Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@parus I love your statement “chronic pain is not for whiner’s nor wimp’s” That is so very true! I have had chronic pain for over 20 years now. It’s a marathon. I have many issues causing me pain. Fibro, migraines, spinal stenosis, degenerative disc of C4 -C6, lumbar pain and TMJ.
@hazelblumberg we are glad you found us too! I see John has tagged a discussion about TMJ earlier in this thread. An easy way to find conversations taking place is to go to the very top of your screen and click on the magnifying glass, you can type a search word or terms.

Jen

2017-07-29_LI

REPLY
@hazelblumberg

I developed earaches in September 2016. My primary care found no ear or sinus infection and sent me to an ENT, who diagnosed TMJ pain. I went to my dentist for help. He gave me weekly anesthesia shots into trigger points (OUCH!) and exercises to do, including massaging the trigger points and opening my mouth as wide as I could numerous times in the shower while my face was warm and wet. (I have been wearing a night guard made by my dentist for over 20 years; he replaces them as they wear out.) The pain continued and only got worse; it was at the top of my head, in my ears, in my jaw, above my palate (as though I’d eaten hot food). My dentist sent me to an oral surgeon, who did 360-degree x-rays and found no joint damage. He told me I was therefore not a candidate for surgery (YAY!) and prescribed Flexeril, a muscle relaxer. The pain only got worse, and I continued to wake up in the night with horrific pain. Ibuprofen didn’t even touch it.

My dentist then sent me to a physical therapist, who didn’t listen to a word I said. I came in on a “good” pain day: my pain level was about a 5 out of 10 (10 being the worst). After his examination and showing me how to do various exercises, he triumphantly told me that my pain level was now reduced. I said “No. My pain level is now about 7.5.” He said he didn’t believe me. He attempted to push me to go to his outside clinic to get “magnet therapy,” and he tried to push me to see a friend of his who is a naturopath. Two days after this session, I was still in excruciating pain and doubt I’d ever return to this physical therapist, although he had me schedule 4 more 1-hour sessions with him.

I called my dentist again, and he called in a prescription for Tylenol plus codeine, which I can take every 4 to 6 hours. My dentist seems to have no further solutions for me.

My primary care is currently out of town, but I will see her when she gets back (in August); she may be referring me to a pain management specialist, which my dentist recommended–however, my dentist refuses to give me a referral to such a specialist, even though the specialist will take referrals from dentists or doctors.

I have been treated for many years for clinical depression and panic/anxiety disorder by my psychiatrist, and the meds have helped me immensely. On Monday I see my psychiatrist for my usual 6-month med check, and I’m going to ask him for help with the terrible TMJ pain. I have also had fibromyalgia and chronic fatigue syndrome for a long time. The fibro pain has greatly lessened over time and hardly bothers me, but the CFS continues.

The TMJ pain makes it difficult to concentrate. I’m self-employed, and I enjoy my work. But pain gets in the way, as it does in every single situation: work or pastimes. My dentist mentioned massage therapy, but I’m in too much pain right now to try it. Another friend mentioned using a TENS unit. I feel as though I’m not living; to be in constant pain is hardly living, at least to me.

Any other suggestions? Would a TENS unit help? I’m more than willing to purchase one. I’ll try just about anything to be pain free. Sometimes I am pain free. But I spend about 2 weeks out of every month in serious pain. I am feeling very discouraged.

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Jim, I’m really concerned about ending up with ulcers, too. I’ve taken SO many ibuprofens since September, when this TMJ garbage started!

Is amitriptyline an antidepressant, or do I have it mixed up with something else? I’ve been taking clonazepam for panic/anxiety disorder for a long time and escitalopram (I should look up the spelling!) and Wellbutrin for depression for the last seven years. That combination seems to work well. I’m hoping that my psychiatrist will have some suggestions for my TMJ pain when I see him on Monday.

I like my work, except, of course, when I have tight deadlines. 😉 I’ve been self-employed since 1985, and there’s no way I could go back to working in an office again.

What really got my stress level going, I think, was the whole presidential campaign. (No, I won’t get into politics!) That’s a guess only. If that’s not what it was, then I’m really not sure what caused the stress. My dentist has checked my bite and my mouthguard, and nothing seems to be going wrong there. Maybe I should try wearing my mouthguard all day long when I’m not going anywhere. I wonder if that’d help.

Hazel

REPLY
@parus

Hello all!! I just started following…chronic pain is not for whiner’s nor wimp’s. Hoping to learn some things.

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Parus, you’ve got that right! Although I do admit that I do whine about it. I’m usually pretty stoic about pain, and I’ll put up with a lot of it for quite a while before I actually do something about it. My TMJ pain started in about September 2016 as earaches, and of course I just ignored them, thinking, as usual, “Oh, they’ll go away.” When they didn’t, I finally went to my primary care. She found no signs of an ear infection or a sinus infection, but just in case, she prescribed antibiotics. They didn’t do anything. That’s when she sent me to an ENT, who diagnosed TMJ pain. Since then, the pain moves around all over the place: the top of my head, my ears, my jaws, inside my mouth, you name it. OUCH.

I’m learning a lot from the folks here already, even though I, too, just joined. I think I’m going to order an inexpensive TENS unit today. I found one that some doctor in some article (I’ve been reading so many articles that I lose track!) really liked, and it’s only about $30 or less. Once it arrives–and I figure out how to use it–I’ll definitely let you folks know.

I was mentioning my TMJ pain to a friend today. She said that her daughter-in-law has migraines and had some sort of bar put into her ear by a body piercer (who’s also a nurse). The bar seems to be helping. So, she’s going to talk to her DIL and let me know who the body piercer is, and I’ll call and find out if that might work with TMJ pain.

The friend also mentioned “whole tones,” music that she’s listened to and liked and that’s supposed to be calming. I’m going to Google that and see what I find.

Anyway, hope you find relief from your pain!

Hazel

REPLY
@hazelblumberg

I developed earaches in September 2016. My primary care found no ear or sinus infection and sent me to an ENT, who diagnosed TMJ pain. I went to my dentist for help. He gave me weekly anesthesia shots into trigger points (OUCH!) and exercises to do, including massaging the trigger points and opening my mouth as wide as I could numerous times in the shower while my face was warm and wet. (I have been wearing a night guard made by my dentist for over 20 years; he replaces them as they wear out.) The pain continued and only got worse; it was at the top of my head, in my ears, in my jaw, above my palate (as though I’d eaten hot food). My dentist sent me to an oral surgeon, who did 360-degree x-rays and found no joint damage. He told me I was therefore not a candidate for surgery (YAY!) and prescribed Flexeril, a muscle relaxer. The pain only got worse, and I continued to wake up in the night with horrific pain. Ibuprofen didn’t even touch it.

My dentist then sent me to a physical therapist, who didn’t listen to a word I said. I came in on a “good” pain day: my pain level was about a 5 out of 10 (10 being the worst). After his examination and showing me how to do various exercises, he triumphantly told me that my pain level was now reduced. I said “No. My pain level is now about 7.5.” He said he didn’t believe me. He attempted to push me to go to his outside clinic to get “magnet therapy,” and he tried to push me to see a friend of his who is a naturopath. Two days after this session, I was still in excruciating pain and doubt I’d ever return to this physical therapist, although he had me schedule 4 more 1-hour sessions with him.

I called my dentist again, and he called in a prescription for Tylenol plus codeine, which I can take every 4 to 6 hours. My dentist seems to have no further solutions for me.

My primary care is currently out of town, but I will see her when she gets back (in August); she may be referring me to a pain management specialist, which my dentist recommended–however, my dentist refuses to give me a referral to such a specialist, even though the specialist will take referrals from dentists or doctors.

I have been treated for many years for clinical depression and panic/anxiety disorder by my psychiatrist, and the meds have helped me immensely. On Monday I see my psychiatrist for my usual 6-month med check, and I’m going to ask him for help with the terrible TMJ pain. I have also had fibromyalgia and chronic fatigue syndrome for a long time. The fibro pain has greatly lessened over time and hardly bothers me, but the CFS continues.

The TMJ pain makes it difficult to concentrate. I’m self-employed, and I enjoy my work. But pain gets in the way, as it does in every single situation: work or pastimes. My dentist mentioned massage therapy, but I’m in too much pain right now to try it. Another friend mentioned using a TENS unit. I feel as though I’m not living; to be in constant pain is hardly living, at least to me.

Any other suggestions? Would a TENS unit help? I’m more than willing to purchase one. I’ll try just about anything to be pain free. Sometimes I am pain free. But I spend about 2 weeks out of every month in serious pain. I am feeling very discouraged.

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Jennifer, it’s wonderful that you have a great PT! I’ve had a hand injury on one hand and then years later needed surgery on my other hand. Each time, I was sent to a PT. They were EXCELLENT. They listened, and they worked with me, and they found exercises for me that really helped. I have complete mobility in both hands as a result. I’ve held PTs in high regard as a result, so I was shocked to end up with this totally weird dude. My dentist must have pretty poor judgment to send anyone to this guy. UGH. If anyone’s near Tallahassee, Florida, and needs to know which PT to totally ignore, I’d be glad to tell you his name.

Hazel

Liked by Parus

REPLY
@hazelblumberg

I developed earaches in September 2016. My primary care found no ear or sinus infection and sent me to an ENT, who diagnosed TMJ pain. I went to my dentist for help. He gave me weekly anesthesia shots into trigger points (OUCH!) and exercises to do, including massaging the trigger points and opening my mouth as wide as I could numerous times in the shower while my face was warm and wet. (I have been wearing a night guard made by my dentist for over 20 years; he replaces them as they wear out.) The pain continued and only got worse; it was at the top of my head, in my ears, in my jaw, above my palate (as though I’d eaten hot food). My dentist sent me to an oral surgeon, who did 360-degree x-rays and found no joint damage. He told me I was therefore not a candidate for surgery (YAY!) and prescribed Flexeril, a muscle relaxer. The pain only got worse, and I continued to wake up in the night with horrific pain. Ibuprofen didn’t even touch it.

My dentist then sent me to a physical therapist, who didn’t listen to a word I said. I came in on a “good” pain day: my pain level was about a 5 out of 10 (10 being the worst). After his examination and showing me how to do various exercises, he triumphantly told me that my pain level was now reduced. I said “No. My pain level is now about 7.5.” He said he didn’t believe me. He attempted to push me to go to his outside clinic to get “magnet therapy,” and he tried to push me to see a friend of his who is a naturopath. Two days after this session, I was still in excruciating pain and doubt I’d ever return to this physical therapist, although he had me schedule 4 more 1-hour sessions with him.

I called my dentist again, and he called in a prescription for Tylenol plus codeine, which I can take every 4 to 6 hours. My dentist seems to have no further solutions for me.

My primary care is currently out of town, but I will see her when she gets back (in August); she may be referring me to a pain management specialist, which my dentist recommended–however, my dentist refuses to give me a referral to such a specialist, even though the specialist will take referrals from dentists or doctors.

I have been treated for many years for clinical depression and panic/anxiety disorder by my psychiatrist, and the meds have helped me immensely. On Monday I see my psychiatrist for my usual 6-month med check, and I’m going to ask him for help with the terrible TMJ pain. I have also had fibromyalgia and chronic fatigue syndrome for a long time. The fibro pain has greatly lessened over time and hardly bothers me, but the CFS continues.

The TMJ pain makes it difficult to concentrate. I’m self-employed, and I enjoy my work. But pain gets in the way, as it does in every single situation: work or pastimes. My dentist mentioned massage therapy, but I’m in too much pain right now to try it. Another friend mentioned using a TENS unit. I feel as though I’m not living; to be in constant pain is hardly living, at least to me.

Any other suggestions? Would a TENS unit help? I’m more than willing to purchase one. I’ll try just about anything to be pain free. Sometimes I am pain free. But I spend about 2 weeks out of every month in serious pain. I am feeling very discouraged.

Jump to this post

TMJ is horrific!!! Nothing would touch mine. I ended up being kicked to the curb as a head case, drug/attention seeking, etc. Walked a way from all doctors. Found a local TMJ specialist in 2010-made things worse and paid him $4600 up front. I don’t know how people like that sleep at night. In 2014 I tried again and this time the pain was helped. Totally soft diet and thankfully I am creative when it comes to recipes…I do not eat gluten, sugar and only whole foods. Thankfully there are blenders/processors. I also realized I am no longer able to eat anything in the Nightshade Family-that was a low blow!!! Causes a fibro flare from Hades. It is the peppers I miss!!!

So after $10,000 I have some relief. And as we know insurance will not cover this type of thing. I did it and the 1st charlatan is paid in full and also the 2nd. I am not a rich person either. Thankful I could get the help.

REPLY
@hazelblumberg

I developed earaches in September 2016. My primary care found no ear or sinus infection and sent me to an ENT, who diagnosed TMJ pain. I went to my dentist for help. He gave me weekly anesthesia shots into trigger points (OUCH!) and exercises to do, including massaging the trigger points and opening my mouth as wide as I could numerous times in the shower while my face was warm and wet. (I have been wearing a night guard made by my dentist for over 20 years; he replaces them as they wear out.) The pain continued and only got worse; it was at the top of my head, in my ears, in my jaw, above my palate (as though I’d eaten hot food). My dentist sent me to an oral surgeon, who did 360-degree x-rays and found no joint damage. He told me I was therefore not a candidate for surgery (YAY!) and prescribed Flexeril, a muscle relaxer. The pain only got worse, and I continued to wake up in the night with horrific pain. Ibuprofen didn’t even touch it.

My dentist then sent me to a physical therapist, who didn’t listen to a word I said. I came in on a “good” pain day: my pain level was about a 5 out of 10 (10 being the worst). After his examination and showing me how to do various exercises, he triumphantly told me that my pain level was now reduced. I said “No. My pain level is now about 7.5.” He said he didn’t believe me. He attempted to push me to go to his outside clinic to get “magnet therapy,” and he tried to push me to see a friend of his who is a naturopath. Two days after this session, I was still in excruciating pain and doubt I’d ever return to this physical therapist, although he had me schedule 4 more 1-hour sessions with him.

I called my dentist again, and he called in a prescription for Tylenol plus codeine, which I can take every 4 to 6 hours. My dentist seems to have no further solutions for me.

My primary care is currently out of town, but I will see her when she gets back (in August); she may be referring me to a pain management specialist, which my dentist recommended–however, my dentist refuses to give me a referral to such a specialist, even though the specialist will take referrals from dentists or doctors.

I have been treated for many years for clinical depression and panic/anxiety disorder by my psychiatrist, and the meds have helped me immensely. On Monday I see my psychiatrist for my usual 6-month med check, and I’m going to ask him for help with the terrible TMJ pain. I have also had fibromyalgia and chronic fatigue syndrome for a long time. The fibro pain has greatly lessened over time and hardly bothers me, but the CFS continues.

The TMJ pain makes it difficult to concentrate. I’m self-employed, and I enjoy my work. But pain gets in the way, as it does in every single situation: work or pastimes. My dentist mentioned massage therapy, but I’m in too much pain right now to try it. Another friend mentioned using a TENS unit. I feel as though I’m not living; to be in constant pain is hardly living, at least to me.

Any other suggestions? Would a TENS unit help? I’m more than willing to purchase one. I’ll try just about anything to be pain free. Sometimes I am pain free. But I spend about 2 weeks out of every month in serious pain. I am feeling very discouraged.

Jump to this post

There are indeed some total charlatans out there. From what I’ve read, any dentist can declare himself or herself to be a “TMJ specialist.” The American Dental Association doesn’t have or recognize any designations/specialties for that. So, I guess it’s all “buyer beware.” Who knew? My dentist is supposed to be one of the top 2 TMJ pain specialists where I live. If he’s one of the top two, I wonder how bad the other one is! I’ve checked, out of curiosity, on Google, and it’s amazing how many dentists here bill themselves as “TMJ/TMD specialists.”

Yeah, I think my dentist has decided that I’m a potential drug addict, given his utter unwillingness to give me a referral to a pain-management specialist, even though said pain-management specialist will indeed take a referral from a dentist or a primary care. (My primary care is out of town on vacation; I have an appointment to see her on August 8, when she returns.)

I’m rapidly approaching the point where I may be dumping my dentist. He’s been my dentist for 25 years. He knows every type of medication I take. He knows who my primary care is. He knows who my psychiatrist is (whom I’ve been seeing for years for clinical depression and panic/anxiety disorder). He knows I’d rather under-dose than over-dose myself with any medication–or not take it at all. Throughout my bout with TMJ pain, my dentist seems to be just calling in his treatment from afar. He really seems to’ve lost any interest in me as a patient. I guess I’m not spending enough money with him. Or perhaps, if he’s so burned out, he should just retire. His lack of interest is palpable. And his front-desk person is an utter horror. (My husband jokes that they’re probably having an affair with each other, since their attitudes are so similar. Actually, he could be right.)

I’ve tried eating nothing but soft foods, and I’ve seen no improvement whatsoever. So, I am flummoxed.

Hazel

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How do I stop receiving – stop following – I cant handle the email load????

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@jrchicago

How do I stop receiving – stop following – I cant handle the email load????

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Hello @jrchicago – Click your profile in the top right side next to the Request Appointment then select Account Settings. On the Account Settings screen go to the bottom to Disable Notifications and click Edit on the right side. Check the box to disable all notifications.

John

Capture

Capture2

REPLY
@hazelblumberg

I developed earaches in September 2016. My primary care found no ear or sinus infection and sent me to an ENT, who diagnosed TMJ pain. I went to my dentist for help. He gave me weekly anesthesia shots into trigger points (OUCH!) and exercises to do, including massaging the trigger points and opening my mouth as wide as I could numerous times in the shower while my face was warm and wet. (I have been wearing a night guard made by my dentist for over 20 years; he replaces them as they wear out.) The pain continued and only got worse; it was at the top of my head, in my ears, in my jaw, above my palate (as though I’d eaten hot food). My dentist sent me to an oral surgeon, who did 360-degree x-rays and found no joint damage. He told me I was therefore not a candidate for surgery (YAY!) and prescribed Flexeril, a muscle relaxer. The pain only got worse, and I continued to wake up in the night with horrific pain. Ibuprofen didn’t even touch it.

My dentist then sent me to a physical therapist, who didn’t listen to a word I said. I came in on a “good” pain day: my pain level was about a 5 out of 10 (10 being the worst). After his examination and showing me how to do various exercises, he triumphantly told me that my pain level was now reduced. I said “No. My pain level is now about 7.5.” He said he didn’t believe me. He attempted to push me to go to his outside clinic to get “magnet therapy,” and he tried to push me to see a friend of his who is a naturopath. Two days after this session, I was still in excruciating pain and doubt I’d ever return to this physical therapist, although he had me schedule 4 more 1-hour sessions with him.

I called my dentist again, and he called in a prescription for Tylenol plus codeine, which I can take every 4 to 6 hours. My dentist seems to have no further solutions for me.

My primary care is currently out of town, but I will see her when she gets back (in August); she may be referring me to a pain management specialist, which my dentist recommended–however, my dentist refuses to give me a referral to such a specialist, even though the specialist will take referrals from dentists or doctors.

I have been treated for many years for clinical depression and panic/anxiety disorder by my psychiatrist, and the meds have helped me immensely. On Monday I see my psychiatrist for my usual 6-month med check, and I’m going to ask him for help with the terrible TMJ pain. I have also had fibromyalgia and chronic fatigue syndrome for a long time. The fibro pain has greatly lessened over time and hardly bothers me, but the CFS continues.

The TMJ pain makes it difficult to concentrate. I’m self-employed, and I enjoy my work. But pain gets in the way, as it does in every single situation: work or pastimes. My dentist mentioned massage therapy, but I’m in too much pain right now to try it. Another friend mentioned using a TENS unit. I feel as though I’m not living; to be in constant pain is hardly living, at least to me.

Any other suggestions? Would a TENS unit help? I’m more than willing to purchase one. I’ll try just about anything to be pain free. Sometimes I am pain free. But I spend about 2 weeks out of every month in serious pain. I am feeling very discouraged.

Jump to this post

I also was on wellbutrin and klonazepam for many years to help with depression. When I started having increasing nerve pain due to a nerve disorder (complex regional pain syndrome) that was a result of an ankle fracture, one of my doctors shifted me from those meds to amitrtriptyline. I was told it addresses both depression and nerve pain.

REPLY
@hazelblumberg

I developed earaches in September 2016. My primary care found no ear or sinus infection and sent me to an ENT, who diagnosed TMJ pain. I went to my dentist for help. He gave me weekly anesthesia shots into trigger points (OUCH!) and exercises to do, including massaging the trigger points and opening my mouth as wide as I could numerous times in the shower while my face was warm and wet. (I have been wearing a night guard made by my dentist for over 20 years; he replaces them as they wear out.) The pain continued and only got worse; it was at the top of my head, in my ears, in my jaw, above my palate (as though I’d eaten hot food). My dentist sent me to an oral surgeon, who did 360-degree x-rays and found no joint damage. He told me I was therefore not a candidate for surgery (YAY!) and prescribed Flexeril, a muscle relaxer. The pain only got worse, and I continued to wake up in the night with horrific pain. Ibuprofen didn’t even touch it.

My dentist then sent me to a physical therapist, who didn’t listen to a word I said. I came in on a “good” pain day: my pain level was about a 5 out of 10 (10 being the worst). After his examination and showing me how to do various exercises, he triumphantly told me that my pain level was now reduced. I said “No. My pain level is now about 7.5.” He said he didn’t believe me. He attempted to push me to go to his outside clinic to get “magnet therapy,” and he tried to push me to see a friend of his who is a naturopath. Two days after this session, I was still in excruciating pain and doubt I’d ever return to this physical therapist, although he had me schedule 4 more 1-hour sessions with him.

I called my dentist again, and he called in a prescription for Tylenol plus codeine, which I can take every 4 to 6 hours. My dentist seems to have no further solutions for me.

My primary care is currently out of town, but I will see her when she gets back (in August); she may be referring me to a pain management specialist, which my dentist recommended–however, my dentist refuses to give me a referral to such a specialist, even though the specialist will take referrals from dentists or doctors.

I have been treated for many years for clinical depression and panic/anxiety disorder by my psychiatrist, and the meds have helped me immensely. On Monday I see my psychiatrist for my usual 6-month med check, and I’m going to ask him for help with the terrible TMJ pain. I have also had fibromyalgia and chronic fatigue syndrome for a long time. The fibro pain has greatly lessened over time and hardly bothers me, but the CFS continues.

The TMJ pain makes it difficult to concentrate. I’m self-employed, and I enjoy my work. But pain gets in the way, as it does in every single situation: work or pastimes. My dentist mentioned massage therapy, but I’m in too much pain right now to try it. Another friend mentioned using a TENS unit. I feel as though I’m not living; to be in constant pain is hardly living, at least to me.

Any other suggestions? Would a TENS unit help? I’m more than willing to purchase one. I’ll try just about anything to be pain free. Sometimes I am pain free. But I spend about 2 weeks out of every month in serious pain. I am feeling very discouraged.

Jump to this post

@hazelblumberg

Hazel,

I tried several antidepressants until I landed on Wellbutrin, and I started Clonazepam for anxiety at about the same time. One bonus is that it keeps me from acting out my dreams, which makes my wife happier.

I think that Amitriptyline is used for a few different things. I’ve used it for pain and as an add on to Wellbutrin. I haven’t taken it for quite awhile. Wellbutrin seems to keep me at a stable level, which doesn’t mean that it completely eliminates depression, but I think it keeps me from the mood swings.

I had an endoscopy and a colonoscopy a month or two ago, and it showed that everything gastrointestinal looks good, with no sign of ulcers. I don’t take NSAIDS every day, but only when my hands hurt from arthritis. I think that it’s been long enough since I had ulcers, I don’t worry about taking aspirin or Ibuprofen occasionally.

Jim

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@jrchicago You can also scroll down to the end of the email and unsubscribe from a thread…I hear you on the emails!!!! I am new to all of this and MERCY!
Takes time to figure things out. Disabling all notifications was my favorite option.

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We are all so different…any of the triptylines turned this person into a ferocious female feline as did Gabapentin (Neurontin), Lyrica, Savella, Cymbalta, in fact: all antidepressants even some of the newer ones. The Benzo’s put my mind in such a dark place…Now a new PCP and already playing w/ the one med (I only take one) I do take w/o side effects and 1 I have to have as my thyroid was destroyed long ago by a doctor that had his numbers wrong-I was 28 and now nearing 66. After years of taking the synthetic I became allergic to the name brand Synthroid as well as the generic. A rare thing…I truly do not believe that doctors even look at charts (now online for the world to see!). Called in an increase in my thyroid med and back on the synthetic!!!! Is this a new plot to kill old folks?? Took the help of the pharmacist to get this straightened out.

Help me! Help me! I have Doctorphobia!!!! Truly, I do…

Excuse. Needed to provide my own comic relief lest I stroked out. Back to a low simmer and once again dismounting soapbox. Where are the doctors at the Mayo clinic when I need them?? A pipe-dream.

REPLY
@hazelblumberg

I developed earaches in September 2016. My primary care found no ear or sinus infection and sent me to an ENT, who diagnosed TMJ pain. I went to my dentist for help. He gave me weekly anesthesia shots into trigger points (OUCH!) and exercises to do, including massaging the trigger points and opening my mouth as wide as I could numerous times in the shower while my face was warm and wet. (I have been wearing a night guard made by my dentist for over 20 years; he replaces them as they wear out.) The pain continued and only got worse; it was at the top of my head, in my ears, in my jaw, above my palate (as though I’d eaten hot food). My dentist sent me to an oral surgeon, who did 360-degree x-rays and found no joint damage. He told me I was therefore not a candidate for surgery (YAY!) and prescribed Flexeril, a muscle relaxer. The pain only got worse, and I continued to wake up in the night with horrific pain. Ibuprofen didn’t even touch it.

My dentist then sent me to a physical therapist, who didn’t listen to a word I said. I came in on a “good” pain day: my pain level was about a 5 out of 10 (10 being the worst). After his examination and showing me how to do various exercises, he triumphantly told me that my pain level was now reduced. I said “No. My pain level is now about 7.5.” He said he didn’t believe me. He attempted to push me to go to his outside clinic to get “magnet therapy,” and he tried to push me to see a friend of his who is a naturopath. Two days after this session, I was still in excruciating pain and doubt I’d ever return to this physical therapist, although he had me schedule 4 more 1-hour sessions with him.

I called my dentist again, and he called in a prescription for Tylenol plus codeine, which I can take every 4 to 6 hours. My dentist seems to have no further solutions for me.

My primary care is currently out of town, but I will see her when she gets back (in August); she may be referring me to a pain management specialist, which my dentist recommended–however, my dentist refuses to give me a referral to such a specialist, even though the specialist will take referrals from dentists or doctors.

I have been treated for many years for clinical depression and panic/anxiety disorder by my psychiatrist, and the meds have helped me immensely. On Monday I see my psychiatrist for my usual 6-month med check, and I’m going to ask him for help with the terrible TMJ pain. I have also had fibromyalgia and chronic fatigue syndrome for a long time. The fibro pain has greatly lessened over time and hardly bothers me, but the CFS continues.

The TMJ pain makes it difficult to concentrate. I’m self-employed, and I enjoy my work. But pain gets in the way, as it does in every single situation: work or pastimes. My dentist mentioned massage therapy, but I’m in too much pain right now to try it. Another friend mentioned using a TENS unit. I feel as though I’m not living; to be in constant pain is hardly living, at least to me.

Any other suggestions? Would a TENS unit help? I’m more than willing to purchase one. I’ll try just about anything to be pain free. Sometimes I am pain free. But I spend about 2 weeks out of every month in serious pain. I am feeling very discouraged.

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@jimhd Thank you for my morning chuckle…there are meds that can do some (can’t come up w/ word)…Wait! Lower inhibitions.

Good news about your test results.

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@hazelblumberg

I developed earaches in September 2016. My primary care found no ear or sinus infection and sent me to an ENT, who diagnosed TMJ pain. I went to my dentist for help. He gave me weekly anesthesia shots into trigger points (OUCH!) and exercises to do, including massaging the trigger points and opening my mouth as wide as I could numerous times in the shower while my face was warm and wet. (I have been wearing a night guard made by my dentist for over 20 years; he replaces them as they wear out.) The pain continued and only got worse; it was at the top of my head, in my ears, in my jaw, above my palate (as though I’d eaten hot food). My dentist sent me to an oral surgeon, who did 360-degree x-rays and found no joint damage. He told me I was therefore not a candidate for surgery (YAY!) and prescribed Flexeril, a muscle relaxer. The pain only got worse, and I continued to wake up in the night with horrific pain. Ibuprofen didn’t even touch it.

My dentist then sent me to a physical therapist, who didn’t listen to a word I said. I came in on a “good” pain day: my pain level was about a 5 out of 10 (10 being the worst). After his examination and showing me how to do various exercises, he triumphantly told me that my pain level was now reduced. I said “No. My pain level is now about 7.5.” He said he didn’t believe me. He attempted to push me to go to his outside clinic to get “magnet therapy,” and he tried to push me to see a friend of his who is a naturopath. Two days after this session, I was still in excruciating pain and doubt I’d ever return to this physical therapist, although he had me schedule 4 more 1-hour sessions with him.

I called my dentist again, and he called in a prescription for Tylenol plus codeine, which I can take every 4 to 6 hours. My dentist seems to have no further solutions for me.

My primary care is currently out of town, but I will see her when she gets back (in August); she may be referring me to a pain management specialist, which my dentist recommended–however, my dentist refuses to give me a referral to such a specialist, even though the specialist will take referrals from dentists or doctors.

I have been treated for many years for clinical depression and panic/anxiety disorder by my psychiatrist, and the meds have helped me immensely. On Monday I see my psychiatrist for my usual 6-month med check, and I’m going to ask him for help with the terrible TMJ pain. I have also had fibromyalgia and chronic fatigue syndrome for a long time. The fibro pain has greatly lessened over time and hardly bothers me, but the CFS continues.

The TMJ pain makes it difficult to concentrate. I’m self-employed, and I enjoy my work. But pain gets in the way, as it does in every single situation: work or pastimes. My dentist mentioned massage therapy, but I’m in too much pain right now to try it. Another friend mentioned using a TENS unit. I feel as though I’m not living; to be in constant pain is hardly living, at least to me.

Any other suggestions? Would a TENS unit help? I’m more than willing to purchase one. I’ll try just about anything to be pain free. Sometimes I am pain free. But I spend about 2 weeks out of every month in serious pain. I am feeling very discouraged.

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@jimhd I was prescribed a heavy dosage of ibuprofen too, mine for hip bursitis. I finally got to the point where I just did not feel good about taking so much of it so I quit, even though it really did help. Now, post-transplant I cannot take ibuprofen, aspirin, or any of those NSAIDS, only acetaminophen. Doesn’t help much, but better than nothing. You make me glad I quit when I did.
JK

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@sandytoes14

@parus I love your statement “chronic pain is not for whiner’s nor wimp’s” That is so very true! I have had chronic pain for over 20 years now. It’s a marathon. I have many issues causing me pain. Fibro, migraines, spinal stenosis, degenerative disc of C4 -C6, lumbar pain and TMJ.
@hazelblumberg we are glad you found us too! I see John has tagged a discussion about TMJ earlier in this thread. An easy way to find conversations taking place is to go to the very top of your screen and click on the magnifying glass, you can type a search word or terms.

Jen

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@sandytoes14 Jen, you look much younger than I am, but I have a shred of hope for you regarding migraines. I had horrible ones that started in HS, got worse in my 30s and continued for years — until I went through menopause. I rarely get a headache of any type now. It is such a relief. I do feel guilty though because my daughter has inherited my headaches, and hers too are horrible. Sometimes she calls when she has one and I think just talking can help her a bit, plus she knows I can totally emphasize. I used to find it helped me too. I think it probably just helps you to take your mind off of the headache for that brief period.
JK

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