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Chronic Pain members - Welcome, please introduce yourself
Welcome to the new Chronic Pain group.
I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Why not take a minute and introduce yourself.
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Then you remind him gently that his job is to treat you not the government. 😉
I am Dawn. I have a complex medical history. I've had ACDF surgery in 2019, it was successful. I have a few herniated doscs in L5/S1. Ive had 1 epidural steroid injection mid Jan. 2021. I also have adult scoliosis and neuropathy. In July 2020, I had a 2nd rotator cuff repair, but post op, my clavicle broke. Only thing is I didn't know this until 2.5 weeks post surgery. Surgery to pin the clavicle was Sept 2020. I continue with physical therapy. I am in pain daily, and I'm only 45 yrs of age. Definitely not where I thought I'd be in life.
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1 ReactionHappy Valentine’s Day, my dear friends! I hope you are well and loved by those around you because you are definitely loved here!
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2 Reactions@woogie. I am so sorry. That shouldn’t happen to anyone!
He has to justify lowering your dosage, woogie. He can’t just spout something like “opioids don’t work for nerve pain.” If you were maintained at a certain level and now you are not, TELL HIM. NOW. Call his office this minute. Report your symptoms, your pain levels. Show him what his actions are doing to his patient. You are the patient, not him. The guidelines are not for him or you, they are for others who do not KNOW WHAT THEY ARE DOING OR DON’T NEED THE MANAGEMENT. You need to be vocal. I know it’s hard to do so when the doctors are the ones who are supposed to know what to do. But they are not acting like doctors right now, they are acting like confused sheep.
Go to the AMA website and print off the opioid letter stating they don’t agree with the guidelines. Take it to him. He is the specialist not you. Ask him to act like one. You are the one who must LIVE with his actions, not the DEA, not the government. And you are suffering. Is that his intentions, what he was taught to do?
Make him think about what he’s doing. Do not speak to him in YOUR language, but HIS. Doctors only understand what they know. Go to him on his level. He took an oath to DO NO HARM. The government DID NOT.
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4 ReactionsOh shit
Hi @lily21, welcome to Mayo Clinic Connect. At 45 years of age, that is a lot to manage. You will meet many who understand in the following groups:
- Spine Health https://connect.mayoclinic.org/group/spine-health/
- Scoliosis - Introduce yourself and meet others https://connect.mayoclinic.org/discussion/scoliosis-introduce-yourself/
- Neuropathy https://connect.mayoclinic.org/group/neuropathy/
Great to keep up with PT. Do you have access to a pain management clinic or pain rehab program?
Wow! Maybe the doctor realizes you are taking too many opioids and are totally addicted and he is trying to wean you off the extremely high dose of 3 per day equals 180 pills per month😳
Maybe there is a better way for you🙏
Whoa! Be careful with that word! I was on Dilaudid for over six months and I did not become “addicted.” Just because you take opioids at dosages that are required to manage your pain and achieve a quality of life worth living do not mean they or I are “addicted.”
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5 ReactionsMy pain is only managed to 40% BY CHOICE to keep my doctors OFF the DEA radar. My life would drive most people to suicide and I am not addicted. By your standards, my doctor should lower my meds right now because I am.