Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@boxermomma

@kelseydm
Hi, im new here so im not sure exactly what to do. I seen a post to introduce myself. My name is Joyce P. I just turned 51, around 2 weeks ago. I have 3 adult children and working on grandbaby #6. I have 2 dogs, 2 kittens, i live alone, i have numerous health issues and i live with chronic pain.

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Have you noticed a connection between the chronic pain and how you feel emotionally, boxermama?

@boxermomma

@kelseydm
Hi, im new here so im not sure exactly what to do. I seen a post to introduce myself. My name is Joyce P. I just turned 51, around 2 weeks ago. I have 3 adult children and working on grandbaby #6. I have 2 dogs, 2 kittens, i live alone, i have numerous health issues and i live with chronic pain.

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Hello Sandytoes 14,
Like you, i also have fibromyalgia, i also have psoriatic arthritis and osteoarthritis in my C2-C5 and a deteriorated joint in my left ankle. All of this us several other chronic health problems.

@boxermomma

@kelseydm
Hi, im new here so im not sure exactly what to do. I seen a post to introduce myself. My name is Joyce P. I just turned 51, around 2 weeks ago. I have 3 adult children and working on grandbaby #6. I have 2 dogs, 2 kittens, i live alone, i have numerous health issues and i live with chronic pain.

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Oh yes i have, very much so. I have chronic depression that they try to keep under control, but still sone days its very difficult to just get out of bed. I rarely go places unless i HAVE to. Yes, a very strong connection, jimhd.

Liked by lauriedr

@boxermomma

@kelseydm
Hi, im new here so im not sure exactly what to do. I seen a post to introduce myself. My name is Joyce P. I just turned 51, around 2 weeks ago. I have 3 adult children and working on grandbaby #6. I have 2 dogs, 2 kittens, i live alone, i have numerous health issues and i live with chronic pain.

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@boxermamma, I can relate to the comorbid relationship between depression and anxiety and chronic pain. I developed agoraphobia, and I too, rarely leave my bedroom except for near-daily doctor appointments. Have you looked into genetic testing? Assurex offers the test, which is not universally covered by insurance. Their website will give you more information; they currently offer it free to Medicare recipients, and a sliding scale fee of $75- $300 is available for other patients, based on income. You complete a cheek swab, and your doctor can help you with interpreting results ne to two weeks later. The test examines your liver functions, and will provide you with lists of the best, good, and least effective medications for you to treat depression, anxiety, ADHD, pain management, and other meds and liver functioning. It will help you and your doctor determine the best meds and doses for your conditions; trial and error of meds is time-consuming and expensive. Using the best drugs for your genetic make-up may lessen your pain, depression, and anxiety, allowing you to socialize and more actively participate in life, which are key to improving all your medical conditions. Mayo offers a similar test, but I am not familiar with it. I wish you all the best. I hope you see improvements in your life soon. Thanks for writing in. I know how difficult even letter-writing can be on your worst days.

@virtuous69

Hello I have just joined this Mayo Clinic discussion group today I’m going by the name of virtuous and I would like to participate in discussions learn as much as I can about handling pain. I have all the back issues .I’d like to learn a lot of positive things be a positive member in the discussion but there are days where I feel I’d like to shed a tear or two. so I’m hoping to get involved and be a positive influence and have it be a help to me as well as the others thank you would love to hear a reply. I’ve had several spinal epidurals and I’m experiencing a lot of pain I haven’t had and that the door for ages so I was trying to find out the long life term effects of steroid and cortisone in your system love to hear some feedback.

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Welcome @virtuous. I’m so glad you introduced yourself. I actually moved your message to the Chronic pain group https://connect.mayoclinic.org/group/pain/ where you can meet other members with similar health issues like @sandytoes14 @suebreen54 @ladyjane85 @predictable and @19lin.

I appreciate your bringing a positive influence, but don’t be afraid to share when things aren’t going well either. When days are tough or frustrating, we’re here to support you or just listen.

You were asking about the long life term effects of steroid and cortisone in your system? Can you explain a little more?

@boxermomma

@kelseydm
Hi, im new here so im not sure exactly what to do. I seen a post to introduce myself. My name is Joyce P. I just turned 51, around 2 weeks ago. I have 3 adult children and working on grandbaby #6. I have 2 dogs, 2 kittens, i live alone, i have numerous health issues and i live with chronic pain.

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Dear lauriedr,
Thank you for all the wonderful information. I will discuss this with my doctors. BTW, my LFT’s are always elevated due to my cryptogenic cirhosis of the liver.

@boxermomma

@kelseydm
Hi, im new here so im not sure exactly what to do. I seen a post to introduce myself. My name is Joyce P. I just turned 51, around 2 weeks ago. I have 3 adult children and working on grandbaby #6. I have 2 dogs, 2 kittens, i live alone, i have numerous health issues and i live with chronic pain.

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@boxermomma, I had significant chronic depression quite a while before I started having chronic pain, but with more than ten years of medications and therapists, depression has plateaued. Unfortunately, the plateau is kind of low, so things like pain and stress easily pull me down into depression that’s uncomfortably close to the thoughts of suicide. I’m trying to be aggressive about finding a treatment for the neuropathy pain. I just started trying out medical Marijuana, and it’s really too soon to tell how much it will help. The cost of Marijuana is enough to make me feel depressed. I hope to see a doctor soon with whom I can discuss a spinal cord stimulator. So many decisions to be made – it’s overwhelming.

@boxermomma

@kelseydm
Hi, im new here so im not sure exactly what to do. I seen a post to introduce myself. My name is Joyce P. I just turned 51, around 2 weeks ago. I have 3 adult children and working on grandbaby #6. I have 2 dogs, 2 kittens, i live alone, i have numerous health issues and i live with chronic pain.

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Hello jimhd,
Yes there are so many options out there with so little relief. Dealing with the pain, the depression, the pain, the depression……its a never ending vicious cycle that seems like no help in sight, but there is that one option out there that’ll help you and i do hope you find that relief very soon. Life is hard enough to deal with at times for everyone, but then there are people like us and others that have to deal with the chronic pain among our other health problems, it is very frustrating. I’ll keep you in my thoughts and pray relief finds you soon. Take care.
boxermomma

@boxermomma

@kelseydm
Hi, im new here so im not sure exactly what to do. I seen a post to introduce myself. My name is Joyce P. I just turned 51, around 2 weeks ago. I have 3 adult children and working on grandbaby #6. I have 2 dogs, 2 kittens, i live alone, i have numerous health issues and i live with chronic pain.

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Dear jimhd make sure the trial of a neuro stimulator really does the job.
I found it no better than a TENS unit. The rumbling or vibrating is
supposed to make your brain think of that and forget the pain. I actually
had it put in bec it was my last reasort for my up to 9 level pain. Had to
have it removed little over a year later bec caused more troubles and pain
issue was not satisfied. Just my problem – some get up to 25 to 50%
help. @ladyjane85

@boxermomma

@kelseydm
Hi, im new here so im not sure exactly what to do. I seen a post to introduce myself. My name is Joyce P. I just turned 51, around 2 weeks ago. I have 3 adult children and working on grandbaby #6. I have 2 dogs, 2 kittens, i live alone, i have numerous health issues and i live with chronic pain.

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I had hoped to have one but spine is too curved to implant. What do you do for your pain now?

@boxermomma

@kelseydm
Hi, im new here so im not sure exactly what to do. I seen a post to introduce myself. My name is Joyce P. I just turned 51, around 2 weeks ago. I have 3 adult children and working on grandbaby #6. I have 2 dogs, 2 kittens, i live alone, i have numerous health issues and i live with chronic pain.

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Thanks, @ladyjane, for your input. I haven’t made a final decision to do the scs, just going to discuss it with a doctor who does the procedure. If I do, I’ll at least have the temporary, external stimulator to assess the benefit or effects before I commit to having one implanted.

Liked by safetyshield

@boxermomma

@kelseydm
Hi, im new here so im not sure exactly what to do. I seen a post to introduce myself. My name is Joyce P. I just turned 51, around 2 weeks ago. I have 3 adult children and working on grandbaby #6. I have 2 dogs, 2 kittens, i live alone, i have numerous health issues and i live with chronic pain.

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I have a few resources that have helped me. I have a loving, supportive wife, who could have understandably left me at the hardest times, but stuck with me. I have a psychiatric service dog, who’s always with me. I have several doctors who care about my well being. I volunteer for Hospice, by visiting patients once a week. I have a pastor who’s understanding because he has frequent depressive episodes, usually having to do with his fight with cancer. And I enjoy the group of people with whom I worship on Sunday evenings, where I lead the singing and play the piano. So, I do what I can to stay safe and more or less stable.

@boxermomma

@kelseydm
Hi, im new here so im not sure exactly what to do. I seen a post to introduce myself. My name is Joyce P. I just turned 51, around 2 weeks ago. I have 3 adult children and working on grandbaby #6. I have 2 dogs, 2 kittens, i live alone, i have numerous health issues and i live with chronic pain.

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@kathyv

Hi, I’m Kathy V.
I have had multiple spinal fusions, starting with one for scoliosis as a teenager in 1969. I had a laminectomy in 1990, and in 2006 and 2007 I had two major spinal surgeries with anterior and posterior placement of screws and plates at L4 through S1. Since then, I have suffered with chronic regional pain syndrome in my right foot and leg. Even though I am on multiple medications, the pain is constant and severe.
I’m hoping that by taking part in this group that I might find some suggestions for relieving this neurologic pain.

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Thanks for your input. I haven’t heard about the Barrow Institute. Is it difficult to get appts. at those places for pain consults?
Kathy

I am Butterfly37. I am suffering from advanced arthritis and fibromyalgia. Currently, the only medication I can take is hydrocodone 7.5/3.25. I read all the material about the opioid addiction crisis and I know when I take my prescription to the pharmacist, I sometimes get funny looks from the clerks. I cannot take any medication where the side effects is a negative effect on the kidney; therefore, I can take no anti-inflammatory medications and many of the new medications advertised on television. I never take more medication than is prescribed. I can only get a refill every 30 days. This medication dulls the pain; the pain never goes away. It is worse in my lower back and neck. I will have to have a total right knee replacement this winter. I am afraid of back surgery. What have been the experiences of others who have gone through back surgery?

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