Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@boourbonman

I promised you all I would let you know when I got approved for Medical Marijuana. Judi and I did it. We then went down to Edgewater FL. and got two 500 mg bottles. $70 each. So we were suppose to start with 5 drops (each drop is a mg.) three times a day and slowly work up to 10 drops 3 times a day. Do the math. 16 days for $70. We are both at 5 drops 3 times a day and no relief. I sure hope it starts to ease our pain. Will Keep you posted.
Hoot

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@coleen. I know you are 100% right, Coleen. It is just frustrating for those who are really in pain and do not want to use “legal” opiods and narcottics. It just makes no sense to me.

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@boourbonman

I promised you all I would let you know when I got approved for Medical Marijuana. Judi and I did it. We then went down to Edgewater FL. and got two 500 mg bottles. $70 each. So we were suppose to start with 5 drops (each drop is a mg.) three times a day and slowly work up to 10 drops 3 times a day. Do the math. 16 days for $70. We are both at 5 drops 3 times a day and no relief. I sure hope it starts to ease our pain. Will Keep you posted.
Hoot

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dear artscaping if needed i adopt an older dog from the pound so the dog should not outlive me. an older dog is usually calmer than the younger ones. and you would be doing a blessing. of course this is only if you can do this.

Liked by blindeyepug

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Yes thanks for the reminder. Roxie’s breeder accepts dogs from their kennel to be returned when owners can no longer care for they. They are then re-adopted as mature companions.

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@boourbonman

I promised you all I would let you know when I got approved for Medical Marijuana. Judi and I did it. We then went down to Edgewater FL. and got two 500 mg bottles. $70 each. So we were suppose to start with 5 drops (each drop is a mg.) three times a day and slowly work up to 10 drops 3 times a day. Do the math. 16 days for $70. We are both at 5 drops 3 times a day and no relief. I sure hope it starts to ease our pain. Will Keep you posted.
Hoot

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@oldkarl. I just want you to know what a blessing you are on this site. You are akways encouraging and aleays give such great information and resources. Thank you for being of help to me and so many others!❤

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@colleenyoung

Hi all,
I’m Colleen, Community Director and part of Connect’s moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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Only giving my opinion. Not meant to persuade. Marield65

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@colleenyoung

Hi all,
I’m Colleen, Community Director and part of Connect’s moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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Cassie decision is definitely up to you. I was only putting in my 2 cents. Coming from a 72 year young woman. I wish you the best in whatever decision you make. Marield65

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@hazelblumberg

I developed earaches in September 2016. My primary care found no ear or sinus infection and sent me to an ENT, who diagnosed TMJ pain. I went to my dentist for help. He gave me weekly anesthesia shots into trigger points (OUCH!) and exercises to do, including massaging the trigger points and opening my mouth as wide as I could numerous times in the shower while my face was warm and wet. (I have been wearing a night guard made by my dentist for over 20 years; he replaces them as they wear out.) The pain continued and only got worse; it was at the top of my head, in my ears, in my jaw, above my palate (as though I’d eaten hot food). My dentist sent me to an oral surgeon, who did 360-degree x-rays and found no joint damage. He told me I was therefore not a candidate for surgery (YAY!) and prescribed Flexeril, a muscle relaxer. The pain only got worse, and I continued to wake up in the night with horrific pain. Ibuprofen didn’t even touch it.

My dentist then sent me to a physical therapist, who didn’t listen to a word I said. I came in on a “good” pain day: my pain level was about a 5 out of 10 (10 being the worst). After his examination and showing me how to do various exercises, he triumphantly told me that my pain level was now reduced. I said “No. My pain level is now about 7.5.” He said he didn’t believe me. He attempted to push me to go to his outside clinic to get “magnet therapy,” and he tried to push me to see a friend of his who is a naturopath. Two days after this session, I was still in excruciating pain and doubt I’d ever return to this physical therapist, although he had me schedule 4 more 1-hour sessions with him.

I called my dentist again, and he called in a prescription for Tylenol plus codeine, which I can take every 4 to 6 hours. My dentist seems to have no further solutions for me.

My primary care is currently out of town, but I will see her when she gets back (in August); she may be referring me to a pain management specialist, which my dentist recommended–however, my dentist refuses to give me a referral to such a specialist, even though the specialist will take referrals from dentists or doctors.

I have been treated for many years for clinical depression and panic/anxiety disorder by my psychiatrist, and the meds have helped me immensely. On Monday I see my psychiatrist for my usual 6-month med check, and I’m going to ask him for help with the terrible TMJ pain. I have also had fibromyalgia and chronic fatigue syndrome for a long time. The fibro pain has greatly lessened over time and hardly bothers me, but the CFS continues.

The TMJ pain makes it difficult to concentrate. I’m self-employed, and I enjoy my work. But pain gets in the way, as it does in every single situation: work or pastimes. My dentist mentioned massage therapy, but I’m in too much pain right now to try it. Another friend mentioned using a TENS unit. I feel as though I’m not living; to be in constant pain is hardly living, at least to me.

Any other suggestions? Would a TENS unit help? I’m more than willing to purchase one. I’ll try just about anything to be pain free. Sometimes I am pain free. But I spend about 2 weeks out of every month in serious pain. I am feeling very discouraged.

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To Jim and Hazel, I appreciate the fact that you brought into the conversation about how you reacted to the meds. Did they say it was Delirium ? I had Delirium from a bad reaction to DiLaudid and they wanted to tie me to the bed but my husband would not let them so they had a CNA with me 24-7. I kept trying to get out of bed and I just had my knee replacement. I wrote a long post if you could find it , telling what it was like being on the other side.
Jim, when you were in that other world, were you dreaming or hallucinating? I was busy going places looking for my grandchildren while I was in the other world. It was so scary I am afraid to have surgery again. Do you think it will happen to you again? Marield65

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@hazelblumberg

I developed earaches in September 2016. My primary care found no ear or sinus infection and sent me to an ENT, who diagnosed TMJ pain. I went to my dentist for help. He gave me weekly anesthesia shots into trigger points (OUCH!) and exercises to do, including massaging the trigger points and opening my mouth as wide as I could numerous times in the shower while my face was warm and wet. (I have been wearing a night guard made by my dentist for over 20 years; he replaces them as they wear out.) The pain continued and only got worse; it was at the top of my head, in my ears, in my jaw, above my palate (as though I’d eaten hot food). My dentist sent me to an oral surgeon, who did 360-degree x-rays and found no joint damage. He told me I was therefore not a candidate for surgery (YAY!) and prescribed Flexeril, a muscle relaxer. The pain only got worse, and I continued to wake up in the night with horrific pain. Ibuprofen didn’t even touch it.

My dentist then sent me to a physical therapist, who didn’t listen to a word I said. I came in on a “good” pain day: my pain level was about a 5 out of 10 (10 being the worst). After his examination and showing me how to do various exercises, he triumphantly told me that my pain level was now reduced. I said “No. My pain level is now about 7.5.” He said he didn’t believe me. He attempted to push me to go to his outside clinic to get “magnet therapy,” and he tried to push me to see a friend of his who is a naturopath. Two days after this session, I was still in excruciating pain and doubt I’d ever return to this physical therapist, although he had me schedule 4 more 1-hour sessions with him.

I called my dentist again, and he called in a prescription for Tylenol plus codeine, which I can take every 4 to 6 hours. My dentist seems to have no further solutions for me.

My primary care is currently out of town, but I will see her when she gets back (in August); she may be referring me to a pain management specialist, which my dentist recommended–however, my dentist refuses to give me a referral to such a specialist, even though the specialist will take referrals from dentists or doctors.

I have been treated for many years for clinical depression and panic/anxiety disorder by my psychiatrist, and the meds have helped me immensely. On Monday I see my psychiatrist for my usual 6-month med check, and I’m going to ask him for help with the terrible TMJ pain. I have also had fibromyalgia and chronic fatigue syndrome for a long time. The fibro pain has greatly lessened over time and hardly bothers me, but the CFS continues.

The TMJ pain makes it difficult to concentrate. I’m self-employed, and I enjoy my work. But pain gets in the way, as it does in every single situation: work or pastimes. My dentist mentioned massage therapy, but I’m in too much pain right now to try it. Another friend mentioned using a TENS unit. I feel as though I’m not living; to be in constant pain is hardly living, at least to me.

Any other suggestions? Would a TENS unit help? I’m more than willing to purchase one. I’ll try just about anything to be pain free. Sometimes I am pain free. But I spend about 2 weeks out of every month in serious pain. I am feeling very discouraged.

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@marield65

Early this year, I was delirious as a reaction to Lyrica. I couldn’t finish a sentence, and was in the hospital for a couple of nights. They put in an NG tube, which I’ve endured a number of times, but this time, I had a panic attack, and they had to take it out. It wasn’t immediate, but it escalated over the time of a couple of hours.

It’s hard to pin a label on the nightmares. I had the feeling of demonic presence. It was scary and weird. I believed that I went to somewhere in Asia to get expert treatment. I had a lot of weird experiences there. When I recovered, they put me in a barrel, put it in the ocean, and I later found myself back in the US, on the front lawn of a hospital. Strange!

Another time, it wasn’t scary nightmares. I was just out of touch with reality. I kept getting out of bed. I thought my brother was in town, driving around, then I thought he was outside the hospital door raping or killing my daughter. My wife had to call my mother in Fresno, CA, and had her convince me that he was there with her (he was living with Mom). I was definitely not myself. I don’t know why this happened. I was in the hospital for a severe bowel obstruction. I suppose it could have been medication related.

I wouldn’t be surprised if something similar would happen to me in the hospital. I hope not, but it’s surely a possibility.

Jim

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@hazelblumberg

I developed earaches in September 2016. My primary care found no ear or sinus infection and sent me to an ENT, who diagnosed TMJ pain. I went to my dentist for help. He gave me weekly anesthesia shots into trigger points (OUCH!) and exercises to do, including massaging the trigger points and opening my mouth as wide as I could numerous times in the shower while my face was warm and wet. (I have been wearing a night guard made by my dentist for over 20 years; he replaces them as they wear out.) The pain continued and only got worse; it was at the top of my head, in my ears, in my jaw, above my palate (as though I’d eaten hot food). My dentist sent me to an oral surgeon, who did 360-degree x-rays and found no joint damage. He told me I was therefore not a candidate for surgery (YAY!) and prescribed Flexeril, a muscle relaxer. The pain only got worse, and I continued to wake up in the night with horrific pain. Ibuprofen didn’t even touch it.

My dentist then sent me to a physical therapist, who didn’t listen to a word I said. I came in on a “good” pain day: my pain level was about a 5 out of 10 (10 being the worst). After his examination and showing me how to do various exercises, he triumphantly told me that my pain level was now reduced. I said “No. My pain level is now about 7.5.” He said he didn’t believe me. He attempted to push me to go to his outside clinic to get “magnet therapy,” and he tried to push me to see a friend of his who is a naturopath. Two days after this session, I was still in excruciating pain and doubt I’d ever return to this physical therapist, although he had me schedule 4 more 1-hour sessions with him.

I called my dentist again, and he called in a prescription for Tylenol plus codeine, which I can take every 4 to 6 hours. My dentist seems to have no further solutions for me.

My primary care is currently out of town, but I will see her when she gets back (in August); she may be referring me to a pain management specialist, which my dentist recommended–however, my dentist refuses to give me a referral to such a specialist, even though the specialist will take referrals from dentists or doctors.

I have been treated for many years for clinical depression and panic/anxiety disorder by my psychiatrist, and the meds have helped me immensely. On Monday I see my psychiatrist for my usual 6-month med check, and I’m going to ask him for help with the terrible TMJ pain. I have also had fibromyalgia and chronic fatigue syndrome for a long time. The fibro pain has greatly lessened over time and hardly bothers me, but the CFS continues.

The TMJ pain makes it difficult to concentrate. I’m self-employed, and I enjoy my work. But pain gets in the way, as it does in every single situation: work or pastimes. My dentist mentioned massage therapy, but I’m in too much pain right now to try it. Another friend mentioned using a TENS unit. I feel as though I’m not living; to be in constant pain is hardly living, at least to me.

Any other suggestions? Would a TENS unit help? I’m more than willing to purchase one. I’ll try just about anything to be pain free. Sometimes I am pain free. But I spend about 2 weeks out of every month in serious pain. I am feeling very discouraged.

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Sorry you had such a bad reaction. I just didn’t like the reaction I had. Too sleepy.

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@hazelblumberg

Blindeyepug, yup, that physical therapist was, um, interesting, to put it kindly and mildly. Makes me wonder about my dentist, whom I’ve gone to for about 25 years, who wrote me a referral to this nutcase.

My state (FL) now allows medical marijuana: hallelujah! However, there are a lot of hoops that healthcare providers have to jump through before they’re “qualified” to dispense it. They have to get “special training,” which, I think, entails coursework. FL seems to be trying to do everything it can to discourage use of medical marijuana. Of course, I’m sure that, if the legislators or their families and friends need it for pain, to counteract the nauseating effects of chemotherapy, etc., they’re able to get it quite easily. What hypocrisy! But I definitely want to try it for my TMJ pain.

I’m looking into acupuncture. I’d rather have an MD/acupuncturist or an NP/acupuncturist or an RN/acupuncturist than just an acupuncturist. I went to an MD/acupuncturist when I had severe Bell’s palsy, and that was the ONLY thing that relieved the facial paralysis. It’s a pity that this doc has since retired. Anyone have any experience with acupuncture for TMJ pain? And I’m seriously considering buying a TENS unit, as other folks here seem to find them helpful.

So far, I’m really impressed by the kindness, helpfulness, and suggestions of the folks on Mayo Connect. I’m so glad I found you folks!

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Medical marijuana has helped me some. I just don’t like the drugged feeling. I try to meditate but sometimes tou need something else.

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@sandytoes14

@parus I love your statement “chronic pain is not for whiner’s nor wimp’s” That is so very true! I have had chronic pain for over 20 years now. It’s a marathon. I have many issues causing me pain. Fibro, migraines, spinal stenosis, degenerative disc of C4 -C6, lumbar pain and TMJ.
@hazelblumberg we are glad you found us too! I see John has tagged a discussion about TMJ earlier in this thread. An easy way to find conversations taking place is to go to the very top of your screen and click on the magnifying glass, you can type a search word or terms.

Jen

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Yes. It is not for whimps. Ee do the best we can. I have to remind myself sometimes it is what it is and do what you need to. Hard for others to understand.

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@boourbonman

I promised you all I would let you know when I got approved for Medical Marijuana. Judi and I did it. We then went down to Edgewater FL. and got two 500 mg bottles. $70 each. So we were suppose to start with 5 drops (each drop is a mg.) three times a day and slowly work up to 10 drops 3 times a day. Do the math. 16 days for $70. We are both at 5 drops 3 times a day and no relief. I sure hope it starts to ease our pain. Will Keep you posted.
Hoot

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We adopt senior dogs–and senior cats. All of our dogs have been seniors, and they have been absolutely wonderful. Most have lived in a home and know the rules. Most are housetrained. Most know how to walk well on a leash. Some have been through one of those inmate programs, in which they live with an inmate at a prison and the inmate trains them. (One of our dogs came from such a program and was the perfect dog.) And seniors are SO grateful to be adopted. They KNOW that you’ve saved their lives, and their gratitude lasts a lifetime. Anyway, artscaping, I hope you’ll consider adopting a senior dog. They are just the best companions.

Hazel (and Sidney and Butch, our rescue dogs, agree)

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@boourbonman

I promised you all I would let you know when I got approved for Medical Marijuana. Judi and I did it. We then went down to Edgewater FL. and got two 500 mg bottles. $70 each. So we were suppose to start with 5 drops (each drop is a mg.) three times a day and slowly work up to 10 drops 3 times a day. Do the math. 16 days for $70. We are both at 5 drops 3 times a day and no relief. I sure hope it starts to ease our pain. Will Keep you posted.
Hoot

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Peach, totally and utterly agree with you on this. No one seems to comprehend that there are those of us who are in PAIN and who genuinely need pain medications. When I think of the pain and the nausea that people with cancer have when they go through chemo, and how they, in a weakened state, have to fight to get medication–or MM–to help them, it infuriates me. You can bet that our lawmakers don’t stint themselves when they’re in pain. Grrrrrrrrrrr. (This is what happens when you live in a state capital and get to see politics up close and dirty.)

Hazel

Liked by blindeyepug

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@boourbonman

I promised you all I would let you know when I got approved for Medical Marijuana. Judi and I did it. We then went down to Edgewater FL. and got two 500 mg bottles. $70 each. So we were suppose to start with 5 drops (each drop is a mg.) three times a day and slowly work up to 10 drops 3 times a day. Do the math. 16 days for $70. We are both at 5 drops 3 times a day and no relief. I sure hope it starts to ease our pain. Will Keep you posted.
Hoot

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And I forgot to add: those of us who’re in pain aren’t taking medications or MM for the sheer joy of it. We are in pain! Pain is as medical a condition as is anything else. Honestly, it took long enough for there to be less stigma about so-called mental illness–which is just as physiological as kidney disease or heart disease or. . . .; it’s just that our brain chemicals are involved–so now the stigma has shifted to people who’re in pain? No, not all of us are drug/opioid addicts. Again: Grrrrrrr.

Hazel

Liked by blindeyepug

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@boourbonman

I promised you all I would let you know when I got approved for Medical Marijuana. Judi and I did it. We then went down to Edgewater FL. and got two 500 mg bottles. $70 each. So we were suppose to start with 5 drops (each drop is a mg.) three times a day and slowly work up to 10 drops 3 times a day. Do the math. 16 days for $70. We are both at 5 drops 3 times a day and no relief. I sure hope it starts to ease our pain. Will Keep you posted.
Hoot

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Mikween, I received a catalogue from the Vermont Country Store yesterday, and they offer hemp oil. I think it’s blended with a bunch of other stuff, however. Anyway, they’re online. Take a look at their “old-time remedies.” I don’t know if their hemp oil is strong enough to help, granted.

Hazel

Liked by blindeyepug

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