Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@james56

I have lived with sports induced Spondylolisthesis for almost forty years now. I tried just about everything in my search for relief from the chronic pain. a bit more than 10 years ago I attended the Pain Management Clinic in Rochester and my life turned around. Yes I still have pain and understand I will until they can learn to repair damaged nerve endings. The up-side is I learned how to deal with it without medications, without missing out on family activities, with minimal deprival of “fun” things. It hasn’t been easy but life has been pretty darn good since my time at the clinic!

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What did they teach you?

@james56

I have lived with sports induced Spondylolisthesis for almost forty years now. I tried just about everything in my search for relief from the chronic pain. a bit more than 10 years ago I attended the Pain Management Clinic in Rochester and my life turned around. Yes I still have pain and understand I will until they can learn to repair damaged nerve endings. The up-side is I learned how to deal with it without medications, without missing out on family activities, with minimal deprival of “fun” things. It hasn’t been easy but life has been pretty darn good since my time at the clinic!

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Have you tried medical cannabis?

Nancy Shermoen~

@james56

I have lived with sports induced Spondylolisthesis for almost forty years now. I tried just about everything in my search for relief from the chronic pain. a bit more than 10 years ago I attended the Pain Management Clinic in Rochester and my life turned around. Yes I still have pain and understand I will until they can learn to repair damaged nerve endings. The up-side is I learned how to deal with it without medications, without missing out on family activities, with minimal deprival of “fun” things. It hasn’t been easy but life has been pretty darn good since my time at the clinic!

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Can you tell us what the pain management clinic did for you? How do you manage your pain?

@james56

I have lived with sports induced Spondylolisthesis for almost forty years now. I tried just about everything in my search for relief from the chronic pain. a bit more than 10 years ago I attended the Pain Management Clinic in Rochester and my life turned around. Yes I still have pain and understand I will until they can learn to repair damaged nerve endings. The up-side is I learned how to deal with it without medications, without missing out on family activities, with minimal deprival of “fun” things. It hasn’t been easy but life has been pretty darn good since my time at the clinic!

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Pretty in depth background of pain, chronic and acute. Daily exercise and interaction with a physical therapist. Relaxation, meditation bio feed back and other coping techniques together with occupational therapy. Very thorough information on drugs and their affects. Tobacco cessation for those that wanted it. Diet information The group dynamics were fantastic. The curriculum was a continuous cycle and group members joined as other “graduated” so there were always beginners, intermediate and experienced members to share experiences with. My family took advantage of the Friday family day lectures to learn what they should be doing to support but not “coddle”. I stayed at a local rooming house with a kitchenette and used the experience to re-set my lifestyle, I took it to heart, almost compulsively for the three weeks. Mayo offered a box full of tools and showed us how they worked. I chose the ones that worked the best for me.

Does the Rochester Clinic know of a similar clinic in the Orlando area?

I knew Tempa general hospital has a similar program. I almost went a few years ago but did not go.

@james56

I have lived with sports induced Spondylolisthesis for almost forty years now. I tried just about everything in my search for relief from the chronic pain. a bit more than 10 years ago I attended the Pain Management Clinic in Rochester and my life turned around. Yes I still have pain and understand I will until they can learn to repair damaged nerve endings. The up-side is I learned how to deal with it without medications, without missing out on family activities, with minimal deprival of “fun” things. It hasn’t been easy but life has been pretty darn good since my time at the clinic!

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Nancy, I am just beginning to try medical Cannabis, and using it in food has relieved the neuropathy pain for a few hours.

Liked by lismom5

@james56

I have lived with sports induced Spondylolisthesis for almost forty years now. I tried just about everything in my search for relief from the chronic pain. a bit more than 10 years ago I attended the Pain Management Clinic in Rochester and my life turned around. Yes I still have pain and understand I will until they can learn to repair damaged nerve endings. The up-side is I learned how to deal with it without medications, without missing out on family activities, with minimal deprival of “fun” things. It hasn’t been easy but life has been pretty darn good since my time at the clinic!

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yes, I tried it for 8 months. unfortunately, it made most of my other medications ineffective. then I had to start all over with my meds, waiting months for them to start working fully again. thank you for the tip, though.Clownscrytoo   🙂

@james56

I have lived with sports induced Spondylolisthesis for almost forty years now. I tried just about everything in my search for relief from the chronic pain. a bit more than 10 years ago I attended the Pain Management Clinic in Rochester and my life turned around. Yes I still have pain and understand I will until they can learn to repair damaged nerve endings. The up-side is I learned how to deal with it without medications, without missing out on family activities, with minimal deprival of “fun” things. It hasn’t been easy but life has been pretty darn good since my time at the clinic!

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Can you tell me how to contact the Pain Management Clinic in Rochester. I assume that this is in New York.

@fifi

I knew Tempa general hospital has a similar program. I almost went a few years ago but did not go.

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Do you mean Tampa?

@james56

I have lived with sports induced Spondylolisthesis for almost forty years now. I tried just about everything in my search for relief from the chronic pain. a bit more than 10 years ago I attended the Pain Management Clinic in Rochester and my life turned around. Yes I still have pain and understand I will until they can learn to repair damaged nerve endings. The up-side is I learned how to deal with it without medications, without missing out on family activities, with minimal deprival of “fun” things. It hasn’t been easy but life has been pretty darn good since my time at the clinic!

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Hello @dante, actually Mayo Clinic Rochester is located in Minnesota. Mayo Clinic also has two other main campuses located in Jacksonville, Florida and Scottsdale, Arizona. You can contact any of the three sites by following this link http://mayocl.in/1mtmR63 for appointment information. If you need more information, feel free to send me a personal message with questions or concerns.

Hi, my name is Terry and I suffer from chronic pain for Fibromyalgia, Rheumatoid Arthritis, Lupus, heart disease, interstitial cystitis and many more problems.
For the past year I have been having trouble with both feet swelling. I went to an Ortho and he said it’s because I have diabetes and other problems is why my feet swell so much. He put me in ankle braces for both feet and on bad days I have to have my wheelchair as the pain is excruciating. He also wanted to give me steroids but I’m allergic to them she he basically said nothing can be done for me.
Has anyone had this before and what did u do for it. I also get constant bouts of Gout and am taking Allpurinol to slow it down if possible.
If anyone has any previous problems please let me know what u did. Also I have a high sed rate and severe inflammation in my body.
Thanks.

@tbeckys

Hi, my name is Terry and I suffer from chronic pain for Fibromyalgia, Rheumatoid Arthritis, Lupus, heart disease, interstitial cystitis and many more problems.
For the past year I have been having trouble with both feet swelling. I went to an Ortho and he said it’s because I have diabetes and other problems is why my feet swell so much. He put me in ankle braces for both feet and on bad days I have to have my wheelchair as the pain is excruciating. He also wanted to give me steroids but I’m allergic to them she he basically said nothing can be done for me.
Has anyone had this before and what did u do for it. I also get constant bouts of Gout and am taking Allpurinol to slow it down if possible.
If anyone has any previous problems please let me know what u did. Also I have a high sed rate and severe inflammation in my body.
Thanks.

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Hello Terry, thank you for sharing some of the issues that you face and experience. I believe you have already found one existing discussion on Fibromyalgia, here is another conversation taking place with ways that other members of Connect cope with the pain, http://mayocl.in/2effi2l.

Swollen feet can be a common issue with diabetes. Although some of the causes for swollen feet and legs in the following discussion, you may find other members to connect with who have experienced some of the same symptoms as yourself here, https://connect.mayoclinic.org/discussion/swollen-legs-and-feet/.

@tbeckys

Hi, my name is Terry and I suffer from chronic pain for Fibromyalgia, Rheumatoid Arthritis, Lupus, heart disease, interstitial cystitis and many more problems.
For the past year I have been having trouble with both feet swelling. I went to an Ortho and he said it’s because I have diabetes and other problems is why my feet swell so much. He put me in ankle braces for both feet and on bad days I have to have my wheelchair as the pain is excruciating. He also wanted to give me steroids but I’m allergic to them she he basically said nothing can be done for me.
Has anyone had this before and what did u do for it. I also get constant bouts of Gout and am taking Allpurinol to slow it down if possible.
If anyone has any previous problems please let me know what u did. Also I have a high sed rate and severe inflammation in my body.
Thanks.

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May I ask why he wanted you to use an ankle brace. I am in no way seconding guessing the Doctor but this sounds a little weird. Did he or she say why

Lorrie

Hello everyone! I am 75, a Benedictine sister. While I was diagnosed with fibromyalgia years ago, that in itself did not cause too many problems. Depression was and is the biggest problem. However, a year ago I was in a car accident and have had severe (by my standards) pain ever since. After a LOT of dr. visits, experiments, etc. it’s ” we don’t know what’s wrong, we can’t fix it, manage the pain”. Problem is, the meds make depression symptoms MUCH worse…but without them I’m brought to tears, can’t think, etc. Is anyone else struggling with major depression and pain? How are you handling it? Thank you in advance

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