Chronic Pain members - Welcome, please introduce yourself

Hi my name is Rhonda and I have chronic health issues. I know I’m going through as we speak Neoraphy from being a Diebic and it’s kicking the heck out of me! The pain is so bad, I don’t know what to do anymore!
Cinnamon, honey, gabbapentine,red tea with sea moss. Nothing seems to help this condition! Any suggestions? Please and Thank you🙌🏽

My name is David Yapp; I retired from work two months ago. I was a financial controller for 4 life science companies (Baxter Healthcare, Novartis, Amgen, and Danaher); I had an ependymoma (C6/C7) removed from my spinal cord 27 years ago which impacted my walking & pain levels (degrading over time); I'm also a type 1.5 diabetic & have to be careful of my food intake to keep my A1C below 7.0. I'm ready to start the next chapter in my life. I really like to help people like they helped me 27 years ago (a pretty scary time). If you'd like to chat or ask me questions, please feel free.

@mzlovely, do you have insurance and does it cover pain management. There might be ways to handle your pain without narcotics, which seems to be your goal.

Hi my name is Melissa. I am 58 years old. I herniated a lumbar disc in 2014 had one surgery, then had another surgery in 2016 at the same level. In 2019 had surgery on my neck. All those specific areas don't seem to cause me significant pain anymore but it seems they've led to a cascade effect throughout my body. I have acute on chronic pain in one hip and hamstring that no one can figure out. I've had multiple surgeries on my hands and now have chronic pain there as well. Over the last year I've had a flare up of TMJ that I didn't even know I had which led to treatment of my teeth and jaw and a significant amount of weight loss. It seems like when one thing stops hurting another thing starts. I never stopped being active because that keeps my spirits up and my body strong. It's a huge bummer that in many ways I seem to have more issues than my 86-year-old mother. Also a bummer that I had planned other things for retirement. LOL

Garry

@melissamc Very few of us get to pick their retirement and are able to actually live that way. I had planned on working at my job until I was 70 so the house would be paid off, but I came up 14 years short on my plans. The reason, chronic pain from osteoarthritis and idiopathic neuropathy in my feet. We lost the house after I had to "retire" and go on permanent disability for over a decade. Now I'm 67, live in chronic pain 24/7/365 days a year, and we'll never own a home again while struggling financially this whole time. The reason I might sound bitter is because I am. This isn't what I envisioned as my retirement.

My online name is CaroleSG. I originally joined the myeloma group many years ago then found this Chronic Pain group. I have systemic arthritis with concentrations in both feet, hands, cervical spine plus entire spine. After 30 years of NSAIDS with subsequent kidney damage which eliminated my use of NSAIDS, my pain is partially helped with Tramadol, a MILD opioid, arthritis strength Tylenol 650 mg tabs, and occasional cortisone shots when I just can’t stand pain anymore. I am currently researching physicians who specialize in finger joint replacements. I became a nurse late in life and I like to help others by giving information.

Hi, I am Betty. I have had chronic back and leg pain for 40 years. I currently suffer from TERRIBLE pain and nothing helps much at all. I have a spinal stimulator and it is worthless. I would welcome any help.

@melissamc
I understand your pain and frustration completely. I'm also experiencing chronic pain that no doctor can address, which has been about 10 top surgeons in NY. Started with TLIFT Was on hydromorphone for years, tried all available biologics, PT and medical massages. Nothing has helped. Doctors say either a complete spinal fusion, SCS or nothing at all. No guarantee on outcomes. Currently trying LDN, Celebrex and arthritis strength Tylenol. Feel like I'm 90 but only 70. The frustration and depression is overwhelming at times. Hang in there. My mantra is 'things can always be worse'

Good morning. I'm 65. Postpartum depression at age 31 with loss of thyroid function
Lumbar stenosis with fusion L4L5S1S2 in 2016. Have been on Cymbalta 90mg per day for 25 years. During a medication change 2+ years ago experienced extreme anxiety and developed excruciating head neck and shoulder pain - no treatment helping past 1 or2 days. Finally saw my old pain clinic Dr who called me "a high functioning Fibromyalgia sufferer" in too good shape to be a pain clinic patient. Suggestions - aerobics 3x a week. Thanks
LDN - almost ready to begin 2nd month doubling of dose.
Went back to acupuncture after 15 years. 1st visit minimal relief. Last visit after a very painful needling and tearing of my scalp fascia and and brutal manual fascial release, I am 50% better still 4 days later. This is a minor breakthrough.I have been ignoring pain since at least 2008 so am still fully mobile. Tried Gabapentin 3600mg / day years ago. No relief no side effects. No medication helps the pain in any way so don't take analgesic.
Thank God for heat and cannibis. Judy 18