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Kelsey Mohring
@kelseydm

Posts: 295
Joined: Feb 24, 2015

Chronic Pain members - Welcome, please introduce yourself

Posted by @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

REPLY

@meggie

Hello everyone! I am 75, a Benedictine sister. While I was diagnosed with fibromyalgia years ago, that in itself did not cause too many problems. Depression was and is the biggest problem. However, a year ago I was in a car accident and have had severe (by my standards) pain ever since. After a LOT of dr. visits, experiments, etc. it’s ” we don’t know what’s wrong, we can’t fix it, manage the pain”. Problem is, the meds make depression symptoms MUCH worse…but without them I’m brought to tears, can’t think, etc. Is anyone else struggling with major depression and pain? How are you handling it? Thank you in advance

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I just to stay distracted with hobbies and WWF. Try to keep upbeat. It’s hard most days but I can’t remain negative

@colleenyoung

Hi all,
I’m Colleen, Community Director and part of Connect’s moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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Hello fellow pain sufferers
It has been my experience that burning the nerves where they are being pinched by surrounding bones, is a temporary fix as the nerves grow back. I’ve found that wearing a back brace helps relieve nerve compression. When I worked at the V.A., where my back problems began, the Doctor’s there measured me for a Corset. Wearing it every day for two months, my back problem eased, and the dang Corset self destructed from daily wear. My chief complaint with the Corset was it limited the amount of air I could breathe while seated. Standing all day improved my breathing. Those with chronic back pain might ask their physicians about a Corset!
The device alleviated 85% of the pain, and Medication took care of the remaining break through pain. Ive been on Oxicodone 15 mg, three times daily, and Gabapentin, 900mg, three times daily.
Also, I take Bayer Back and Body, 3× daily.
Little pain, No depression, Positive Attitude. Oh yeah, I’m on the Fentanyl Patch, 100mcg per hour. Best of luck to all.I have Peripheral Neuropathy, but Peripheral Neuropathy doesn’t have me!

@meggie

Hello everyone! I am 75, a Benedictine sister. While I was diagnosed with fibromyalgia years ago, that in itself did not cause too many problems. Depression was and is the biggest problem. However, a year ago I was in a car accident and have had severe (by my standards) pain ever since. After a LOT of dr. visits, experiments, etc. it’s ” we don’t know what’s wrong, we can’t fix it, manage the pain”. Problem is, the meds make depression symptoms MUCH worse…but without them I’m brought to tears, can’t think, etc. Is anyone else struggling with major depression and pain? How are you handling it? Thank you in advance

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How am I handling it? Not well. My feet hurt and burn all the time. Neuropathy began around ten years after I began treatment for major depression. The two don’t do well together for me. I’m working with a pain specialist, but nothing we’ve tried has helped the pain. I’m considering a spinal cord stimulator. Right now, I take morphine sulfate contin, Cymbalta, Clonazepam, Oxycodone, Bupropion, Lidocaine cream, and things for allergies, plus vitamins, hoodia, and experimenting with Marijuana. I’ve been quite active the past couple of months, but depression and suicidal ideation have been worse, partly because of the change of season which reduces the amount of activity. I just try to take life a day, or an hour at a time.

@colleenyoung

Hi all,
I’m Colleen, Community Director and part of Connect’s moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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I have peripheral neuropathy in my arm due to Thoracic Outlet Syndrome which went untreated for for whole life. (II was 56 at the time of surgery) It was not diagnosed because the symptoms did not include the usual suspects. A smart pain doctor did a very thorough eval and ordered an MRA that proved the veins, nerves and arteries were pinched between the first rib and clavicle. With no blood flow the nerves were forever damaged and I remain in continuous pain. My pain clinic is insisting I reduce my medication so I hurt a lot and can’t type any more at this time. Be back later though.

@meggie

Hello everyone! I am 75, a Benedictine sister. While I was diagnosed with fibromyalgia years ago, that in itself did not cause too many problems. Depression was and is the biggest problem. However, a year ago I was in a car accident and have had severe (by my standards) pain ever since. After a LOT of dr. visits, experiments, etc. it’s ” we don’t know what’s wrong, we can’t fix it, manage the pain”. Problem is, the meds make depression symptoms MUCH worse…but without them I’m brought to tears, can’t think, etc. Is anyone else struggling with major depression and pain? How are you handling it? Thank you in advance

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I have diabetes 2, cancer in almost every organ, and constant peripheral neuropathy.

@meggie

Hello everyone! I am 75, a Benedictine sister. While I was diagnosed with fibromyalgia years ago, that in itself did not cause too many problems. Depression was and is the biggest problem. However, a year ago I was in a car accident and have had severe (by my standards) pain ever since. After a LOT of dr. visits, experiments, etc. it’s ” we don’t know what’s wrong, we can’t fix it, manage the pain”. Problem is, the meds make depression symptoms MUCH worse…but without them I’m brought to tears, can’t think, etc. Is anyone else struggling with major depression and pain? How are you handling it? Thank you in advance

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GOD BLESS YOU! I just keep praying that something could be done for us who live in constant pain!!

@colleenyoung

Hi all,
I’m Colleen, Community Director and part of Connect’s moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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I tried a back brace for the upper back. It has a part that fits just above the breast. I have COPD and when I wear the brace, I can’t breath. I had to make a choice on whether I wear the brace and ease the pain or breath. I had to make the choice to breath. But boy to I hurt.

@meggie

Hello everyone! I am 75, a Benedictine sister. While I was diagnosed with fibromyalgia years ago, that in itself did not cause too many problems. Depression was and is the biggest problem. However, a year ago I was in a car accident and have had severe (by my standards) pain ever since. After a LOT of dr. visits, experiments, etc. it’s ” we don’t know what’s wrong, we can’t fix it, manage the pain”. Problem is, the meds make depression symptoms MUCH worse…but without them I’m brought to tears, can’t think, etc. Is anyone else struggling with major depression and pain? How are you handling it? Thank you in advance

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When we hurt like this, who wouldn’t get depressed? But there are days when I am in tears! My general doctor wanted to put me on a anti depression medication but I didn’t do it yet. I don’t like them and besides I can’t afford an other pill. I try to stay busy, but when I use my arms…..Well…..

@meggie

Hello everyone! I am 75, a Benedictine sister. While I was diagnosed with fibromyalgia years ago, that in itself did not cause too many problems. Depression was and is the biggest problem. However, a year ago I was in a car accident and have had severe (by my standards) pain ever since. After a LOT of dr. visits, experiments, etc. it’s ” we don’t know what’s wrong, we can’t fix it, manage the pain”. Problem is, the meds make depression symptoms MUCH worse…but without them I’m brought to tears, can’t think, etc. Is anyone else struggling with major depression and pain? How are you handling it? Thank you in advance

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Hello, Sister, I hope you’ll find some hope and help in this forum. I think anyone who posts on sites like this will tell you that depression and pain can be like constant companions. It’s as if they feed off one another. I saw in your post that your fibromyalgia diagnosis and your auto accident occurred close to the same time. It’s important to get both under control, and I hope you’re under the care of specialists in psychiatry, and neurology or pain management. This isn’t something your primary physician should be treating her/himself without at the very least being in consultation with specialists.

Getting the right match for antidepressant medication often takes trial and error. There’s no one ‘fix’ for it; however, there are many good and effective medications you and your psychiatrist can experiment with until you find what’s right for you. Sometimes it will be a combination of medications. Exercise, to the extent you’re able, and healthy eating are just as important. I notice you’re only a few years older than me. When we were growing up, the doctor was the ‘boss’, and didn’t like to be questioned. It’s vital that you have a doctor who is willing to work WITH you because you are also in charge of your health. As difficult as it is sometimes, try not to be too discouraged during the process of finding what will work for you, and don’t suffer in silence.

The same goes for whoever is treating your pain. You may have to try different strategies before you find what works for you. Physical therapy might help too.

I have a history of depression; however, this pain thing is more new to me. I was handed off to two specialists before receiving a diagnosis of myofascial pain syndrome. You can read about it on the Mayo Clinic and other web sites if you’re interested. I don’t think it’s necessary to go into great detail in this communication; pain is pain. I mentioned my diagnosis because sometimes similar therapies are used to treat myofascial pain and fibromyalgia.

I took a second look when you mentioned your auto accident. I was very recently injured in one myself. Thankfully, I’m alive and able to write to you, but I also feel like I’ve been hit by a freight train, and the medications to treat the resulting pain are only intended for short-term use.

I hope to see more posts from you on this forum, telling us of your progress. May God bless you and keep you, look upon you kindly, and give you peace.
Susan
User ID sistergoldenhair

@meggie

Hello everyone! I am 75, a Benedictine sister. While I was diagnosed with fibromyalgia years ago, that in itself did not cause too many problems. Depression was and is the biggest problem. However, a year ago I was in a car accident and have had severe (by my standards) pain ever since. After a LOT of dr. visits, experiments, etc. it’s ” we don’t know what’s wrong, we can’t fix it, manage the pain”. Problem is, the meds make depression symptoms MUCH worse…but without them I’m brought to tears, can’t think, etc. Is anyone else struggling with major depression and pain? How are you handling it? Thank you in advance

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Most people don’t understand our pain because it can’t be seen. We are our only advocates in our health. Have to talk to docs. I unfortunately have exhausted all pain relief except meds. Don’t want to take them. Just trying to keep positive

Liked by blindeyepug

@meggie

Hello everyone! I am 75, a Benedictine sister. While I was diagnosed with fibromyalgia years ago, that in itself did not cause too many problems. Depression was and is the biggest problem. However, a year ago I was in a car accident and have had severe (by my standards) pain ever since. After a LOT of dr. visits, experiments, etc. it’s ” we don’t know what’s wrong, we can’t fix it, manage the pain”. Problem is, the meds make depression symptoms MUCH worse…but without them I’m brought to tears, can’t think, etc. Is anyone else struggling with major depression and pain? How are you handling it? Thank you in advance

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I have Fibromyalgia and depression along with 3 herniated discs in my back and stress fractures. I also have kidney disease and high blood pressure. Some days are very hard to even get out of bed. I know what suffering with severe pain is all about About 4 months ago I saw a Gerontologist and she prescribed Cymbalta , and Tramadol twice a day. The Cymbalta has helped some. I used to be on Tramadol 4 times a day and felt much better, but because it’s a narcotic she won’t prescribe any more than twice a day. I also take Tylenol and use an ice pack and heating pad. I am 82 years old and I can’t cry with the pain because the movement makes it worse. I hope you can find some way to feel better. It helps to talk with someone or read all the post on the board.

@meggie

Hello everyone! I am 75, a Benedictine sister. While I was diagnosed with fibromyalgia years ago, that in itself did not cause too many problems. Depression was and is the biggest problem. However, a year ago I was in a car accident and have had severe (by my standards) pain ever since. After a LOT of dr. visits, experiments, etc. it’s ” we don’t know what’s wrong, we can’t fix it, manage the pain”. Problem is, the meds make depression symptoms MUCH worse…but without them I’m brought to tears, can’t think, etc. Is anyone else struggling with major depression and pain? How are you handling it? Thank you in advance

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Thank you so much for your response!  I too am on Cymbalta and another anitdepressant whose name I can't remember now.  Then the neurologist prescribed the Lyrica and Tramadol.  My doc said I could take it every six hours; wish doctors were all on the same page.  I've just begun to use heat and cold and they do make some difference.  It sounds like you've got some additional very difficult conditions…I'm sorry and hoping you have some special Thanksgiving plans.  If not, know that this Benedictine community is praying for you.  Meggie

@meggie

Hello everyone! I am 75, a Benedictine sister. While I was diagnosed with fibromyalgia years ago, that in itself did not cause too many problems. Depression was and is the biggest problem. However, a year ago I was in a car accident and have had severe (by my standards) pain ever since. After a LOT of dr. visits, experiments, etc. it’s ” we don’t know what’s wrong, we can’t fix it, manage the pain”. Problem is, the meds make depression symptoms MUCH worse…but without them I’m brought to tears, can’t think, etc. Is anyone else struggling with major depression and pain? How are you handling it? Thank you in advance

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Thank you for taking time to respond.  I am trying, and your saying it helps, to stay positive.  I admire you for being able to do this without medication.  Meggie

Liked by JustDoc

@meggie

Hello everyone! I am 75, a Benedictine sister. While I was diagnosed with fibromyalgia years ago, that in itself did not cause too many problems. Depression was and is the biggest problem. However, a year ago I was in a car accident and have had severe (by my standards) pain ever since. After a LOT of dr. visits, experiments, etc. it’s ” we don’t know what’s wrong, we can’t fix it, manage the pain”. Problem is, the meds make depression symptoms MUCH worse…but without them I’m brought to tears, can’t think, etc. Is anyone else struggling with major depression and pain? How are you handling it? Thank you in advance

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Thank you for taking time to respond at such length.  There is a psychiatrist involved who is very good.  We had the depression sort of under control…and this eye pain just exploded.  So we're in the trying things mode again, which really triggers my frustration.  I really am working on gentleness and patience and walking each day.  meggie

@meggie

Hello everyone! I am 75, a Benedictine sister. While I was diagnosed with fibromyalgia years ago, that in itself did not cause too many problems. Depression was and is the biggest problem. However, a year ago I was in a car accident and have had severe (by my standards) pain ever since. After a LOT of dr. visits, experiments, etc. it’s ” we don’t know what’s wrong, we can’t fix it, manage the pain”. Problem is, the meds make depression symptoms MUCH worse…but without them I’m brought to tears, can’t think, etc. Is anyone else struggling with major depression and pain? How are you handling it? Thank you in advance

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Thank you so much for taking the time to reply.  I have been on anti-depressants for many years.  I agree some of them are awful…horrible side effects and no help.  But I did finally find a really good psychiatrist by telemetry (like Skype) who put me on a couple of meds I'd never taken before and experimented with doses and times a day and it was almost working…until this eye pain exploded.  Sounds like you're not on a health plan that covers a psychiatrist??  Be sure to find a really good one if you do decide to go this route…one you can really talk to.  I hope your holidays bring some joy and peace.  meggie

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