist refuses to give me a referral to such a specialist, even though the specialist will take referrals from dentists or doctors.

I have been treated for many years for clinical depression and panic/anxiety disorder by my psychiatrist, and the meds have helped me immensely. On Monday I see my psychiatrist for my usual 6-month med check, and I’m going to ask him for help with the terrible TMJ pain. I have also had fibromyalgia and chronic fatigue syndrome for a long time. The fibro pain has greatly lessened over time and hardly bothers me, but the CFS continues.

The TMJ pain makes it difficult to concentrate. I’m self-employed, and I enjoy my work. But pain gets in the way, as it does in every single situation: work or pastimes. My dentist mentioned massage therapy, but I’m in too much pain right now to try it. Another friend mentioned using a TENS unit. I feel as though I’m not living; to be in constant pain is hardly living, at least to me.

Any other suggestions? Would a TENS unit help? I’m more than willing to purchase one. I’ll try just about anything to be pain free. Sometimes I am pain free. But I spend about 2 weeks out of every month in serious pain. I am feeling very discouraged.

Jump to this post

@blindeyepug

I became extremely suicidal after 6 weeks on one antidepressant. I finally landed on Wellbutrin ten years ago. It doesn’t do the whole job, but I think it helps. I’ve never tried going off it to see if I felt any different. I might try it when I feel safe enough, but right now isn’t the best time. Back when I experienced suicidal thoughts on the trial medication, it was the first time I had had those thoughts. It was a couple of years later that I started attempting. I had been taking Effexor for awhile, but I don’t think that’s what triggered the wish to die. Clonazepam is one of the meds that make me drowsy, which is a good thing, but it’s mostly for anxiety. I only take 1mg, with the option of taking a second chance one, which I rarely do.

Having the doctor call after starting a new med? That’s never happened to me. My doctors must have all missed that class.

Jim

REPLY
@boourbonman

I promised you all I would let you know when I got approved for Medical Marijuana. Judi and I did it. We then went down to Edgewater FL. and got two 500 mg bottles. $70 each. So we were suppose to start with 5 drops (each drop is a mg.) three times a day and slowly work up to 10 drops 3 times a day. Do the math. 16 days for $70. We are both at 5 drops 3 times a day and no relief. I sure hope it starts to ease our pain. Will Keep you posted.
Hoot

Jump to this post

correct me i am wrong but it should be dark chocolate. also delicious.

REPLY
@boourbonman

I promised you all I would let you know when I got approved for Medical Marijuana. Judi and I did it. We then went down to Edgewater FL. and got two 500 mg bottles. $70 each. So we were suppose to start with 5 drops (each drop is a mg.) three times a day and slowly work up to 10 drops 3 times a day. Do the math. 16 days for $70. We are both at 5 drops 3 times a day and no relief. I sure hope it starts to ease our pain. Will Keep you posted.
Hoot

Jump to this post

No, I get a lot of messages, too. I tried just reading the digest, but then I got totally confused about where to find the most recent comments. So, I continue to go through the separate messages. See John’s comment below; that’ll help you to stop receiving the large number of emails.

Hazel

REPLY
@boourbonman

I promised you all I would let you know when I got approved for Medical Marijuana. Judi and I did it. We then went down to Edgewater FL. and got two 500 mg bottles. $70 each. So we were suppose to start with 5 drops (each drop is a mg.) three times a day and slowly work up to 10 drops 3 times a day. Do the math. 16 days for $70. We are both at 5 drops 3 times a day and no relief. I sure hope it starts to ease our pain. Will Keep you posted.
Hoot

Jump to this post

Really, it does! But now that, as the natives say, “our blood has thinned out,” 19 F is cold to us. I grew up in the snow belt of NYState, lived in Indiana, Minnesota, Germany, Austria, the Netherlands, so I was used to COLD. The first year we lived here, we laughed when people wore down jackets in winter. Now we’re wearing them, too; we saved them from our Minnesota days, just in case. It’s a very damp cold, which makes things ultra unpleasant. And the humidity and heat in the summer are more than I can stand. For me, summer brings on cabin fever. I would really rather be back in the Land o’ Snow. Loved being back in Ft. Wayne, Indiana, for a visit in the winter! We sat in a wonderful coffee shop, looking out the window at the swirling snow around us. Our then dog, Joe, who passed away about five years ago (and whom we still miss greatly), came with us and was totally freaked when snowflakes landed on him.

My husband just saw a job opening in Indianapolis, and he’s going to apply for it. We don’t have any expectations at all. It’d be nice if he got an interview, of course. Then he could visit friends in Indy and Bloomington. He still has family (his brother and sister-in-law) in Ft. Wayne, we’d love to be closer to them, and we would love to live in Indy, where there’s so much more to do than there is in Tallahassee. And it would be a lot closer to a lot of other places in the US. However, we would miss our relative closeness to the beach. Less than a two hour drive gets us to such pristine, beautiful, snow-white-sand beaches nowadays. Not that we get down to the northern Gulf of Mexico often enough.

Hazel

REPLY
@boourbonman

I promised you all I would let you know when I got approved for Medical Marijuana. Judi and I did it. We then went down to Edgewater FL. and got two 500 mg bottles. $70 each. So we were suppose to start with 5 drops (each drop is a mg.) three times a day and slowly work up to 10 drops 3 times a day. Do the math. 16 days for $70. We are both at 5 drops 3 times a day and no relief. I sure hope it starts to ease our pain. Will Keep you posted.
Hoot

Jump to this post

Barbara, you have made my day!!!!!!!! Thank you so much!

Hazel

REPLY
@boourbonman

I promised you all I would let you know when I got approved for Medical Marijuana. Judi and I did it. We then went down to Edgewater FL. and got two 500 mg bottles. $70 each. So we were suppose to start with 5 drops (each drop is a mg.) three times a day and slowly work up to 10 drops 3 times a day. Do the math. 16 days for $70. We are both at 5 drops 3 times a day and no relief. I sure hope it starts to ease our pain. Will Keep you posted.
Hoot

Jump to this post

Artscaping, I totally understand. Of course you want to be sure to be strong enough to care for a pet. If you decide that you are, perhaps you can find a neighborhood person who’d be interested in doing some dog walking for you?

Hazel

REPLY
@boourbonman

I promised you all I would let you know when I got approved for Medical Marijuana. Judi and I did it. We then went down to Edgewater FL. and got two 500 mg bottles. $70 each. So we were suppose to start with 5 drops (each drop is a mg.) three times a day and slowly work up to 10 drops 3 times a day. Do the math. 16 days for $70. We are both at 5 drops 3 times a day and no relief. I sure hope it starts to ease our pain. Will Keep you posted.
Hoot

Jump to this post

Hey, Peach, you’re doing fine! I am about as old school as you can get, and I’m less than thrilled with computers. And when I go into my credit union and find that all work must cease because the computers are down, I have to admit it makes me laugh.

Where I put my foot down is smartphones. I have NO interest in owning one. My husband, who’s a few years younger than I am, is utterly addicted to his. I went without a cell phone for the longest time. Then I finally caved in and bought a flip phone (yep, they’re still being made), so that I can have one in case my car breaks down and I need to call my insurance to send out a tow truck. After staring at my computer screen all day long for work, the last thing I want to do is stare at yet another screen. And besides, where I live, out in the boonies, our cell phone reception is almost nonexistent anyway.

I really don’t feel that I have to look up the meanings of words, show a bajillion photos of my animals to people, or play Bejeweled Blitz every second of my spare time. I do NOT do Twitter. I wouldn’t even do Facebook if I weren’t interested in sharing animals, particularly special-needs ones, who desperately need to be adopted. And I admit that I have met some wonderful people on FB, many of whom I’ve actually met in person, which has been terrific. But there are truly times that I think that living off the grid would be terrific.

Peach, I’m 16 years younger than you are, and you don’t seem to have ANY problems with the computer era at all, as far as I can see. (But don’t you miss dial phones? I sure do!)

Hazel

REPLY
@boourbonman

I promised you all I would let you know when I got approved for Medical Marijuana. Judi and I did it. We then went down to Edgewater FL. and got two 500 mg bottles. $70 each. So we were suppose to start with 5 drops (each drop is a mg.) three times a day and slowly work up to 10 drops 3 times a day. Do the math. 16 days for $70. We are both at 5 drops 3 times a day and no relief. I sure hope it starts to ease our pain. Will Keep you posted.
Hoot

Jump to this post

My mother turned me into a chocolate addict when I was a kid. (OK, I’ve gotta place the blame somewhere.) And now that chocolate with a high percentage of cacao is considered Good for You, then I say, let us eat on!

Yep, attorneys are everywhere. They’re not all evil. It’s the rotten ones who get all the attention, alas. Sometimes they do wonderful things. I volunteered for quite a while for Legal Aid here in town. I was so impressed with the dedication of the attorneys who worked there. No snazzy offices. No snazzy pay. Just working with a lot of folks who desperately needed legal help but couldn’t afford it.

Hazel

REPLY

I’m sure your summers must be killers! Do you have the humidity that we do here in Florida? Being inland, we have very little breeze–except if a hurricane is passing through–which just intensifies the misery. I do indeed miss winter. I’m originally from Utica, New York, smack dab in the middle of the snow belt. And yes, I really do miss snow at Christmastime.

Hazel

Liked by blindeyepug

REPLY
@hazelblumberg

I developed earaches in September 2016. My primary care found no ear or sinus infection and sent me to an ENT, who diagnosed TMJ pain. I went to my dentist for help. He gave me weekly anesthesia shots into trigger points (OUCH!) and exercises to do, including massaging the trigger points and opening my mouth as wide as I could numerous times in the shower while my face was warm and wet. (I have been wearing a night guard made by my dentist for over 20 years; he replaces them as they wear out.) The pain continued and only got worse; it was at the top of my head, in my ears, in my jaw, above my palate (as though I’d eaten hot food). My dentist sent me to an oral surgeon, who did 360-degree x-rays and found no joint damage. He told me I was therefore not a candidate for surgery (YAY!) and prescribed Flexeril, a muscle relaxer. The pain only got worse, and I continued to wake up in the night with horrific pain. Ibuprofen didn’t even touch it.

My dentist then sent me to a physical therapist, who didn’t listen to a word I said. I came in on a “good” pain day: my pain level was about a 5 out of 10 (10 being the worst). After his examination and showing me how to do various exercises, he triumphantly told me that my pain level was now reduced. I said “No. My pain level is now about 7.5.” He said he didn’t believe me. He attempted to push me to go to his outside clinic to get “magnet therapy,” and he tried to push me to see a friend of his who is a naturopath. Two days after this session, I was still in excruciating pain and doubt I’d ever return to this physical therapist, although he had me schedule 4 more 1-hour sessions with him.

I called my dentist again, and he called in a prescription for Tylenol plus codeine, which I can take every 4 to 6 hours. My dentist seems to have no further solutions for me.

My primary care is currently out of town, but I will see her when she gets back (in August); she may be referring me to a pain management specialist, which my dentist recommended–however, my dentist refuses to give me a referral to such a specialist, even though the specialist will take referrals from dentists or doctors.

I have been treated for many years for clinical depression and panic/anxiety disorder by my psychiatrist, and the meds have helped me immensely. On Monday I see my psychiatrist for my usual 6-month med check, and I’m going to ask him for help with the terrible TMJ pain. I have also had fibromyalgia and chronic fatigue syndrome for a long time. The fibro pain has greatly lessened over time and hardly bothers me, but the CFS continues.

The TMJ pain makes it difficult to concentrate. I’m self-employed, and I enjoy my work. But pain gets in the way, as it does in every single situation: work or pastimes. My dentist mentioned massage therapy, but I’m in too much pain right now to try it. Another friend mentioned using a TENS unit. I feel as though I’m not living; to be in constant pain is hardly living, at least to me.

Any other suggestions? Would a TENS unit help? I’m more than willing to purchase one. I’ll try just about anything to be pain free. Sometimes I am pain free. But I spend about 2 weeks out of every month in serious pain. I am feeling very discouraged.

Jump to this post

It is indeed scary how drugs affect different people. Prozac, just one tablet, made me feel completely insane. I couldn’t wait for the results to wear off. (My husband takes Prozac for clinical depression, and it’s worked wonders for him.) Clonazepam controls the panic/anxiety disorder I’ve had probably my entire life; I can remember the symptoms even when I was a little kid. I’m on Wellbutrin, and it helps immensely. But our bodies all metabolize things differently.

I am thankful to BigPharma (only now and again) for having come out with SO many medications to treat panic/anxiety disorder and clinical depression. Perhaps some day both of these diseases will be cured. Wouldn’t that be terrific? I am willing my body to a medical school in hopes that poking around in my brain will be of help in finding a cure.

And of course, finding an excellent psychiatrist is paramount. I’ve been seeing mine for years, after having seen a bunch of worthless ones. I adore my psychiatrist, who actually has told me about his own panic/anxiety disorder and clinical depression, so he knows whereof he speaks. He’s doing a lot of work with electrical brain stimulation, which has helped so many people. (You have to be in the throes of severe depression before insurance will pay for it. I’d love to go through it in hopes that it would knock out my depression and make me drug-free, but no such luck.) He has one of the machines in his office, and he’s invested in the best one possible. He took me in to see it and explain, with the help of his nurse practitioner, how it works. I was awed. He’s 70 years old, and I don’t know what I’ll do if he ever retires! But thank goodness, he seems to enjoy his work so much, he’s up on all the newest treatments, he’s open to alternative medicine (he’d suggested lavender capsules to me for panic/anxiety disorder; I tried them for at least three months, and they had no effect, alas), and he’s eternally curious. A great guy! Just referred one of my friends to him, who loves him just as much as I do.

Hazel

REPLY
@boourbonman

I promised you all I would let you know when I got approved for Medical Marijuana. Judi and I did it. We then went down to Edgewater FL. and got two 500 mg bottles. $70 each. So we were suppose to start with 5 drops (each drop is a mg.) three times a day and slowly work up to 10 drops 3 times a day. Do the math. 16 days for $70. We are both at 5 drops 3 times a day and no relief. I sure hope it starts to ease our pain. Will Keep you posted.
Hoot

Jump to this post

Yes, I think it’s supposed to be dark chocolate, as dark as you can stand it. I don’t like the really really really cacao laden stuff with 90% cacao. But less cacao than that, and I’m there! Also hot chocolate is wonderful! Try it with a little nip of cayenne in it. Or cinnamon.

Hazel

REPLY
@boourbonman

I promised you all I would let you know when I got approved for Medical Marijuana. Judi and I did it. We then went down to Edgewater FL. and got two 500 mg bottles. $70 each. So we were suppose to start with 5 drops (each drop is a mg.) three times a day and slowly work up to 10 drops 3 times a day. Do the math. 16 days for $70. We are both at 5 drops 3 times a day and no relief. I sure hope it starts to ease our pain. Will Keep you posted.
Hoot

Jump to this post

hazel, i am still having the same problems as you are. even when i unsubscribe and change my site. it is overwhelming. very overwhelming. is there something wrong or am i just very computer illiterate?

REPLY
Please login or register to post a reply.