Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@sharonalllen

Reply to @bowhunter1969

I agree about the nerve pain the Dr.s need to improve their techniques! I am still looking for things to help with my Spastiscity but one thing I am sure of, that is ; research,research, research, research!!!! If someone says try A go to utube, Google pros & cons. I find for every yes there are 2 nos,and for ever no there are 2 yeses, it all boils down to the answer is yours and yours alone. I truly believe that the real answer lies with stem cells and a lot of trials and research. Use only doctors at places like Mayo Clinic, Baylor Univ, Univ. of Texas, etc. Also I want to get involved with trails to see if they can help! Some day we will fine peace and relief. Also try Meditation.

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Thank you very much @gailsoph12

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@briansr

It’s an honor to find a group of people that have been, and are still going
through, what we all face 24/7. I’m getting worse but a lot of this startup
group have alot more problems than myself. Let’s try to grow this group
into one large enough to let our “FRIENDS” in Washington know that we are
indeed human beings and could use some representatives in D.C. to open
their minds and hearts to the millions that suffer daily with very little
to look forward to. I want to write, a novel, book, articles to whoever we
can reach. I just need some ideas. Do you suppose there is a pain monthly
magazine. LOL briansr

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Your friends in Washington by and large don't give a damn about the situation in which we find ourselves. They have accepted the myth that people are being addicted to opioids by their doctors. They're ignoring the fact that most of these addicts got addicted cuz they use their pain drugs to get high. I've known a lot of addicts I've never met one that wouldn't have an excuse for why they were addicted other than themselves. You have to meet this problem on the ground where the battle is taking place. If your medical providers will not deal with your condition of pain and offer realistic Solutions then you have to keep demanding that they do that and if need be you have to take legal action. If someone is trying to take away your medicine, you have to tell them, you recognized that I had a problem with pain before this and you know that I still have a problem with pain, what do you intend to do about it? Don't let them Bake Off don't let them send you somewhere else. Put your foot down and demand.

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Good morning to everyone. I don't usually text but I need a little help. One of my many diagnoses is chronic pain but I also have the diagnosis of neuropathy, fibromyalgia and arthritis (i.e. constant pain). And even this is difficult because my fingers don't work the way my mind tells them to. My biggest concern is the triangle of doctors I see. Whenever a new issue occurs or old gets worse, I get on the ,what I call it,ologist merry go round. When I make it back to the first ologist I saw either nothing happens or more medicine. The symptoms have gotten so bad this year that I have had to stop working. And even though I try second opinions all they seem to do is disagree with the previous specialist in their field and refer me to another ologist. How do you cope with the emotional hurt, disappointment and embarrassment of the merry go round. As well as the financial crisis this causes just trying to get the question answered of: what's going on and will it get any worse? I sorry, I feel that I am whining but maybe someone can help with getting off this merry go round.

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@treglaser

Good morning to everyone. I don't usually text but I need a little help. One of my many diagnoses is chronic pain but I also have the diagnosis of neuropathy, fibromyalgia and arthritis (i.e. constant pain). And even this is difficult because my fingers don't work the way my mind tells them to. My biggest concern is the triangle of doctors I see. Whenever a new issue occurs or old gets worse, I get on the ,what I call it,ologist merry go round. When I make it back to the first ologist I saw either nothing happens or more medicine. The symptoms have gotten so bad this year that I have had to stop working. And even though I try second opinions all they seem to do is disagree with the previous specialist in their field and refer me to another ologist. How do you cope with the emotional hurt, disappointment and embarrassment of the merry go round. As well as the financial crisis this causes just trying to get the question answered of: what's going on and will it get any worse? I sorry, I feel that I am whining but maybe someone can help with getting off this merry go round.

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@treglaser Welcome to our group of helpful people I have the same problems as you I only go to my rheumatologist who knows all about these problems I also have back issues so I go to my Orthopedic Dr for this keep your PCP informed.

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I have been diagnosed with Sciatica. Terrible pain. Unusual because my tail bone area, leg and knee hurt when I walk or lie down. Sitting, meds, and ice pack seems to help. Opioid only help for about 2 hours. Went for my first physical therapy session today. Very hopeful that the stretching exercises will help.

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@mayo72015

I have been diagnosed with Sciatica. Terrible pain. Unusual because my tail bone area, leg and knee hurt when I walk or lie down. Sitting, meds, and ice pack seems to help. Opioid only help for about 2 hours. Went for my first physical therapy session today. Very hopeful that the stretching exercises will help.

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Also, consider aquatic therapy. Even though I have loss my ability to walk, in the pool I can move with a significant less pain

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@treglaser

Good morning to everyone. I don't usually text but I need a little help. One of my many diagnoses is chronic pain but I also have the diagnosis of neuropathy, fibromyalgia and arthritis (i.e. constant pain). And even this is difficult because my fingers don't work the way my mind tells them to. My biggest concern is the triangle of doctors I see. Whenever a new issue occurs or old gets worse, I get on the ,what I call it,ologist merry go round. When I make it back to the first ologist I saw either nothing happens or more medicine. The symptoms have gotten so bad this year that I have had to stop working. And even though I try second opinions all they seem to do is disagree with the previous specialist in their field and refer me to another ologist. How do you cope with the emotional hurt, disappointment and embarrassment of the merry go round. As well as the financial crisis this causes just trying to get the question answered of: what's going on and will it get any worse? I sorry, I feel that I am whining but maybe someone can help with getting off this merry go round.

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Dear Treglaser: I am so sorry for you as I have been and still am going through the same problems as you. I do not want to bad mouth the doctors as i have in the past but something should and must be done for the patients such as you, I and all the others here on this earth. In my 81 years of life I have seen the medical fields go from their trying to do right to: what I think now is the hugh conglomerates taking over and trying to make money off of the patients in many, many different ways. However, I do absolve the many doctors who are doing whatever they can in the many ways that they can. What to do?

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@mayo72015

I have been diagnosed with Sciatica. Terrible pain. Unusual because my tail bone area, leg and knee hurt when I walk or lie down. Sitting, meds, and ice pack seems to help. Opioid only help for about 2 hours. Went for my first physical therapy session today. Very hopeful that the stretching exercises will help.

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PT will probably help you. However, you must do the PT everyday without failing. Get a notebook or make a chart where you check off each exercise every time you do it and how many wraps are how many minutes you did it for. You must hold yourself accountable for PT if it's going to do you any good. When the pain becomes unbearable and the oral narcotics don't work anymore look into getting a pain pump. It's a bump in your abdomen and a catheter running up your spine that leaks tiny amounts of Narcotics directly to the nerves affected. It is a wonderful solution. You don't get any of the side effects of oral narcotics but you do get the relief, in fact 1 mg taken with the pump is the equivalent of 300 mg taken by mouth. Get the funk the pump I say the pump I say get to get the pump get the pump oh yeah get the pump.

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@treglaser

Also, consider aquatic therapy. Even though I have loss my ability to walk, in the pool I can move with a significant less pain

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@treglaser My exercise coach for water aerobics has us stand still and do things like bending legs ,etc. Anything is better then nothing.Just do what you can if you overdue you can hurt yourself best of luck

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@treglaser

Good morning to everyone. I don't usually text but I need a little help. One of my many diagnoses is chronic pain but I also have the diagnosis of neuropathy, fibromyalgia and arthritis (i.e. constant pain). And even this is difficult because my fingers don't work the way my mind tells them to. My biggest concern is the triangle of doctors I see. Whenever a new issue occurs or old gets worse, I get on the ,what I call it,ologist merry go round. When I make it back to the first ologist I saw either nothing happens or more medicine. The symptoms have gotten so bad this year that I have had to stop working. And even though I try second opinions all they seem to do is disagree with the previous specialist in their field and refer me to another ologist. How do you cope with the emotional hurt, disappointment and embarrassment of the merry go round. As well as the financial crisis this causes just trying to get the question answered of: what's going on and will it get any worse? I sorry, I feel that I am whining but maybe someone can help with getting off this merry go round.

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Hi treglaser!
Welcome to the group. Your frustration rings loud and clear. I have been working in the healthcare industry for 28 years. It can definitely be complex and a person can find themselves in a tangled web without realizing it. Even with my back ground in the industry I found myself caught in the web of doctors and it became quickly confusing. But I was able to get myself freed. For me it was about trust. At some point I had to stop looking for the answers and trust one doctor. But that’s hard when all you want is to get better, feel pain free once again. But when I spend all my energy running around at appointments it was more exhausting and made the pain worse. Once I decide NO MORE. I now only see my family doctor, neurologist, nephrologist (Mayo Clinic) and each specialist only handles their specialty and my family doctor handles the big picture. I spend a lot more time doing things that I can do and less time focused on what I can’t do.

Do you have one doctor that tends to take the lead?If all your doctors were taken away their is just one you just can’t imagine not seeing any longer? My Mayo Clinic Doctor is that Doctor for me. He took charge he is amazing but trust me I had seen 17 doctors before him.

Lots of prayers!!
Dawn

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@dawn_giacabazi
Hi Dawn!
You have a wonderful attitude! I am sure you will be an inspiration for many.
I also did the change of docs. I was lucky, however, that I finally found a pain doc who was able to help me for 4 years.
For me, I needed to find someone to help me when I knew that surgery (although I wasn't ready at the time) was not an option.
I could not imagine living my life in the pain I suffered and how my family suffered as well.
I think we all have to find our own way and determine just how much time and effort we want to take in this journey.

Hoping for a pain free day for us all!!
Ronnie (GRANDMAr)

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@lioness

@treglaser My exercise coach for water aerobics has us stand still and do things like bending legs ,etc. Anything is better then nothing.Just do what you can if you overdue you can hurt yourself best of luck

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@lioness
People don't realize that even with aquatic therapy, you still have to be careful because you CAN hurt yourself.
I went for aquatic PT before my surgery. After one session, the pain was unbearable. I had to take a couple of sessions off because I could not walk because of the pain.
When I returned to PT, the therapist was very surprised that I had such an affect. So was I! He tried to modify the exercises, but he didn't do a good job. I've had aquatic PT before so I know how good it can be. My goodness, the warm water alone is therapeutic.
Now I am doing land therapy as a post-op patient. My therapist listens to me as I listen to my body.
What you are doing with aquatic aerobics is good for building your core.

Have a pain free day!
Ronnie (GRANDMAr)

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