Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@boxermomma

@kelseydm
Hi, im new here so im not sure exactly what to do. I seen a post to introduce myself. My name is Joyce P. I just turned 51, around 2 weeks ago. I have 3 adult children and working on grandbaby #6. I have 2 dogs, 2 kittens, i live alone, i have numerous health issues and i live with chronic pain.

Jump to this post

Hi @reft, welcome to Connect. I see that you posted a blank message. I am here to help if you need assistance or pointers on how to post on Connect. If you have any questions and would be more comfortable speaking privately, feel free to send me a personal message by clicking on my name and then the mail symbol below my picture.

You may also use the following link to contact a community moderator https://connect.mayoclinic.org/contact-a-community-moderator/.

Hello. New member and I live in Colorado with my husband and crazy cat. lol! I’ve been diagnosed with fibromyalgia, diabetic neuropathy, diabetes II, and a handful of mental health issues. It saddens me to hear of all that people go through with their chronic pain. I wish I had a magic ‘fix’ for all of it. I need this group so much. Thank you for having me.

@kathyv

Hi, I’m Kathy V.
I have had multiple spinal fusions, starting with one for scoliosis as a teenager in 1969. I had a laminectomy in 1990, and in 2006 and 2007 I had two major spinal surgeries with anterior and posterior placement of screws and plates at L4 through S1. Since then, I have suffered with chronic regional pain syndrome in my right foot and leg. Even though I am on multiple medications, the pain is constant and severe.
I’m hoping that by taking part in this group that I might find some suggestions for relieving this neurologic pain.

Jump to this post

Go to barrowneuro.org to see a list of affiliated doctors and phone numbers to call to request an appointment. There is detailed info on each doctor with their specific specialties within the field of neurology and neurosurgery, so you can request an appointment with whatever doctor best suits your needs. There is also info on each’s doctor’s training, experience, etc. The website also offers a second opinion option. For a flat fee of $100 you can submit your MRI or other imaging results, together with questions and concerns you may have, and one of their doctors will review your case and give you his/her opinion. If you decide you want their recommended treatment, you are under no obligation to have it done through Barrow–you can share the info with your own doctor wherever you live. I used this option 3 years ago and got the second opinion within a couple of days, and they were able to schedule me for surgery within a couple of weeks. I was getting the run-around with a doctor here, so I chose to travel to Phoenix for surgery. I got excellent care there. Barrow is a teaching institution for neurology and neurosurgical residents, so the hospital is fully staffed with experts in the field. I may use them again to deal with my current issues. If you have the time and resources to travel to Phoenix this is an excellent option; they accept most insurances. There is a Hampton Inn directly across the street from the hospital which is super convenient. Good luck!

@dante

I am Butterfly37. I am suffering from advanced arthritis and fibromyalgia. Currently, the only medication I can take is hydrocodone 7.5/3.25. I read all the material about the opioid addiction crisis and I know when I take my prescription to the pharmacist, I sometimes get funny looks from the clerks. I cannot take any medication where the side effects is a negative effect on the kidney; therefore, I can take no anti-inflammatory medications and many of the new medications advertised on television. I never take more medication than is prescribed. I can only get a refill every 30 days. This medication dulls the pain; the pain never goes away. It is worse in my lower back and neck. I will have to have a total right knee replacement this winter. I am afraid of back surgery. What have been the experiences of others who have gone through back surgery?

Jump to this post

Hello @dante, welcome to Connect, and thank you for sharing your concerns regarding pain medications, knee replacement, and back surgery.

We would love for you to start a new discussion in the Bones, Joints & Muscles group asking other members about your concerns with back surgery. We have a lot of members who have talked about back surgeries and we think a new discussion specific to back surgeries would be a great addition to the group.

You can start a new discussion by going to the https://connect.mayoclinic.org/group/arthritis-and-joint-conditions-268850/ group and clicking on the “Start A Discussion” tab. Then, start a discussion specific to the surgery you will be having or are concerned about. From there we can bring in members who may have experiences similar to yours.

@dante

I am Butterfly37. I am suffering from advanced arthritis and fibromyalgia. Currently, the only medication I can take is hydrocodone 7.5/3.25. I read all the material about the opioid addiction crisis and I know when I take my prescription to the pharmacist, I sometimes get funny looks from the clerks. I cannot take any medication where the side effects is a negative effect on the kidney; therefore, I can take no anti-inflammatory medications and many of the new medications advertised on television. I never take more medication than is prescribed. I can only get a refill every 30 days. This medication dulls the pain; the pain never goes away. It is worse in my lower back and neck. I will have to have a total right knee replacement this winter. I am afraid of back surgery. What have been the experiences of others who have gone through back surgery?

Jump to this post

I would very much like to see a discussion on back surgeries and non-surgical options.

Dear Clownscrytoo: Welcome to our group! I like your idea for a magic “fix”. Personally, I also pray for miracles whenever I can. There are so many of us out here, and we do help each other by sharing and listening. Glad to have you with us. Frank

@dante

I am Butterfly37. I am suffering from advanced arthritis and fibromyalgia. Currently, the only medication I can take is hydrocodone 7.5/3.25. I read all the material about the opioid addiction crisis and I know when I take my prescription to the pharmacist, I sometimes get funny looks from the clerks. I cannot take any medication where the side effects is a negative effect on the kidney; therefore, I can take no anti-inflammatory medications and many of the new medications advertised on television. I never take more medication than is prescribed. I can only get a refill every 30 days. This medication dulls the pain; the pain never goes away. It is worse in my lower back and neck. I will have to have a total right knee replacement this winter. I am afraid of back surgery. What have been the experiences of others who have gone through back surgery?

Jump to this post

Surgery isn’t an option for my scoliosis as I have osteoporosis. Am taking a stretching and Pilates class and also pool walking to help strengthen muscles for back and leg support. I don’t want to take meds at this point. My back will continue to worsen and I’ll look at meds later

@dante

I am Butterfly37. I am suffering from advanced arthritis and fibromyalgia. Currently, the only medication I can take is hydrocodone 7.5/3.25. I read all the material about the opioid addiction crisis and I know when I take my prescription to the pharmacist, I sometimes get funny looks from the clerks. I cannot take any medication where the side effects is a negative effect on the kidney; therefore, I can take no anti-inflammatory medications and many of the new medications advertised on television. I never take more medication than is prescribed. I can only get a refill every 30 days. This medication dulls the pain; the pain never goes away. It is worse in my lower back and neck. I will have to have a total right knee replacement this winter. I am afraid of back surgery. What have been the experiences of others who have gone through back surgery?

Jump to this post

I would also like discussions on compression fracture of the spine. I have three in the thoracic area and one in the lumbar area. I have been told that no surgery can help. I am in constant pain.

@dante

I am Butterfly37. I am suffering from advanced arthritis and fibromyalgia. Currently, the only medication I can take is hydrocodone 7.5/3.25. I read all the material about the opioid addiction crisis and I know when I take my prescription to the pharmacist, I sometimes get funny looks from the clerks. I cannot take any medication where the side effects is a negative effect on the kidney; therefore, I can take no anti-inflammatory medications and many of the new medications advertised on television. I never take more medication than is prescribed. I can only get a refill every 30 days. This medication dulls the pain; the pain never goes away. It is worse in my lower back and neck. I will have to have a total right knee replacement this winter. I am afraid of back surgery. What have been the experiences of others who have gone through back surgery?

Jump to this post

I tried to connect with other persons who suffer from burning mouth syndrome, and was sent return suggested email addresses, but slipped from my iPad.
Please redirect
Thank you
Elaine

@dante

I am Butterfly37. I am suffering from advanced arthritis and fibromyalgia. Currently, the only medication I can take is hydrocodone 7.5/3.25. I read all the material about the opioid addiction crisis and I know when I take my prescription to the pharmacist, I sometimes get funny looks from the clerks. I cannot take any medication where the side effects is a negative effect on the kidney; therefore, I can take no anti-inflammatory medications and many of the new medications advertised on television. I never take more medication than is prescribed. I can only get a refill every 30 days. This medication dulls the pain; the pain never goes away. It is worse in my lower back and neck. I will have to have a total right knee replacement this winter. I am afraid of back surgery. What have been the experiences of others who have gone through back surgery?

Jump to this post

How can you I connect with persons suffering from burning mouth?
Thank you.
Elaine Swanson

@dante

I am Butterfly37. I am suffering from advanced arthritis and fibromyalgia. Currently, the only medication I can take is hydrocodone 7.5/3.25. I read all the material about the opioid addiction crisis and I know when I take my prescription to the pharmacist, I sometimes get funny looks from the clerks. I cannot take any medication where the side effects is a negative effect on the kidney; therefore, I can take no anti-inflammatory medications and many of the new medications advertised on television. I never take more medication than is prescribed. I can only get a refill every 30 days. This medication dulls the pain; the pain never goes away. It is worse in my lower back and neck. I will have to have a total right knee replacement this winter. I am afraid of back surgery. What have been the experiences of others who have gone through back surgery?

Jump to this post

Hello @connielaine. I edited your previous post and removed your email from public view. For your privacy and safety we ask that you exchange emails via the private message function.

I see that you found one discussion regarding burning mouth syndrome, but here is another you may wish participate in, http://mayocl.in/2d5g7f5.

If you have any other questions about emails, or how Connect works, do not hesitate to send me a personal message with your questions. To do this click on my name, and then click on the envelope symbol under “contact me.”

@clownscrytoo

Hello. New member and I live in Colorado with my husband and crazy cat. lol! I’ve been diagnosed with fibromyalgia, diabetic neuropathy, diabetes II, and a handful of mental health issues. It saddens me to hear of all that people go through with their chronic pain. I wish I had a magic ‘fix’ for all of it. I need this group so much. Thank you for having me.

Jump to this post

I wonder if our ancestors dealt with the level of chronic pain that seems to afflict so many of us today, and if they did, how did they treat it? Maybe we could learn from the different cultures what their magic fixes were.

And welcome to the group. I live in Oregon with my wife and 2 dogs and 2 horses that belong to friends. 34 head of cattle grazed the pasture for a few weeks, but moved on to their winter home the other day. I miss them. They figured out to come up by the barn whenever I was out there, filling the water troughs.

@clownscrytoo

Hello. New member and I live in Colorado with my husband and crazy cat. lol! I’ve been diagnosed with fibromyalgia, diabetic neuropathy, diabetes II, and a handful of mental health issues. It saddens me to hear of all that people go through with their chronic pain. I wish I had a magic ‘fix’ for all of it. I need this group so much. Thank you for having me.

Jump to this post

I’m sure our ancestors did. Check out books on natural heeling through foods. Some foods especially strawberries help with inflammation. So does tumeric. No manic but does help somewhat

@dante

I am Butterfly37. I am suffering from advanced arthritis and fibromyalgia. Currently, the only medication I can take is hydrocodone 7.5/3.25. I read all the material about the opioid addiction crisis and I know when I take my prescription to the pharmacist, I sometimes get funny looks from the clerks. I cannot take any medication where the side effects is a negative effect on the kidney; therefore, I can take no anti-inflammatory medications and many of the new medications advertised on television. I never take more medication than is prescribed. I can only get a refill every 30 days. This medication dulls the pain; the pain never goes away. It is worse in my lower back and neck. I will have to have a total right knee replacement this winter. I am afraid of back surgery. What have been the experiences of others who have gone through back surgery?

Jump to this post

Dear Connielaine: I got burning mouth syndrome the last time after I was diagnosed with hypothyroid, (I had had BMS off and on for a few weeks at a time several times ever since I was in my 20’s (I’m 64 now), but it always went away “on its own”. I don’t know whether this time the thyroid had anything to do with it.) This time (this was six years ago) the BMS lasted over a month, so I decided to do something about it. My doctors and dentist had no solutions, so I looked on the internet and found that there was some scientific evidence that 600 mg of Alpha Lipoic Acid a day relieved the BMS symptoms to some degree. (There is also something out there called Alpha Linolenic Acid, also abbreviated ALA, which is DIFFERENT from Alpha Lipoic Acid, which is the one you want, if you chose to take it.) So I bought a 4 month supply (it’s not prescription, but a dietary supplement) of Alpha Lipoic Acid, and began taking it. After a month of taking it religiously 600 mg a day, my burning mouth symptoms had gone. In the six years since, they haven’t returned. Whether Alpha Lipoic Acid was the reason, I can’t say, because I also started taking Levothyroxine for my hypothyroid at about the same time, and when I was younger BMS went away on its own. I am NOT in the medical profession at any level; I am just relating to you what happened to me as a patient. You might want to try this, but CHECK WITH YOUR HEALTHCARE PROVIDER BEFORE YOU DO. Also you can search the internet for “alpha lipoic acid and burning mouth syndrome” and find a number of scientific references. I hope this is of some help to you. Frank

I have lived with sports induced Spondylolisthesis for almost forty years now. I tried just about everything in my search for relief from the chronic pain. a bit more than 10 years ago I attended the Pain Management Clinic in Rochester and my life turned around. Yes I still have pain and understand I will until they can learn to repair damaged nerve endings. The up-side is I learned how to deal with it without medications, without missing out on family activities, with minimal deprival of “fun” things. It hasn’t been easy but life has been pretty darn good since my time at the clinic!

Please login or register to post a reply.