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Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Faithwalker007 (Renee) | @faithwalker007 | Feb 11, 2021
In reply to @cristy71 "Plz help me what can I do for the restless legs and my body jumping...and the..." + (show)
@cristy71

Plz help me what can I do for the restless legs and my body jumping...and the pain where he changed my meds from 4 10 mg a day to 3. 7.5 a day

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I take Requip or ropinirole three times a day. It makes my legs tolerable.

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1 reply
Faithwalker007 (Renee) | @faithwalker007 | Feb 11, 2021

I have one suggestion for all facing opioid dosage decreases in this time hostile opioid environment. Become as educated about the TRUTH about the CDC Opioid Guidelines as you can, knowledgeable about your condition and rights as a patient, and do not become a VICTIM to your disease, pain, or anyone else.
Get your legislators involved on all levels if necessary.

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1 reply
Faithwalker007 (Renee) | @faithwalker007 | Feb 11, 2021
In reply to @briansr "Already trying. But if you put your name out there you can lose your Dr. The..." + (show)
@briansr

Already trying. But if you put your name out there you can lose your Dr.<br />
The feds are getting crazy and we are the ones who suffer. To many people<br />
are selling there meds an they get in the wrong hands and people die. My<br />
Drs office is looking like a factory for people to get drugs and I'm<br />
getting worried that they will be shut down. Still lost and trying!! briansr<br />

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Brian, I’ve been putting my name out there in the fight for opioids and chronic pain for a year now. And I won’t stop until we are treated like human beings and not criminals for having to take them.
I have no other option for many health reasons, verified and tested and I will not be made to suffer needlessly because of politics (well, as badly anyway.)

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Faithwalker007 (Renee) | @faithwalker007 | Feb 11, 2021
In reply to @faithwalker007 "I take Requip or ropinirole three times a day. It makes my legs tolerable." + (show)
@faithwalker007

I take Requip or ropinirole three times a day. It makes my legs tolerable.

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And full body jerks.

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lioness | @lioness | Feb 11, 2021
In reply to @downton "Thank you for this group and knowing that what we share really has to be experienced..." + (show)
@downton

Thank you for this group and knowing that what we share really has to be experienced to understand. I checked chronic pain and I do have that but other issues. I have not been able to sit t all for 12 years. I was a nurse very active outside of work. I sat down in a chair one day and my life completely changed. It felt as though I was sitting on broken glass knives. It did feel like i had a broken tail bone and a few months lter in the midst of some of my first imaging,it showed I did have a shattered tailbone.I had this removed and leaving it would have probably have been worthless as it was shattered but so many nerves in that area .I had tarlov cysts removed at the same time (which are cysts in the sacrum and mine were at S3 where the pudendal nerve exits the spine.got no help from this.ince that time the major things I have dealt with is being diagnosed with metastatic crohns(crohns that does not necessarilyeffect the colon but the skin,with all kinds of awful rashes in all kinds of places)effects the eyes,joint. i am now trying my third biologic,dupixent,for atopic dermatits. i sem to be already worse.you know how the story goes. But we must keep hope!

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@downton Welcome to our friendly group with problems and our solutions we share I'm a retired nurse who had 2back fractures one was work related it left me with nerve entrapment that gives me burning painful thighs then another fracture after retirement now osteoporosis .It's difficult for sure I take Tramadol once or twice a day that controls the pain somewhat but not my burnt thighs .They wake me at night so sleep disturbed most times .I'm sorry for what you go through .Get on some pain med that helps from your Dr. I also take CBD by New Age no THC in it .It takes the edge of Exercises help a lot and walking all light Wish you well We are all pain warriors

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lioness | @lioness | Feb 11, 2021
In reply to @cristy71 "Hi Kelsey.im cristy I've broken both my legs crushed tibia and fibia in left leg and..." + (show)
@cristy71

Hi Kelsey.im cristy I've broken both my legs crushed tibia and fibia in left leg and broke the right had surgery twice on right leg I've broken my back I've had 2 gastric bypass surgery 5 carpatunel surgery I've been on 10 mg hydrocodone. 4 times a day for 8 yrs due to new laws my dr cut me to 7.5 3 times a day.now I'm having restless legs full body terettes can't sleep my pain is unbearable..plz help me what can I do

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@cristy71 Hi Cristy With all you have you could be our poster child pain warrior For my restless legs I make sure I'm well hydrated and take potassium ,99mg just from Walgreens.If really bad ,old remedy that works I'd drink pickle juice Fill not sweet works right away Good luck

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lioness | @lioness | Feb 11, 2021
In reply to @cristy71 "Plz help me what can I do for the restless legs and my body jumping...and the..." + (show)
@cristy71

Plz help me what can I do for the restless legs and my body jumping...and the pain where he changed my meds from 4 10 mg a day to 3. 7.5 a day

Jump to this post

@cristy71 I use wintergreen alcohol on legs a helps also I don't use to many drugs

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woogie | @woogie | Feb 11, 2021
In reply to @faithwalker007 "I have one suggestion for all facing opioid dosage decreases in this time hostile opioid environment...." + (show)
@faithwalker007

I have one suggestion for all facing opioid dosage decreases in this time hostile opioid environment. Become as educated about the TRUTH about the CDC Opioid Guidelines as you can, knowledgeable about your condition and rights as a patient, and do not become a VICTIM to your disease, pain, or anyone else.
Get your legislators involved on all levels if necessary.

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My doctor just took away one more pain pill from me. Yes, it was an opioid. I was on three a day--he took one away--now--he has taken another one away--leaving me with so much pain and one a day. I couldn't sleep--have pain in legs and back so bad--I got out of bed and was kicking my legs like a cheerleader and I am now in my eighties! I was having so much pain and doing bends, kicks, I don't know what all and kicked my dog in the face. That poor baby--he has his own pain--he has a torn ACL which we are treating. I suppose he did this because of the government. All I can say is this is enough to make a preacher cuss.

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3 replies
bustrbrwn22 | @bustrbrwn22 | Feb 12, 2021
In reply to @jerid "Buster...I was on Lyrica for several months following my healing from the Shingles. I put on..." + (show)
@jerid

Buster...I was on Lyrica for several months following my healing from the Shingles. I put on 30 pounds from it and I am still fighting to get it off, 4-5 years later. Even though during good weather I walk 4-5 miles a day, work out at a fitness center, eat like a bird, swim 64 laps a day in the summer and have had my gall bladder removed, which has made my eating ability even worse. I will NEVER do Lyrica again or anything similar to it. I had always been slim until the Lyrica and now it is a nightmare to loose even 10 pounds. Buster if you have a sciatic nerve problem you might prefer to check into seeing a nerve specialist and discuss Nerve Ablation. I tried it 3 times and it didn't work for me like the red light laser\ did, but like I try to explain to Hank we are all different. I can only tell you what has or has not worked for me. Jeri

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@jerid. Can you tell me more about the red light laser? Does it help with neuropathy pain? Thanks!

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bustrbrwn22 | @bustrbrwn22 | Feb 12, 2021
In reply to @jerid "Hank, I am still using my red light laser, but only about once every 2 weeks...." + (show)
@jerid

Hank, I am still using my red light laser, but only about once every 2 weeks. . I still only use it on one or once in awhile on 2. I have a local friend in my home town who purchased one for his knee and it has worked great for him. I am sorry it did not work for Linda. Maybe it would have if you would have backed off on the power once it felt too strong. My husband and local massage therapist in my town use just red light for aches and pains or after a strenuous weight workout and they both love it. We are all different in our bodies and not everything works the same rate or degree on each other. I 100% love my red light laser and I am so grateful for its results. I did not use it during a shingles breakout. I used it for the pain and permanent nerve damage that the Shingles left me with. I now have permanent neuropathy on the left side of my head, forehead and left eye due to my shingles nerve damage. I was on various drugs in the beginning, but with side effects I did not like so I suffered for 4 years with my neuropathy pain before discovering the red light laser treatment. I still have mine and will not give it up. Once again sorry it did not work for your Linda, but that doesn't mean it won't work for others with their pain. I much prefer this over taking a drug. I would never suggest something that I didn't get good results from. NEVER!

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@jerid. Sorry I didn’t read this first. Can you provide make and model
Of red light laser you use? Thanks!

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