Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Profile picture for Hank @jesfactsmon

@bustrbrwn22
Jen, here is a link to it: https://amazon.com/Therapy-Technology-Combining-Energies-Treatment/dp/B08R16Q6FL/ref=sr_1_1
Yesterday I could not find it on Amazon but today, here it is. Best, Hank

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Wow Hank that’s very expensive. I tried searching in Mayo Connect but can’t find other UV light cites. Can you help or do you know cheaper alternatives? Thanks so much as always!!

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@kelseydm. Hi. Looking for UV light alternatives that may help with 24x7 neuropathy pain. Help anyone??? Hank as always thanks for starting the ball.

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Profile picture for cristy71 @cristy71

Plz help me what can I do for the restless legs and my body jumping...and the pain where he changed my meds from 4 10 mg a day to 3. 7.5 a day

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@cristy71 I started taking Cymbalta for neuropathy pain a few months ago, and it's helped the pain a little - every little bit helps. When I moved up from 60mg to 90mg, my whole body twitched and jerked. After a couple of weeks of that, I dropped back down to 60mg, and the restless body syndrome went away for the most part.

As @faithwalker007. Renee said, it can take time for our bodies to adjust to medication levels. I would say that if your symptoms persist, and you can be sure that it's because of the drop in your medication, I would be talking to the doctor, telling them that 10mg was an effective pain control, whereas 7.5 is not, you have a right to receive a therapeutic dose. My doctor is trying to push me into believing that my morphine doesn't treat neuropathy pain, but for me, I know that it is.

Hang on to see if things level off. Then speak up and be a good advocate for yourself.

Jim

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Profile picture for bustrbrwn22 @bustrbrwn22

Wow Hank that’s very expensive. I tried searching in Mayo Connect but can’t find other UV light cites. Can you help or do you know cheaper alternatives? Thanks so much as always!!

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Hi everyone! I ended up sending the Laser TRX back also after several long tries for it to work which it has not but absolutely nothing has helped my nerve damage and i have tried absolutely everything!!!! Been putting CBD 1000 mil drops under my tongue for almost a month and has not helped at all either! Just so frustrating but so happy it has worked for you Jerid❤️ Guess I am going to have to accept living every day for the rest of my life with this daily excruciating pain! It will be 3 years next month😔

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Profile picture for bunnyp @bunnyp

Hi everyone! I ended up sending the Laser TRX back also after several long tries for it to work which it has not but absolutely nothing has helped my nerve damage and i have tried absolutely everything!!!! Been putting CBD 1000 mil drops under my tongue for almost a month and has not helped at all either! Just so frustrating but so happy it has worked for you Jerid❤️ Guess I am going to have to accept living every day for the rest of my life with this daily excruciating pain! It will be 3 years next month😔

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@bunnyp
Did you try medical marijuana and did that also not help you? What about kratom? Those are the two sure fire things for Linda's pain. Nothing else has touched it.

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Profile picture for bustrbrwn22 @bustrbrwn22

@jerid. Sorry I didn’t read this first. Can you provide make and model
Of red light laser you use? Thanks!

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I am wondering if these lights can be used if you have had a spinal fusion? Wondering if the tissue by the screws would be negatively affected by the light therapy? Thanks, Jane

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Profile picture for jpalmer16 @jpalmer16

I am wondering if these lights can be used if you have had a spinal fusion? Wondering if the tissue by the screws would be negatively affected by the light therapy? Thanks, Jane

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You would definitely need to ask your doctor about that🤔

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Try using an ice pack on the area for a short period of time. Cold really did help me before the laser. I am sorry it did not work for you as well. I am grateful it did for me. I have a local friend that absolutely loves his as well. Or as you finish your shower finish with as cold of water as you can stand on the effected area. I still do that every day when I shower, but mine is on my forehead and scalp so that is different then on your back. Or this summer, even if you don't normally swim go to the pool and let the cool water relax those nerves.

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Profile picture for Hank @jesfactsmon

@bunnyp
Did you try medical marijuana and did that also not help you? What about kratom? Those are the two sure fire things for Linda's pain. Nothing else has touched it.

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Heads up. The DEA is trying to get Kratom moved to Schedule I

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