Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@rwinney

Triptans did nothing for me! Began Botox every 3 months. After 6 months on Aimovig monthly self injections, they stopped working. Many trips to urgent care for shots and steroid packs. Tried CoQ10 and other natural supplements to no avail.

Finally my neurologist switched me to Emgality self-injections, I continue botox and the best thing yet…he prescribed me Cambia which is a powder abortive medicine that is mixed with water and taken upon onset of a migraine.

Now I get only 3-5 migraines at most per month. It's a tough diagnosis and sometimes can be crossed with tension and other headaches. I wish you good luck and hope this helps if by chance you hadn't heard of something.

Rachel

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Thank you for that. Now do you have any side effects from the Botox or the cambia ?

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@olivia22819

Thank you for that. Now do you have any side effects from the Botox or the cambia ?

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No, I do not.

Liked by olivia22819

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@peach414144

To all of us migraine sufferers: I have suffered with migraines since my early twenties to about my sixties. All of a sudden I came to realize that the migraines stopped. When, how. BUT: I started to get many other physical ailments. Many. Not much better than having the migraines. But believe me I am so grateful not to have the migraines. How this happened I do not know.

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I have heard this from others, but I am still hoping….chronic migraine patient from my early teens and continuing today (64yr). Maybe one day as other chronic health issues have surfaced in the past few years…..

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@olivia22819

Thank you for that. Now do you have any side effects from the Botox or the cambia ?

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I do not have side effects from the Botox and it has been very helpful in reducing the frequency and intensity of my migraines. However, it didn’t help until the third round of injections. I stuck with them because I had heard from others that some people are slow to respond, so I hung in there and it worked! I was so glad to get some relief!

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@lioness

@peach414144 Hi Peach is this the same Dr. you have been going to or have you gone for a 2nd opinion Lind

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I have gone to so very many, many doctors. I am pretty sure that they do not know any more about migraines than we do. But who am I? Just another persons opinion. We must keep on. We must try to help each other and understand that the suffering can lead to depression and other ailments. We must try to understand and help each other however we can. With love peach

Liked by lioness, migizii, rwinney

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@olivia22819

hi Peach414144, I’m glad to hear that you finally got relief and hopefully the other ailments will go away too

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Thank you Olivia22319. At my age of 82 I think all the ailments will go away when I do. Just my way of continuing to complain. Almost like cursing. Headaches (migraines or not) is another horrible way to live. As the different ailments continue to grow more and more I say: "I AM FROM BROOKLYN AND I WILL PERSEVERE." ha, ha, ha, ha

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@peach414144

I have gone to so very many, many doctors. I am pretty sure that they do not know any more about migraines than we do. But who am I? Just another persons opinion. We must keep on. We must try to help each other and understand that the suffering can lead to depression and other ailments. We must try to understand and help each other however we can. With love peach

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@peach414144 I'm sorry your going through this . If I find anything out about migraines I,ll pass it on.. All we can do who are in pain is keep on ,keeping on.

Liked by migizii

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@rwinney

Welcome and curious what took you so long? It's better late than never and I'm very happy for you! All the best going forward.
~Rachel

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What took me so long? 2 countries, difference between country doctors and city doctors, an intense and rewarding marriage, not putting myself first,

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@lioness

@amazingteal Wow that is a long time . Glad you are finally getting some pain relief . Welcome to connect this is a great group to vent,listen to your problems and try to help with what we can. Hope you post again. What is your pain coming from ? Auto immune disease if you feel comfortable to relate your issue maybe if we know your problem someone maybe able to help with other things you can do for your comfort.

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Hi, lioness. My problem is both spinal and muscular. I had blood work done recently and there were no indication of RA. PCP indicates that this is an emotional issue. The original diagnosis was degenerative spinal disease at age 23.

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@amazingteal

What took me so long? 2 countries, difference between country doctors and city doctors, an intense and rewarding marriage, not putting myself first,

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My hope for you…
Good things come to those who wait and
may you find over due, beneficial pain relief that you're deserving of.

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Good morning everyone. My name is Jane, also known as Mamacita over on the Spectrummy page here on Mayo Clinic Connect. I felt like I needed to re-introduce myself due to my somewhat long absence from Connect.

I try to manage the kinds and amount of work that I do everyday so as to conserve the strength that I do have. DDD, Spinal Stenosis, Osteoarthritis, and Fibromyalgia try to slow me down with their flares and pain.

They had actually done quite a number on me, before I realised that I desperately needed to make changes. Now I am on generic Lyrica at night, along with Flexeril, as needed. The Fibro pain is gone, only the Arhritis to deal with. PT and warm pool therapy to follow.

My confidence level sank to an all time low during this time. I hesitated to write anything here. Took me a long time to realize that it was important that I reach out to the very people who had listened to me and encouraged me before.

Pain is a thief. Instilled in us all is a need for community to help one another, in large and small ways. This is my community. Thankful to be back.

Mamacita Jane

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Mamacita Jane Welcome back, You were missed, I don't always share my issues, but always look on Connect for reinforcement and new answers to pain relief, I have pheripheral neuropathy, fibromyalcia, osteo arthritis, and am now dealing (or not dealing) with mortons neuroma, mortons neuroma is a very painful foot issue, Half the time (no most of the time) I don't know where the pain is coming from, One or two of the above, Lately is the foot pain, I even had a cortisone shot in my foot a week ago, Yup, still pain, Now lymphadema, What I am getting at is that I understand what you have been going through and welcome you back,

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@summertime4

Mamacita Jane Welcome back, You were missed, I don't always share my issues, but always look on Connect for reinforcement and new answers to pain relief, I have pheripheral neuropathy, fibromyalcia, osteo arthritis, and am now dealing (or not dealing) with mortons neuroma, mortons neuroma is a very painful foot issue, Half the time (no most of the time) I don't know where the pain is coming from, One or two of the above, Lately is the foot pain, I even had a cortisone shot in my foot a week ago, Yup, still pain, Now lymphadema, What I am getting at is that I understand what you have been going through and welcome you back,

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WELCOME BACK!!!!
I'm sad to read your words but, happy to read your words. Sometimes we just need time to take our own path. All is good that your path led you back to community and communication.
All the best to you!
Rachel

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@summertime4

Mamacita Jane Welcome back, You were missed, I don't always share my issues, but always look on Connect for reinforcement and new answers to pain relief, I have pheripheral neuropathy, fibromyalcia, osteo arthritis, and am now dealing (or not dealing) with mortons neuroma, mortons neuroma is a very painful foot issue, Half the time (no most of the time) I don't know where the pain is coming from, One or two of the above, Lately is the foot pain, I even had a cortisone shot in my foot a week ago, Yup, still pain, Now lymphadema, What I am getting at is that I understand what you have been going through and welcome you back,

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@summertime4 I have had two Morton neuromas removed.., back in 2012. Still hurt, but not as bad after surgery. It took a while to heal… about 6 months. Last year the same foot started hurting as before with the neuromas. I had an MRI done and it showed a small neuroma. I had gone to a new foot doctor because I had so many injections and they did nothing for the pain. This doctor suggested physical therapy. The first therapist really did not know how to do foot therapy. She knew who did and he is a man that has helped me get through other pains. He is constantly educating himself. He did several types of massages with some torture instruments. He also did another technique, but I have no idea what it is called. It helped tremendously. He used some pins… much like acupuncture needles and hooked a tens machine to them. That was a year ago. I am beginning to have some more pain and may soon go back for more PT. They told me it would need repeating. I will try anything not to have surgery again. Being off my feet for so long was torture.

I too have an abundance of pain throughout my body.

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I'm Peggy, I have Axonal Sensory Neuropathy, well-advanced, those little needle sticks are now flaming swords and swarms of wasps. I take Lyrica at night, Gabapentin during the day, I take 1/2 of a Tramadol when pain has been breaking through for days and I can't take it any more. I'm glad to meet you. I've learned a lot about this condition from other members of this loop. Welcome to the gang! Peggy

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