Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

I am finally after all these years insisting that Dr. address the chronic pain. Started when I was 23. I am now 78.

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@amazingteal

I am finally after all these years insisting that Dr. address the chronic pain. Started when I was 23. I am now 78.

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@amazingteal, welcome to Connect. That is 55 years. Are you with the same Dr.? Where is your pain located? If you could have one health wish what would that be? I am Chris and my purpose for responding is to introduce you to Connect. May you have relief from your pain today. Chris

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@amazingteal

I am finally after all these years insisting that Dr. address the chronic pain. Started when I was 23. I am now 78.

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@amazingteal Wow that is a long time . Glad you are finally getting some pain relief . Welcome to connect this is a great group to vent,listen to your problems and try to help with what we can. Hope you post again. What is your pain coming from ? Auto immune disease if you feel comfortable to relate your issue maybe if we know your problem someone maybe able to help with other things you can do for your comfort.

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Hello I am Olivia 22819 and I suffer from migraine for 34 years! They impact the quality of my life including work, responsibilities, children and enjoying life. in addition medications to relieve the agony bring on negative side effects too! 😩 I just literally had a flair up that lasted 12 days. Today is when I began to feel better.

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@amazingteal

I am finally after all these years insisting that Dr. address the chronic pain. Started when I was 23. I am now 78.

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Welcome and curious what took you so long? It's better late than never and I'm very happy for you! All the best going forward.
~Rachel

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@olivia22819

Hello I am Olivia 22819 and I suffer from migraine for 34 years! They impact the quality of my life including work, responsibilities, children and enjoying life. in addition medications to relieve the agony bring on negative side effects too! 😩 I just literally had a flair up that lasted 12 days. Today is when I began to feel better.

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Hi Olivia, I'm Rachel and am also a migraine sufferer. Do you mind me asking if you have explored all medical options for relief?

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@rwinney

Hi Olivia, I'm Rachel and am also a migraine sufferer. Do you mind me asking if you have explored all medical options for relief?

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Oh and hello to you !I have been on several medications. Diet management due to certain triggers (food). But no Botox or anything like that. Went to the urgent care for an immediate injection before.

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@olivia22819

Oh and hello to you !I have been on several medications. Diet management due to certain triggers (food). But no Botox or anything like that. Went to the urgent care for an immediate injection before.

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We all certainly respond different to treatments. I would be happy to share what has worked for me but, only if you are interested. I understand it can be very frustrating.

Liked by olivia22819

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@rwinney

We all certainly respond different to treatments. I would be happy to share what has worked for me but, only if you are interested. I understand it can be very frustrating.

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Let me put in my 2 cents worth. I agree with you all. Same here for me but the doctors will not address any of the issues of chronic pain' They just do not answer, smile, start talking about something else, on and on and on. With no reply. Perhaps the dedication on the doctors part is just not there. You showed up, they will get their payment and that's that. The caring, the concern is just not there anymore. Taking their monies and putting it on the next space ship off this planet. But…….WHERE ARE THEY GOING?

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@rwinney

Hi Olivia, I'm Rachel and am also a migraine sufferer. Do you mind me asking if you have explored all medical options for relief?

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To all of us migraine sufferers: I have suffered with migraines since my early twenties to about my sixties. All of a sudden I came to realize that the migraines stopped. When, how. BUT: I started to get many other physical ailments. Many. Not much better than having the migraines. But believe me I am so grateful not to have the migraines. How this happened I do not know.

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@rwinney

We all certainly respond different to treatments. I would be happy to share what has worked for me but, only if you are interested. I understand it can be very frustrating.

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Oh yes please by all means! Thank you

Liked by rwinney

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@peach414144

To all of us migraine sufferers: I have suffered with migraines since my early twenties to about my sixties. All of a sudden I came to realize that the migraines stopped. When, how. BUT: I started to get many other physical ailments. Many. Not much better than having the migraines. But believe me I am so grateful not to have the migraines. How this happened I do not know.

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hi Peach414144, I’m glad to hear that you finally got relief and hopefully the other ailments will go away too

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@peach414144

Let me put in my 2 cents worth. I agree with you all. Same here for me but the doctors will not address any of the issues of chronic pain' They just do not answer, smile, start talking about something else, on and on and on. With no reply. Perhaps the dedication on the doctors part is just not there. You showed up, they will get their payment and that's that. The caring, the concern is just not there anymore. Taking their monies and putting it on the next space ship off this planet. But…….WHERE ARE THEY GOING?

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@peach414144 Hi Peach is this the same Dr. you have been going to or have you gone for a 2nd opinion Lind

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@olivia22819

Oh yes please by all means! Thank you

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Triptans did nothing for me! Began Botox every 3 months. After 6 months on Aimovig monthly self injections, they stopped working. Many trips to urgent care for shots and steroid packs. Tried CoQ10 and other natural supplements to no avail.

Finally my neurologist switched me to Emgality self-injections, I continue botox and the best thing yet…he prescribed me Cambia which is a powder abortive medicine that is mixed with water and taken upon onset of a migraine.

Now I get only 3-5 migraines at most per month. It's a tough diagnosis and sometimes can be crossed with tension and other headaches. I wish you good luck and hope this helps if by chance you hadn't heard of something.

Rachel

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@peach414144

To all of us migraine sufferers: I have suffered with migraines since my early twenties to about my sixties. All of a sudden I came to realize that the migraines stopped. When, how. BUT: I started to get many other physical ailments. Many. Not much better than having the migraines. But believe me I am so grateful not to have the migraines. How this happened I do not know.

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I bet you are! By far one of the most debilitating times in my life. All the best in those other disappointing areas of you health.
Rachel

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