Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

@jw9

@wisco50
I understand your valid concern about your doctor retiring. It's a strange place to be in; chronic pain, something that helps us find a better quality of life, plus there's always a question about finding a doctor who will help. NSAIDs are really supposed to be short-term. Too much risk of GI discomfort or bleeds. Thinking of you!

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I have chronic pain. All the time

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@pegsj3

I’ve been hoping that they would give me some kind of pain med like hydrocodone, or oxycodone or something. Can a person Max, out on pain relief with that?
I’m really sorry that you’re struggling with trying to find relief. I can relate. It sure makes life difficult.

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Dear pegsj3, Wow, without introducing myself yet, This is my attempt to respond: My personal experiences with pain is related to periodic attacks of kidney stones over 50 adult years that became so severe at times that I had to be hospitalized. The last time, two years ago, kidney stones lead to sepsis and the doctor asked me if I wanted my last rites because he was unsure if I would live. The pain was so severe I couldn't respond to him. Nine days of exquisite pain. But that pain was "come and gone". They used everything you can name from Oxy to morphine.
About twenty years ago arthritis began to develop in my left hand. Over the last two plus decades it further developed in my hips where it became severe and acute and then in my neck. The difference is, this arthritis pain comes to roost and it doesn't end.
Somehow I feel lucky that I don't have the pain that others relate in this forum.
Experience only suggests to me that the morphine type medicines like Vicodin, Oxy, and morphine don't have long lasting effectiveness. If you are like me, "doomed" as said in "Fear and Loathing in Las Vegas," then after two or three years on those medicines they won't be working for you. They are better for short term pain like kidney stones.
If a person is writing the last chapter in the autobiography of their life, then maybe those meds are ok. that would include fentanyl patches.
Best of luck to you and more power to you.

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@elainestewart48

You’re not ranting so don’t apologize!!
You’re living with constant pain and this is a horrible way to live.
As I read submissions written by people who live in horrible pain, I see so many suggestions that I haven’t tried yet.
You give me hope that maybe I’ll land on a solution that can allow me to live with less pain for even a little while.
Please everyone, keep posting and tell us what has and hadn’t worked to help your pain.
We are all listening!!!😁

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Music, really loud metal music on my headphones help me deal with the pain from my arthritis and neuropathy whenever I'm having a really bad night.

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Hello. Diagnosed with forestiers disease three years ago. Looking for people who are going through the pain issues I’m experiencing.

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@jhubler72

My name is Jon, i was diagnosed with central sensitization 3 years ago to this day i can not endure even slicing an onion at the counter or transferring clothes from the washer to the dryer. My last appointment with physical therapy the therapist would not even do soft tissue treatment due to the amount of muscle spasms i was incurring.

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I had a spinal fust4 years ago and found out this year my back was fused out of alignment causing me to lean forward. This year I started having severe muscle spasms in my lower back and legs Started taking Diclofenac and spasms are gone. Even tried the new drug, Journavx without relief. I hope your doctor can help you. My spasms were so severe It hurt to take a deep breath. Also take Tylenol 650 mg . twice daily.

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@mrmacabre

Music, really loud metal music on my headphones help me deal with the pain from my arthritis and neuropathy whenever I'm having a really bad night.

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I have constant pain from 2 MS like illnesses and music does the same thing for me. Mine is not metal, but anything that takes me to a happier or even different place. All the best to you and every one of us

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